Development of Nationwide Recommendations to Support Prenatal Counseling in Extreme Prematurity

Geurtzen, Rosa; Heijst, Arno F J van; Draaisma, J. M. T.; Kuijpers, Lindie J.M.K.; Woiski, Mallory; Scheepers, Hubertina C.J.; Kaam, Anton H. van; Oudijk, Martijn A.; Lafeber, Harrie N.; Bax, Caroline J.; Koper, Jan F.; Duin, L. K.; Hoeven, Marc A. van der; Kornelisse, René F.; Duvekot, Johannes J.; Andriessen, Peter; Heimel, Pieter J. van Runnard; Heide-Jalving, Marja van der; Bekker, Mireille N.; Tollenaer, Susanne M Mulder-de; Eyck, Jim van; Eshuis-Peters, Ellis; Graatsma, Margo; Hermens, R.P.M.G.; Hogeveen, Marije

doi:10.1097/01.ogx.0000604496.36351.f9

Cited by 3 publications

(5 citation statements)

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“…Published guidelines also recommend, assuming there is a second parent in the family structure, that both parents should be present for the counseling. 3 We found that for more than half of the premature birth counseling sessions, the mother's primary support-person was not in attendance. This is concerning as decision-making is compromised when counseling is not provided to the whole decision-making family unit.…”

Section: Discussionmentioning

confidence: 75%

“…2 To prepare for this role, parents meet face to face with neonatal counselors to receive prematurity information recommended by the American Academy of Pediatrics. 3 This information includes probability for survival, the difficulties surviving children face later in life, accuracy of the estimated gestational age, and factors that influence neonatal outcomes. Based on this knowledge, parents make resuscitation choices that best align with their reli-gious, cultural, and family beliefs.…”

Section: Introductionmentioning

confidence: 99%

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The 30-Minute Sprint: Recognizing Intrapartum Prematurity Counseling Limitations

Georgescu

Muthusamy

Basir

2021

J Pediatr Intensive Care

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Describe the characteristics and content of intrapartum counseling provided to women hospitalized for premature birth between 23 and 34 weeks' gestation age (GA). The study was conducted between April and December 2009 in two teaching hospitals with labor and delivery units and level 3 neonatal intensive care units. Counselors completed a postcounseling survey. From 60 sessions, 46 surveys were collected. The median counseling duration was 30 minutes; this was not associated with gestational age. The support-person was not present for most (57%) counseling sessions. There was a positive correlation (p = 0.001) between the number of maternal questions and her education. There was no difference in counseling content across the 23 to 34 weeks' GA regarding delivery room care, physical/mental disability, and vision problems. This study of characteristics and content of premature birth counseling for birth between 23 and 34 weeks' GA found that the duration of most sessions is 30 minutes; the father of the baby is not present during counseling for most premature births, and the topics discussed by counselors are fairly similar and extensive irrespective of the GA. These findings highlight the existing contrast between the recommended counseling practices and the actual practice reported by counselors.

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Section: Discussionmentioning

confidence: 75%

Section: Introductionmentioning

confidence: 99%

The 30-Minute Sprint: Recognizing Intrapartum Prematurity Counseling Limitations

Georgescu

Muthusamy

Basir

2021

J Pediatr Intensive Care

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“…Preparatory materials were shared electronically in advance of the session. Fellows were given articles on periviability counseling recommendations [ 3 , 4 ]. Faculty facilitators were given information on key learning points for each section of the didactic.…”

Section: Technical Reportmentioning

confidence: 99%

“…There is literature on recommended practices for content to include in antenatal counseling related to periviability and extreme prematurity. Prereading on this topic was assigned to the trainees to ensure they felt prepared to present relevant medical information [ 3 , 4 ]. Anecdotally, providing medical information is the area in which most physicians feel comfortable as compared with addressing emotions, so clinicians have a tendency to provide too much information as a way of staying in their comfort zone.…”

Section: Technical Reportmentioning

confidence: 99%

“…Therefore, it is critical that neonatal clinicians have advanced communication skills and training to respond to emotions likely to be elicited from families during antenatal counseling [ 2 ]. Although guidelines and recommendations have been developed on the content of the medical information to include in antenatal counseling at the limits of premature viability [ 3 , 4 ], there is variation in how antenatal counseling skills are taught to neonatal-perinatal medicine (NPM) fellows in the United States, including whether fellows are trained to respond to families’ spiritual and emotional needs, whether fellows are trained to explain and provide comfort care at birth, and how often they have the opportunity to provide supervised antenatal counseling with real or simulated patients to facilitate feedback and learning [ 2 , 5 , 6 ]. Further, there are no currently available validated tools to evaluate antenatal counseling skills in NPM trainees.…”

Section: Introductionmentioning

confidence: 99%

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Teaching Antenatal Counseling Skills via Video Conference

Kim¹,

Umoren

Gray

2021

Cureus

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Neonatologists provide counseling to expectant parents to prepare them for the birth and subsequent medical care that their extremely preterm, or otherwise medically complex newborn may require. The skills required to conduct these sensitive conversations are often taught to neonatology trainees via direct observation or simulated scenarios in advance of counseling actual patients. This technical report details how we taught antenatal counseling skills to junior neonatal-perinatal medicine (NPM) fellows via video conferencing during the coronavirus disease 2019 (COVID-19) pandemic. This approach could be used to effectively prepare future trainees to perform antenatal counseling.

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Exploring professionals’ views regarding prenatal counselling in congenital diaphragmatic hernia

Groot

Konings

Boode

et al. 2023

Journal of Perinatal Medicine

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Objectives Congenital diaphragmatic hernia (CDH) is a congenital malformation in which the diaphragm and lungs are underdeveloped, leading to cardiorespiratory and other problems. This study aimed to explore professionals’ views regarding prenatal counselling in CDH. Methods A qualitative study was performed among healthcare professionals involved in the care of CDH patients in Radboud university medical center Amalia Children’s Hospital. Semi-structured interviews were conducted until saturation was achieved. Transcripts were qualitatively analysed to gain insight into professionals’ views regarding counselling. Results Eighteen professionals with various backgrounds were included. The professionals agreed that the first counselling session should be soon after diagnosis and additional sessions should be offered. Concerning counselling content, participants considered explanation of the diagnosis, prognosis, short- and long-term consequences, treatment options and practical aspects important. As for decision-making about possible termination of pregnancy, all professionals emphasised the importance of the parental role, but the preferred parental involvement varied. Regarding practical aspects, preferred counsellors were a neonatologist, obstetrician, paediatric surgeon and/or medical social worker. Participants emphasised that the counselling should be adjusted to parents’ needs. Conclusions This study gained insight into professionals’ views regarding the timeline, content, decision-making process, and practical aspects of prenatal counselling in CDH.

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Development of Nationwide Recommendations to Support Prenatal Counseling in Extreme Prematurity

Cited by 3 publications

References 0 publications

The 30-Minute Sprint: Recognizing Intrapartum Prematurity Counseling Limitations

The 30-Minute Sprint: Recognizing Intrapartum Prematurity Counseling Limitations

Teaching Antenatal Counseling Skills via Video Conference

Exploring professionals’ views regarding prenatal counselling in congenital diaphragmatic hernia

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