Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative

Lisanti, Amy Jo; Vittner, Dorothy; Peterson, Jennifer K.; Bergen, Andrew H. Van; Miller, Thomas A.; Gordon, Erin E; Negrin, Karli A; Desai, Hema; Willette, Suzie; Jones, Melissa B.; Caprarola, Sherrill D; Jones, Anna J; Helman, Stephanie; Smith, Jodi M.; Anton, Corinne M.; Bear, Laurel; Malik, Lauren; Russell, Sarah K; Mieczkowski, Dana J; Hamilton, Bridy O; McCoy, Meghan; Feldman, Yvette; Steltzer, Michelle; Savoca, Melanie; Spatz, Diane L.; Butler, Samantha

doi:10.1017/s1047951123000525

Cited by 10 publications

(2 citation statements)

References 212 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…5,6,12,30 Building on the importance of "Early Developmental Intervention," Neonatal Developmental Care is now a large part of early intervention for the preterm infant and increasingly for the infant with complex cardiac disease. 31,32 The recognition that infants with CHD are at risk for delay or disabilities in all developmental areas has resulted in the current recommendations for Individualized Family-Centered Developmental Care beginning with fetal interventions and continuing throughout the hospital period. 31 Critical to Individualized Developmental Care is the training required by the caregivers to enable them to read and understand cues given by the infant in order to better guide the development of the infant.…”

Section: Discussionmentioning

confidence: 99%

Differences in gross motor and fine motor outcomes for toddlers after early complex cardiac surgery

Robertson,

Khademioureh,

Dinu

et al. 2024

Cardiol Young

View full text Add to dashboard Cite

Objectives: To determine whether gross motor scores of toddlers after complex cardiac surgery were different from fine motor scores and were adequately represented by motor composite scores and, whether acute care predictors and chronic childhood health markers of gross motor scores differed from those of fine motor. Methods: This prospective inception-cohort outcomes study included 171 toddlers after complex cardiac surgery with cardiopulmonary bypass at age <6 months, born in Northern Alberta from 2009 to 2019, and without known chromosomal abnormalities. At a mean (standard deviation) age of 21.7 (3.7) months, the Bayley Scales of Infant and Toddler Development-III determined motor composite and scaled scores (normative values, 100 (15), 10 (3), respectively). The same variables from surgery and assessment were analysed using multivariate regression to predict gross and fine motor scores; results expressed as effect size (95% confidence interval) with % variance. Results: Composite, fine, and gross motor scores were 89.7 (14.2), 9.4 (2.5), and 7.2 (2.7), respectively. Predictive variables accounted for 21.2% of the variance for fine motor, and 36.9% for gross motor. Multivariate analysis for gross motor scores included toddlers need for cardiac medication, effect size (95% confidence interval) −0.801 (−1.62, −0.02), gastrostomy, −1.35 (−2.39, −0.319), and single ventricle, −0.93 (−1.71, −0.15). These same variables did not predict fine motor scores. Conclusion: Gross motor skills commonly were lower than fine motor skills for toddlers after complex cardiac surgery. Predictors for gross motor scores differed from fine motor scores. Separate reporting of gross motor scores could lead to improved identification of predictors of delay and to optimised early intervention.

show abstract

Section: Discussionmentioning

confidence: 99%

Differences in gross motor and fine motor outcomes for toddlers after early complex cardiac surgery

Robertson,

Khademioureh,

Dinu

et al. 2024

Cardiol Young

View full text Add to dashboard Cite

show abstract

“…Recent publications have stressed the importance of IDC in the CICU ( 34 – 36 ); however, it appears that IDC practices are implemented to varying degrees ( 31 , 37 , 38 ). The extreme nature of the medical needs of the CICU population provide an extra layer of challenge with extremely precarious patients, life threatening procedures, perilous lines and tubes, postsurgical obstacles, medical complications, extremely long hospital stays, comorbid medical conditions, large age range for patients, and traumatized families.…”

Section: Introductionmentioning

confidence: 99%

Caring for hearts and minds: a quality improvement approach to individualized developmental care in the cardiac intensive care unit

Butler,

Rofeberg,

Smith-Parrish

et al. 2024

Front. Pediatr.

Self Cite

View full text Add to dashboard Cite

IntroductionInfants with congenital heart disease (CHD) are at high risk for developmental differences which can be explained by the cumulative effect of medical complications along with sequelae related to the hospital and environmental challenges. The intervention of individualized developmental care (IDC) minimizes the mismatch between the fragile newborn brain's expectations and the experiences of stress and pain inherent in the intensive care unit (ICU) environment.MethodsA multidisciplinary group of experts was assembled to implement quality improvement (QI) to increase the amount of IDC provided, using the Newborn Individualized Developmental Care and Assessment Program (NIDCAP), to newborn infants in the cardiac ICU. A Key Driver Diagram was created, PDSA cycles were implemented, baseline and ongoing measurements of IDC were collected, and interventions were provided.ResultsWe collected 357 NIDCAP audits of bedside IDC. Improvement over time was noted in the amount of IDC including use of appropriate lighting, sound management, and developmentally supportive infant bedding and clothing, as well as in promoting self-regulation, therapeutic positioning, and caregiving facilitation. The area of family participation and holding of infants in the CICU was the hardest to support change over time, especially with the most ill infants. Infants with increased medical complexity were less likely to receive IDC.DiscussionThis multidisciplinary, evidence-based QI intervention demonstrated that the implementation of IDC in the NIDCAP model improved over time using bedside auditing of IDC.

show abstract

The Alberta Infant Motor Scale as an Outcomes Measure of Gross Motor Abilities after Early Complex Cardiac Surgery

Baril,

Joffe,

Andersen

et al. 2024

Pediatr Cardiol

View full text Add to dashboard Cite

Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative

Cited by 10 publications

References 212 publications

Differences in gross motor and fine motor outcomes for toddlers after early complex cardiac surgery

Differences in gross motor and fine motor outcomes for toddlers after early complex cardiac surgery

Caring for hearts and minds: a quality improvement approach to individualized developmental care in the cardiac intensive care unit

The Alberta Infant Motor Scale as an Outcomes Measure of Gross Motor Abilities after Early Complex Cardiac Surgery

Contact Info

Product

Resources

About