Diabetes Research in an American Indian Community

Jacobson, Sharol F.; Booton-Hiser, Deborah; Moore, J. H.; Edwards, Karethy A.; Pryor, Sue; Campbell, Jennifer

doi:10.1111/j.1547-5069.1998.tb01273.x

Cited by 4 publications

(3 citation statements)

References 5 publications

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“…The nurse should be aware that charts, clipboards, and documents could be barriers to establishing rapport with the Native American patient. The nurse should sit face to face with the patient and, in an unhurried manner, get to know her before proceeding with care and teaching (Jacobson et al, 1998).…”

Section: Strategies For Educationmentioning

confidence: 99%

Care of the Native American Woman: Strategies for Practice, Education, and Research

Cesario

2001

J Obstet Gynecol Neonatal Nurs

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Native Americans, the smallest racial minority in the United States, comprise the fastest growing ethnic group and have a myriad of social and health problems. Women play an important role in health care practices and decision making in this community because many tribes are matrilineal. Practice, education, and research strategies should include identification of beliefs and practices specific to the clan or tribe because there is wide variance in values, lifestyles, and taboos from tribe to tribe. Traditional healers, Native American storytelling, and talking circles can be incorporated into the health care of urban Native American women and their families.

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Section: Strategies For Educationmentioning

confidence: 99%

Care of the Native American Woman: Strategies for Practice, Education, and Research

Cesario

2001

J Obstet Gynecol Neonatal Nurs

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“…Some studies with AI participants, most published more than a decade ago, have described their recruitment methods and lessons learned (8–12). A genetic-based study that investigated a molecular basis for differential response to cancer treatment, credited its recruitment of twenty-six AI participants to achieving a trusting partnership with tribal communities and engaging these communities in all aspects of the research endeavor(11).…”

Section: Introductionmentioning

confidence: 99%

Community-Based Study Recruitment of American Indian Cigarette Smokers and Electronic Cigarette Users

et al. 2017

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Data on the effectiveness of strategies for the recruitment of American Indians (AIs) into research is needed. This study describes and compares methods for identifying and recruiting AI tobacco users into a pilot study. Community-based strategies were used to recruit smokers (n = 35), e-cigarette users (n = 28), and dual users (n = 32) of AI descent. Recruitment was considered proactive if study staff contacted the individual at a pow wow, health fair, or vape shop and participation on-site or reactive if the individual contacted the study staff and participation occurred later. Screened, eligible, participated and costs and time spent were compared with Chi square tests. To understand AI descent, the relationship between number of AI grandparents and AI blood quantum was examined. Number of participants screened via the proactive strategy was similar to the reactive strategy (n = 84 vs. n = 82; p-value = 0.8766). A significantly greater proportion of individuals screened via the proactive than the reactive strategy were eligible (77 vs. 50%; p-value = 0.0002) and participated (75 vs. 39%; p-value = < 0.0001). Per participant cost and time estimated for the proactive strategy was $89 and 87 min compared to $79 and 56 min for the reactive strategy. Proportion at least half AI blood quantum was 32, 33, and 70% among those with 2, 3, and 4 AI grandparents, respectively (p = 0.0017). Proactive strategies resulted in two-thirds of the sample, but required more resources than reactive strategies. Overall, we found both strategies were feasible and resulted in the ability to reach sample goals. Lastly, number of AI biological grandparents may be a good, non-invasive indicator of AI blood quantum.

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“…Such negative experiences have substantially hindered research efforts in Oklahoma, with a few notable exceptions (9)(10)(11). These studies, although successful examples of how research partnerships occur, still only provided examples of how to partner with individual tribal communities.…”

mentioning

confidence: 99%

Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service

Chadwick¹,

Copeland²,

Daniel³

et al. 2014

American Journal of Epidemiology

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Despite the fact that numerous major public health problems have plagued American Indian communities for generations, American Indian participation in health research traditionally has been sporadic in many parts of the United States. In 2002, the University of Oklahoma Health Sciences Center (Oklahoma City, Oklahoma) and 5 Oklahoma American Indian research review boards (Oklahoma City Area Indian Health Service, Absentee Shawnee Tribe, Cherokee Nation, Chickasaw Nation, and Choctaw Nation) agreed to participate collectively in a national research trial, the Treatment Options for Type 2 Diabetes in Adolescence and Youth (TODAY) Study. During that process, numerous lessons were learned and processes developed that strengthened the partnerships and facilitated the research. Formal Memoranda of Agreement addressed issues related to community collaboration, venue, tribal authority, preferential hiring of American Indians, and indemnification. The agreements aided in uniting sovereign nations, the Indian Health Service, academics, and public health officials to conduct responsible and ethical research. For more than 10 years, this unique partnership has functioned effectively in recruiting and retaining American Indian participants, respecting cultural differences, and maintaining tribal autonomy through prereview of all study publications and local institutional review board review of all processes. The lessons learned may be of value to investigators conducting future research with American Indian communities.

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Diabetes Research in an American Indian Community

Abstract: Wax's conception of field work as a dialectic process was supported. A collaborative, community focus and willingness to spend much time acquiring cultural knowledge can facilitate successful research on Indian health.

Cited by 4 publications

References 5 publications

Care of the Native American Woman: Strategies for Practice, Education, and Research

Care of the Native American Woman: Strategies for Practice, Education, and Research

Community-Based Study Recruitment of American Indian Cigarette Smokers and Electronic Cigarette Users

Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service

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