Diabetes stigma, parent depressive symptoms and Type-1 diabetes glycemic control in India

Capistrant, Benjamin D.; Friedemann-Sánchez, Greta; Pendsey, Sharad

doi:10.1080/00981389.2019.1679321

Cited by 23 publications

(14 citation statements)

References 49 publications

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“…Various studies have demonstrated that parents' psychological and physical adjustment affect the children's adaption process with T1D (Vaid et al, 2018;Van Gampelaere et al, 2017). Children whose parents showed a high level of depression were at an elevated risk for worsening glycaemic control and acute hospitalisation (Butwicka et al, 2013;Capistrant et al, 2019). In a longitudinal sample, caregiver burden mediated the relationship between parental depression and children's glycaemic control (Cunningham et al, 2011).…”

Section: Backg Rou N Dmentioning

confidence: 99%

Resilience outstrips the negative effect of caregiver burden on quality of life among parents of children with type 1 diabetes: An Application of Johnson–Neyman Analysis

Luo

Bao

et al. 2021

Journal of Clinical Nursing

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Aims and objectives: To determine whether resilience buffers the deleterious consequences of caregiver burden on quality of life among parents of children with type 1 diabetes. Background:The burden of caring for a child with type 1 diabetes can be a form of stress and damage parents' quality of life. Resilience is a crucial psychological variable that contributes to individual health in the context of extraordinary challenges.However, no studies in paediatric diabetes have focused on the effects of parent resilience on caregiving burden and quality of life.Design: This was a descriptive cross-sectional study with a convenience sample following the STROBE guidelines.Methods: A total of 227 parents were invited to participate during the children's routine outpatient visit. Parents completed measures of resilience, caregiver burden and quality of life. The disease characteristics of children were extracted from the electronic medical records. We performed hierarchical multiple regression and Johnson-Neyman statistical analysis to probe the moderating effect of resilience. Results:The parents reported poorer mental and physical health as compared with the general population. Caregiver burden was significantly negatively associated with parents' quality of life, while resilience demonstrated a positive correlation with life quality. Resilience served as a moderator between caregiver burden and mental health. When parents experienced a high caregiver burden, the benefit of high resilience for better mental health was apparent. Conclusions:The present study underscores the protective role of resilience in reducing caregiving burden and improving parents' quality of life.Relevance to clinical practice: Regular psychosocial assessment for parents of children with type 1 diabetes should be incorporated into clinical nursing practice. This study confirms that resilience is a promising intervention target for parents with heavy caregiver burden and unsatisfactory life quality. | 1885LUO et aL.

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Section: Backg Rou N Dmentioning

confidence: 99%

Resilience outstrips the negative effect of caregiver burden on quality of life among parents of children with type 1 diabetes: An Application of Johnson–Neyman Analysis

Luo

Bao

et al. 2021

Journal of Clinical Nursing

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“…A review conducted on stigma related to diabetes in India showed that a person with diabetes is considered or branded as a sick person ( Thanushiya et al, 2019 ). Social stigma towards people with diabetes affects several aspects of a person’s life and affects overall outcome ( Capistrant et al, 2019 ). Therefore, there is a need to create awareness and educate people about diabetes and its medication, and related stigmas.…”

Section: Discussionmentioning

confidence: 99%

A Qualitative Study on Medication Taking Behaviour Among People With Diabetes in Australia

2021

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Background: Australia has a high proportion of migrants with an increasing migration rate from India. Type II diabetes is a long-term condition common amongst the Indian population.Aims: To investigate patients’ medication-taking behaviour and factors that influence adherence at the three phases of adherence.Methods: Semi-structured interviews were conducted with a convenience sample of 23 Indian migrants living in Sydney. All interviews were audio-recorded, transcribed verbatim and thematically analysed.Results: 1) Initiation: The majority of participants were initially prescribed oral antidiabetic medicine and only two were started on insulin. Most started taking their medicine immediately while some delayed initiating therapy due to fear of side-effects. 2) Implementation: Most participants reported taking their medicine as prescribed. However, some reported forgetting their medicine especially when they were in a hurry for work or were out for social events. 3) Discontinuation: A few participants discontinued taking their medicine. Those who discontinued did so to try Ayurvedic medicine. Their trial continued for a few weeks to a few years. Those who did not receive expected results from the Ayurvedic medicine restarted their prescribed conventional medicine.Conclusion: A range of medication-taking behaviours were observed, ranging from delays in initiation to long-term discontinuation, and swapping of prescribed medicine with Ayurvedic medicine. This study highlights the need for tailored interventions, including education, that focus on factors that impact medication adherence from initiation to discontinuation of therapy.

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“…The importance of a comprehensive approach that fosters management and support for children with T1D through the engagement of the school and parents is evident from findings of the evaluation. Studies have reported the need to create trust between schools and families and break the myths and social stigma/discrimination associated with having diabetes (Capistrant et al, 2019;Haugvik et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

Kids and Diabetes in Schools (KiDS) intervention in India: Participants’ perspectives

Rawal

Bhaumik

Shrivastav³

et al. 2021

Health Education Journal

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Objectives: The purpose of this study was to assess the experience and satisfaction of teachers and parents of children with and without diabetes, with the Kids and Diabetes in School (KiDS) intervention. Project KiDS aimed to foster a safe and supportive school environment to encourage the management of type 1 diabetes and prevention of type 2 diabetes. Design: This qualitative evaluation involved semi-structured, face-to-face, in-depth interviews with a purposive sample of 35 respondents, including teachers and parents of children with and without diabetes attending the selected schools at 1 and 3 months post-intervention implementation. In total, n = 5 schools (3 government and 2 private) were selected out of 15 schools in which the KiDS project was implemented. Methods: In total, 65 interviews were conducted in two rounds. The sample comprised teachers ( n = 20 in round 1; n = 18 in round 2), parents of children with diabetes ( n = 3 in both the rounds) and parents of children without diabetes ( n = 15 in round 1; n = 6 in round 2) attending five schools. Data were analysed using the thematic framework method. Results: Teachers reported gaining new knowledge as a result of the KiDS intervention. They felt more confident in assisting children with diabetes. Suggestions to strengthen the KiDS resource pack were the inclusion of case studies and audio-visual aids. Parents of children with diabetes reported that the project reinforced information and improved diabetes management skills. Their suggestions for strengthening KiDS materials included the provision of additional technical information. The parents of children without diabetes reported that the resource pack aided a better understanding of diabetes and clarified myths and misconceptions. Suggestions for strengthening the pack included the regular reinforcement of information on diabetes among children. Conclusion: Findings support the upscaling of KiDS work elsewhere in India through the engagement of multiple stakeholders to promote the management and prevention of diabetes in school.

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Diabetes stigma, parent depressive symptoms and Type-1 diabetes glycemic control in India

Cited by 23 publications

References 49 publications

Resilience outstrips the negative effect of caregiver burden on quality of life among parents of children with type 1 diabetes: An Application of Johnson–Neyman Analysis

Resilience outstrips the negative effect of caregiver burden on quality of life among parents of children with type 1 diabetes: An Application of Johnson–Neyman Analysis

A Qualitative Study on Medication Taking Behaviour Among People With Diabetes in Australia

Kids and Diabetes in Schools (KiDS) intervention in India: Participants’ perspectives

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