Development of multimedia informational tools for breast cancer patients with low levels of health literacy

Hart, Tae L.; Blacker, Susan; Panjwani, Aliza A.; Torbit, Lindsey; Evans, Matt

doi:10.1016/j.pec.2014.11.015

Cited by 29 publications

(20 citation statements)

References 24 publications

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“…Accurate, reliable and comprehensible information is vital to these patients. 20 Access to health information, treatment literacy and the ability to understand this information are vital to the individual's health management. 21 Addressing these information needs helps cancer patients gain control of their condition and enhances their participation and self-care.…”

Section: Discussionmentioning

confidence: 99%

The Effect of Health Literacy Counselling on Self-Care in Women after Mastectomy: a Randomized Clinical Trial

et al. 2020

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Introduction:Breast cancer has a high prevalence, constituting a major cause of mortality in women around the world. Health literacy has a vital role in the self-care of chronic diseases such as cancer and is an essential element in the ability of each person to engage with health promotion. The aim of this study was to determine effect of health literacy counselling on selfcare in women after mastectomy. Methods: This study is a randomized, controlled, clinical trial carried out on 72 women with breast cancer after mastectomy in Fars province. The eligible women entered the study using convenience sampling and were then divided into an intervention and a control group through randomized blocks of four. Health literacy questionnaire and self-care questionnaire were distributed among the participants before, immediately after and three weeks following the intervention. Data analysis was performed in SPSS ver.13. Results:The results showed no significant differences between the two groups in terms of their health literacy and self-care scores before the intervention (P=0.299 and 0.059). A comparison of the mean values showed a greater increase in the mean score of health literacy and score of selfcare immediately and three weeks after the intervention in the intervention group compared to the control group. Also, the mean score of the dimensions of self-care in chemotherapy increased over time in the intervention group. Conclusion:The findings of this study confirm the higher effectiveness of counseling with a health literacy approach on overall self-care in chemotherapy and all its dimensions.Citation: Rastegar M, Mahmoodi Z, Esmaelzadeh S, Sharifi N, Kabir K. The effect of health literacy counselling on self-care in women after mastectomy: a randomized clinical trial.

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Section: Discussionmentioning

confidence: 99%

The Effect of Health Literacy Counselling on Self-Care in Women after Mastectomy: a Randomized Clinical Trial

et al. 2020

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“…Participants could stop anytime and continue at the point where they stopped. The use of video material might also be beneficial in the understanding of the information for survivors with low health literacy [ 99 , 100 ]. Second, although the KNW is based on PST and CBT, there is no real patient-therapist interaction.…”

Section: Discussionmentioning

confidence: 99%

The Kanker Nazorg Wijzer (Cancer Aftercare Guide) protocol: the systematic development of a web-based computer tailored intervention providing psychosocial and lifestyle support for cancer survivors

et al. 2015

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BackgroundAfter primary treatment, many cancer survivors experience psychosocial, physical, and lifestyle problems. To address these issues, we developed a web-based computer tailored intervention, the Kanker Nazorg Wijzer (Cancer Aftercare Guide), aimed at providing psychosocial and lifestyle support for cancer survivors. The purpose of this article is to describe the systematic development and the study design for evaluation of this theory and empirical based intervention.Methods/designFor the development of the intervention, the steps of the Intervention Mapping protocol were followed. A needs assessment was performed consisting of a literature study, focus group interviews, and a survey study to get more insight into cancer survivors’ health issues. This resulted in seven problem areas that were addressed in the intervention: cancer-related fatigue, return to work, anxiety and depression, social relationships and intimacy, physical activity, diet, and smoking. To address these problem areas, the principles of problem-solving therapy and cognitive behavioral therapy are used. At the start of the intervention, participants have to fill in a screening questionnaire. Based on their answers, participants receive tailored advice about which problem areas deserve their attention. Participants were recruited from November 2013 through June 2014 by hospital staff from 21 hospitals in the Netherlands. Patients were selected either during follow-up visits to the hospital or from reviews of the patients’ files. The effectiveness of the intervention is being tested in a randomized controlled trial consisting of an intervention group (n = 231) and waiting list control group (n = 231) with a baseline measurement and follow-up measurements at 3, 6, and 12 months.DiscussionUsing the Intervention Mapping protocol resulted in a theory and evidence-based intervention providing tailored advice to cancer survivors on how to cope with psychosocial and lifestyle issues after primary treatment.Trial registrationDutch Trial Register NTR3375

