Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process

Bogetz, Jori F.; Johnston, Emily E.; Thienprayoon, Rachel; Patneaude, Arika; Ananth, Prasanna; Rosenberg, Abby R.

doi:10.1542/peds.2022-058241

Cited by 9 publications

(2 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The identification and selection of experts are crucial in a Delphi study. 58 The experts involved in this study had high levels of professional representativeness and authority. Their opinions were well-coordinated and focused.…”

Section: Discussionmentioning

confidence: 99%

Behavioral assessment scale of consciousness for nonhuman primates: A Delphi study

Sun,

Dong,

et al. 2023

Science Progress

View full text Add to dashboard Cite

Objective Nonhuman primates (NHPs) are suitable for being model animals in the study of consciousness and loss of consciousness (LoC) with a similar brain structure and function to humans. However, there is no effective consciousness assessment scale for them. This study aimed to develop a behavioral assessment scale of consciousness for NHPs. Methods We constructed an initial indicator framework based on the clinical consciousness disorder assessment scales and the physiological characteristics, consciousness, and arousal behavior of NHPs. A two-round online Delphi method was conducted by a multidisciplinary expert panel to construct a behavioral assessment scale of consciousness for NHPs. The indicators and descriptions were revised according to the experts’ feedback and then sent out for repeated consultations along with a summary of the results of the previous round of consultations. The accepted competencies of indicators were established with mean scores in two scoring criteria (importance and feasibility) ≥4.0, agreement rate with a rating of importance or essential ≥70.0%, and a coefficient of variation ≤0.25, as well as discussions of the research group. Results Consensus was achieved after the second round of consultations, which was completed by 28 experts who specialized in rehabilitation, neuroscience, psychology, neurosurgery, and neurology. A new behavioral assessment scale of consciousness for NHPs, including 37 items organized hierarchically within seven dimensions including visual function, auditory function, motor function, orofacial movements, arousal, brainstem reflexes, and respiration, was developed in this study. Conclusions This study has successfully developed a behavioral assessment scale for measuring the conscious state of NHPs or NHP models with LoC. This tool is expected to facilitate future research into the underlying mechanisms of consciousness by providing a detailed and comprehensive means of measurement.

show abstract

Section: Discussionmentioning

confidence: 99%

Behavioral assessment scale of consciousness for nonhuman primates: A Delphi study

Sun,

Dong,

et al. 2023

Science Progress

View full text Add to dashboard Cite

show abstract

“…We, therefore, propose that we dismantle the good death into its often assumed, more actionable underlying elements. This approach closely echoes the ongoing movement toward quality measurement in pediatric EOL care, where we urge similar caution . Instead of presuming implicit, unstated components of a good death, high-quality EOL care, or any term to characterize the uniquely sensitive experience of a child’s death, clinicians and researchers should center families by using family-driven strategies to develop and define terminology.…”

mentioning

confidence: 99%