Development of the PROMIS® pediatric global health (PGH-7) measure

Forrest, Christopher B.; Bevans, Katherine B.; Pratiwadi, Ramya; Moon, JeanHee; Teneralli, Rachel E.; Minton, Jo M.; Tucker, Carole A.

doi:10.1007/s11136-013-0581-8

Cited by 137 publications

(114 citation statements)

References 21 publications

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“…Although the domain that measures this, the Change in Health item, is a single-item global assessment of the patients’ perception of “feeling better,” recent research has demonstrated the relevance of this type of global health item to measure a patient’s well-being. [27] For example, individuals who had worse scores on a single-item of general self-rated health had higher healthcare expenditures. [28] Further, a meta-analysis revealed that single-item health measures have shown a strong association with mortality, such that those individuals reporting worse health had a higher risk of mortality.…”

Section: Discussionmentioning

confidence: 99%

Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy

et al. 2015

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The completion of the Multicenter Silent Infarct Transfusion Trial demonstrated that children with pre-existing silent cerebral infarct and sickle cell anemia (SCA) who received regular blood transfusion therapy had a 58% relative risk reduction of infarct recurrence when compared to observation. However, the total benefit of blood transfusion therapy, as assessed by the parents, was not measured against the burden of monthly blood transfusion therapy. In this planned ancillary study, we tested the hypothesis that a patient centered outcome, health-related quality of life (HRQL), would be greater in participants randomly assigned to the blood transfusion therapy group than the observation group. A total of 89% (175 of 196) of the randomly allocated participants had evaluable entry and exit HRQL evaluations. The increase in Change in Health, measured as the child’s health being better, was significantly greater for the transfusion group than the observation group (Difference Estimate = −0.54, p ≤ 0.001). This study provides the first evidence that children with SCA who received regular blood transfusion therapy felt better and had better overall HRQL than those who did not receive transfusion therapy.

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Section: Discussionmentioning

confidence: 99%

Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy

et al. 2015

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“…For PROMIS Anxiety T-scores, a score of 50 represented the mean of the general population; 10 represented the SD.of our group have successfully worked with OP4G on previous studies funded by the National Institutes of Health 32,33. (%) Abbreviations: GED, General Education Development; MAX-PC, Memorial Anxiety Scale for Prostate Cancer; OP4G, Opinions 4 Good; PROMIS, Patient-Reported Outcomes Measurement Information System; PROMIS Anxiety, PROMIS Anxiety Short Form 7a; URO-QOL, men diagnosed with clinically localized prostate cancer who were enrolled through the Northwestern University urology department clinics.…”

mentioning

confidence: 99%

“…(%) PROMIS Anxiety Short Form 7a; URO-QOL, men diagnosed with clinically localized prostate cancer who were enrolled through the Northwestern University urology department clinics. For PROMIS Anxiety T-scores, a score of 50 represented the mean of the general population; 10 represented the SD.CancerSeptember 15, 2019 of our group have successfully worked with OP4G on previous studies funded by the National Institutes of Health 32,33.…”

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confidence: 99%

Establishing a common metric for self‐reported anxiety in patients with prostate cancer: Linking the Memorial Anxiety Scale for Prostate Cancer with PROMIS Anxiety

Victorson

Schalet

Kundu

et al. 2019

Cancer

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BACKGROUND: Anxiety is a common patient concern and clinical endpoint in prostate cancer outcomes research. It is measured using different self-report instruments that are not directly comparable, thereby making clinical trials, clinical performance measurement, and comparative effectiveness research challenging when anxiety is the outcome of interest. The objective of the current study was to enable a common reporting metric of anxiety so that scores on commonly used anxiety measures could be converted into Patient-Reported Outcomes Measurement Information System (PROMIS) scores for ease of application, interpretation, and comparability. METHODS: Using an internet health panel, a total of 806 men with clinically localized prostate cancer completed items from the National Institutes of Health PROMIS Anxiety Short Form (version 7a) and the 18-item Memorial Anxiety Scale for Prostate Cancer (MAX-PC). A common metric was created using analyses based on item response theory, producing score crosswalk tables. The linking relationships were evaluated by resampling small subsets and estimating confidence intervals for the differences between the observed and linked PROMIS scores. RESULTS: Results of factor analysis and item response theory model fit supported the hypothesis that both scales measure essentially the same concept. Therefore, crosswalk tables appear to be justified and increasingly robust with increasing sample sizes. CONCLUSIONS: MAX-PC Anxiety results can be expressed on the PROMIS Anxiety metric for the purposes of clinical performance measurement, clinical trial outcomes, comparative effectiveness research, and other efforts to compare anxiety results across studies that use any one of these measures. Cancer 2019;125:3249-3258.

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“…Due to poor diets and oral hygiene, many children and adolescents are especially vulnerable to dental caries and oral health problems. In order to address these issues, patient-reported measures can be an essential part of patient-centered care (Forrest et al, 2014;Perlin, Kolodner, & Roswell, 2004;Snyder, Jensen, Segal, & Wu, 2013). Our previous research developed self-report items to assess oral health status for children and adolescents.…”

Section: Introductionmentioning

confidence: 99%

Computerized adaptive testing and short form development for child and adolescent oral health patient‐reported outcomes measurement

Shen

Wang

Marcus

et al. 2019

Clinical & Exp Dental Res

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Objectives To develop computerized adaptive testing (CAT) and short forms of self‐report oral health measures that are predictive of both the children's oral health status index (COHSI) and the children's oral health referral recommendation (COHRR) scales, for children and adolescents, ages 8–17. Material and methods Using final item calibration parameters (discrimination and difficulty parameters) from the item response theory analysis, we performed post hoc CAT simulation. Items most frequently administered in the simulation were incorporated for possible inclusion in final oral health assessment toolkits, to select the best performing eight items for COHSI and COHRR. Results Two previously identified unidimensional sets of self‐report items consisting of 19 items for the COHSI and 22 items for the COHRR were administered through CAT resulting in eight‐item short forms for both the COHSI and COHRR. Correlations between the simulated CAT scores and the full item bank representing the latent trait are r = .94 for COHSI and r = .96 for COHRR, respectively, which demonstrated high reliability of the CAT and short form. Conclusions Using established rigorous measurement development standards, the CAT and corresponding eight‐item short form items for COHSI and COHRR were developed to assess the oral health status of children and adolescents, ages 8–17. These measures demonstrated good psychometric properties and can have clinical utility in oral health screening and evaluation and clinical referral recommendations.

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Development of the PROMIS® pediatric global health (PGH-7) measure

Cited by 137 publications

References 21 publications

Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy

Health‐related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy

Establishing a common metric for self‐reported anxiety in patients with prostate cancer: Linking the Memorial Anxiety Scale for Prostate Cancer with PROMIS Anxiety

Computerized adaptive testing and short form development for child and adolescent oral health patient‐reported outcomes measurement

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