Purpose
To conduct pilot work on the use of a pediatric human patient simulator (HPS) to teach parents diabetes management for their children newly diagnosed with type 1 diabetes (T1DM) referred to as PETS-D (Parent Education Thru Simulation-Diabetes).
Methods
A focus group study and two pilot (one group and a randomized 2-group) studies were used to develop and test a teaching intervention. Parents were recruited from the Pediatric Diabetes Clinic at UMMHC. A brainstorming group (N=6) discussed the simulator concept and what modifications would be necessary to enhance parent teaching; we also developed the initial hypoglycemia and hyperglycemia teaching vignettes. Two focus groups (N=13) discussed the acceptance of using a simulator, and the timing and content of the teaching sessions. Based on their recommendations we conducted a one-group pre-post test (N=10) pilot with parents receiving hypoglycemia education enhanced with the HPS; followed by a randomized 2-group (N=16) pilot study.
Findings
The focus group participants enthusiastically supported the use of the pediatric HPS after diagnosis and made recommendations for the timing and content of the teaching sessions. Major findings from the pilot work included: (1) successful recruitment of 16 subjects from only one site within 6 weeks, (2) instrument reliability demonstrated for all scales, and (3) mean change from baseline in the predicted direction for all measures.
Conclusion
HPS has the potential of providing parents an innovative means of learning diabetes management through visualization during the early months after diagnosis and warrants a powered study to determine its efficacy.