Developmentally Supportive Care in Congenital Heart Disease: A Concept Analysis

Peterson, Jennifer K.; Evangelista, Lorraine S.

doi:10.1016/j.pedn.2017.05.007

Cited by 25 publications

(22 citation statements)

References 39 publications

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“…Lawoko et al [ 19 ] investigated the anxiety level of parents of CHD children who underwent open chest surgery, and found that these parents were generally anxious. Cardiac surgery was associated with high risk and great trauma, and the efficiency of the cardiac operation as part of the CHD treatment as well as the risk of complications were the caregivers’ biggest concerns [ 20 ].…”

Section: Discussionmentioning

confidence: 99%

Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study

Ding

Yao

2019

PLoS ONE

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Aims and objectivesTo explore the home care experiences of caregivers taking care of CHD children before and after cardiac surgery.BackgroundDespite the prevalence of congenital heart disease (CHD) in childhood, little is known about the experiences and impacts on the children and their caregivers after CHD diagnosis and surgery. Such knowledge is needed for meaningful support.DesignA qualitative descriptive study.MethodsTwenty-two caregivers of CHD children undergoing cardiac surgery participated in semi-structured interviews at a University Children’s Hospital in China. Data were collected by an experienced and trained interviewer. Qualitative content analysis was chosen to describe the experiences of the caregivers.ResultsCaregivers of CHD children experienced significant demands. After the children underwent their CHD operations, the caregivers experienced complex psychological feelings and excessive stress impacting upon theirlives. In addition, caregivers constantly adapted their roles with self-fulfillment in caring activities.ConclusionsCHD surgery has a major impact on the emotions and daily lives of children and their caregivers. This study offers a framework for understanding the importance of actively listening to caregivers so coping strategies can be implemented.Relevance to clinical practiceTheexperiencesdescribed in this study contribute to a better understanding of the needs of caregivers whose children underwent CHD operations. They also provide valuable information to professional medical care staff that developfuture nursing assessments.

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Section: Discussionmentioning

confidence: 99%

Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study

Ding

Yao

2019

PLoS ONE

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“…This systematic review and meta-analysis provides evidence and guidance for healthcare professionals to address the needs of CHD surgical patients and their parents in the areas where they are most vulnerable for lower HRQOL 61. One promising intervention is developmentally supportive care, which focuses on the unique needs of the individuals and their families 62 63.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

et al. 2018

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“…IFDC has been integrated into Neonatal Intensive Care Units (NICUs) but only recently surfaced for CICUs. 23–29 Currently, the use of IFDC in CICUs is variable; many centers report difficulty in implementation due to the perceived acuity of patients and lack of staff education. 24 One contributing explanation may be that there is sparse literature describing the challenges of infants with cCHD during the neonatal period.…”

Section: Introductionmentioning

confidence: 99%

Individualized Family-Centered Developmental Care

et al. 2019

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Background: Infants born with critical congenital heart disease (cCHD) who require surgical intervention in the newborn period are often hospitalized in a Cardiac Intensive Care Unit (CICU). Cardiac surgery and the CICU environment are traumatic to infants and their families. Infants are exposed to overwhelming stress which can result in increased pain, physiologic instability, behavioral disorganization, disrupted attachment, and altered brain development. Individualized Family-centered Developmental Care (IFDC) is a model that can address the unique needs and developmental challenges of infants with cCHD. Purpose: The purpose of this manuscript is to: 1.) Clearly describe the uniqueness of the cCHD infant, including the medical, neurological, and parental challenges. 2.) Propose methods to apply IFDC in order to support recovery of infants with cCHD in the CICU. Conclusions: The experiences in the CICU shape the developing brain and alter recovery and healing, thus adversely impacting development. IFDC is a promising model of care that nurses can integrate into the CICU to promote neuroprotection and development. Nurses can effectively integrate IFDC into the CICU by understanding the unique characteristics of infants with cCHD and applying IFDC interventions that include both maturity and recovery perspectives. Clinical Implications: The incorporation of IFDC interventions is essential for the infant with cCHD and should be standard of care. Applying IFDC with a recovery perspective in all aspects of caregiving will provide opportunities for individualization of care and parent engagement, allowing infants in the CICU to recover from surgery while supporting both short and long-term neurodevelopment.

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Developmentally Supportive Care in Congenital Heart Disease: A Concept Analysis

Cited by 25 publications

References 39 publications

Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study

Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study

Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis

Individualized Family-Centered Developmental Care

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