Development of the “living well” concept for older people with dementia

Abstract

Background An important goal in dementia care is how people with dementia can be supported in living well. To this end, we need a conceptualization of “living well” that is suitable for older people with dementia and then develop this conceptualization from the perspectives of both older people and caregivers. This study analyzed the concept of “living well” among older people with dementia. Methods Following Schwartz-Barcott and Kim’s hybrid model, this study comprised theoretical, fieldwork, and final analytic phases. In the theoretical phase, we reviewed the extant literature. In the fieldwork phase, we conducted in-depth interviews with 12 participants (five older people with dementia, two family members, and five nurses), followed by qualitative content analysis. In the final analytic phase, we defined the concept of “living well” by comprehensively analyzing the data from the theoretical phase and results from the fieldwork phase. Results We derived physical, mental, and social relationship dimensions of the conceptualization of “living well” for older people with dementia. The physical dimensions were “ability for daily living” and “symptom management.” The mental dimensions were “psychological health,” “psychological stability,” “maintaining identity and growth,” and “human dignity.” Finally, the social relationship dimensions were “maintaining social relations and community connectivity” and “government support.” Conclusions Our analysis of the concept of “living well” can be used for developing tools and interventions to improve the ability of older people with dementia to live well.

In constant search of the good: a qualitative study into insiders’ perspectives on living well with dementia

“…However, the limited number of qualitative studies on living well with dementia tend to use this concept as a synonym for quality of life or coping (20,21). We currently know of only four qualitative studies explicitly engaging with respondents' own ideas regarding living well with dementia, but these focus on professionals in residential care, public perceptions of dementia, and the Korean context (22)(23)(24)(25).…”