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“…Findings from many studies confirm that low health literacy is one of the social determinants of health associated with cancer-related disparities, and that expanding partnerships with community-based organizations and consumers addresses unmet needs associated with cancer disparities. 3,[11][12][13] In Southeastern Pennsylvania, several health systems joined in efforts to improve health literacy for all patients. Nine hospitals participate in the Southeastern Pennsylvania Regional Enhancements Addressing Disconnects (SEPA-READS), a regional collaborative developed in 2010 and coordinated by two Philadelphia-based organizations, the Health Care Improvement Foundation and Thomas Jefferson University and Hospitals.…”

Section: Health Literacy Approaches To Cancer Preventionmentioning

confidence: 99%

“…1 Numerous studies have demonstrated that low health literacy is a contributing factor to poor health status and outcomes, higher premature mortality rates, lack of adherence to medical recommendations, and higher direct and indirect health costs. 2,3 The importance of health literacy is highlighted in a number of national plans and guidelines, Healthy People 2020, 4 the National Academy of Medicine's Ten Attributes of a Health Literate Health Care Organization, 5 The Guide to Community Preventive Services, 6 recommendations from the U.S. Preventive Services Task Force, 7 and the National Standards for Culturally and Linguistically Appropriate Services in Health and Health Care (CLAS Standards). 8 These guidelines, informed by the peer-reviewed literature, describe multiple interventions focused on improving consumer understanding to inform decision making about prevention, early screening, and treatment to improve health outcomes and quality of life, and to reduce costs across chronic diseases and different types of cancer.…”

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confidence: 99%

“…8 These guidelines, informed by the peer-reviewed literature, describe multiple interventions focused on improving consumer understanding to inform decision making about prevention, early screening, and treatment to improve health outcomes and quality of life, and to reduce costs across chronic diseases and different types of cancer. 2,3,[9][10][11][12][13][14] This article, focusing on early adults (aged 18-44 years), addresses how evidence-based health literacy practices can improve patient education and system changes, and how community organizations can play a vital role in educating consumers about cancer prevention and engagement with healthcare providers. 15 Recent studies have investigated the association of health literacy with cancer-related attitudes, knowledge, and behaviors to educate and increase patient trust, self-efficacy, and engagement in decision making.…”

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confidence: 99%

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Health Literacy: Cancer Prevention Strategies for Early Adults

Simmons

Cosgrove²,

Romney

et al. 2017

American Journal of Preventive Medicine

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Health literacy, the degree to which individuals have the capacity to obtain, process, and understand health information and services needed to make health decisions, is an essential element for early adults (aged 18-44 years) to make informed decisions about cancer. Low health literacy is one of the social determinants of health associated with cancer-related disparities. Over the past several years, a nonprofit organization, a university, and a cancer center in a major urban environment have developed and implemented health literacy programs within healthcare systems and in the community. Health system personnel received extensive health literacy training to reduce medical jargon and improve their patient education using plain language easy-to-understand written materials and teach-back, and also designed plain language written materials including visuals to provide more culturally and linguistically appropriate health education and enhance web-based information. Several sustainable health system policy changes occurred over time. At the community level, organizational assessments and peer leader training on health literacy have occurred to reduce communication barriers between consumers and providers. Some of these programs have been cancer specific, including consumer education in such areas as cervical cancer, skin cancer, and breast cancer that are targeted to early adults across the cancer spectrum from prevention to treatment to survivorship. An example of consumer-driven health education that was tested for health literacy using a comic book-style photonovel on breast cancer with an intergenerational family approach for Chinese Americans is provided. Key lessons learned from the health literacy initiatives and overall conclusions of the health literacy initiatives are also summarized.

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Development of multimedia informational tools for breast cancer patients with low levels of health literacy

Cited by 29 publications

References 24 publications

The Effect of Health Literacy Counselling on Self-Care in Women after Mastectomy: a Randomized Clinical Trial

The Effect of Health Literacy Counselling on Self-Care in Women after Mastectomy: a Randomized Clinical Trial

The Kanker Nazorg Wijzer (Cancer Aftercare Guide) protocol: the systematic development of a web-based computer tailored intervention providing psychosocial and lifestyle support for cancer survivors

Health Literacy: Cancer Prevention Strategies for Early Adults

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