Diabetes, To the Point: Designing a website about diabetes for adults with intellectual disability and carers

Lennox, Nicholas; Edie, Gavin; Taylor, Miriam; Rey-Conde, Therese; McPhee, Jude

doi:10.3233/tad-2009-0272

Cited by 7 publications

(21 citation statements)

References 10 publications

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“…Information is plentiful for caregiving in general terms but lacks specificity for the circumstances experienced by aging carers of adults with I/DD. However, there is a notable example of informational web site regarding the management of diabetes aimed at both carers for persons with I/DD and the individuals with I/DD who have diabetes (Lennox, Edie, Taylor, Rey‐Conde, & McPhee, 2009). The aptly titled Diabetes to the Point web site (http://www2.som.uq.edu.au/som/Research/ResearchCentres/qcidd/Pages/Diabetes.aspx) utilizes extensive use of graphics for the sections designed for individuals with I/DD, whereas more textual information is displayed for carers (Lennox et al., 2009).…”

Section: Resultsmentioning

confidence: 99%

“…Wong, Chan, Li‐Tsang, and Lam (2008), for example, who having determined that successful search engine (i.e., Internet Explorer) performances were achieved by matching appropriately between the participants' abilities and task demands, advocated that computer training programs should be specific to the ability profile of the user. For instance, the unique preferences of people with I/DD and diabetes, and their carers, were taken into account in designing the previously mentioned web site Diabetes to the Point , employing extensive graphics for the sections of individuals with I/DD, whereas more textual information was given for carers (Lennox et al., 2009).…”

Section: Resultsmentioning

confidence: 99%

“…However, a useful approach could be to combine carer support into informational web sites that are also user friendly to their care recipients with I/DD. The Diabetes to the Point web site exemplifies on such a synthesis (Lennox et al., 2009) and provides a model that could be expanded to incorporate carer support groups.…”

Section: Discussionmentioning

confidence: 99%

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The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities

Perkins¹,

LaMartin

2012

Policy Practice Intel Disabi

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Social support is a potentially powerful mediator of well-being for family carers. Given that social engagement often decreases with age, the Internet broadens the opportunities for aging carers of individuals with intellectual and developmental disabilities (I/DD) to provide support to one another. This article reviews what constitutes social support, its importance to older adults, and more specifically carers of those with I/DD. Computer and Internet usage by older adults is briefly reviewed. The Internet as a medium for facilitating social support and support groups for carers is discussed. The role of the Internet in the lives of people with I/DD is also briefly reviewed. The literature review, compiled from a literature search of PubMed, Science Direct, PsycInfo, OvidSP, and CINAHL databases, revealed that there is a relative paucity of information regarding support on the Internet for aging carers, particularly for aging carers for people with I/DD. The review also revealed the utility of the Internet to be utilized as a medium for social support groups. The authors noted that aging adults can acquire new technological abilities and cognitive benefits when learning new skills. Both older adults and individuals with I/DD benefit when web sites are attentive to layout and usability. The authors suggest that Internet-based aging carer support groups that also incorporate educational content should be developed. Although many research questions remain about the design of Internet-based carer groups, web sites that appeal to both carers and individuals with I/DD for peer support and information are interesting avenues for further investigation.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities

Perkins¹,

LaMartin

2012

Policy Practice Intel Disabi

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“…Web sites containing such information need to have appropriate content (Chisholm & Vanderheiden, 1999) and be geared for readers of varying comprehension levels. For example, Lennox, Edieb, Taylora, Rey‐Condea, and McPheea (2009) developed a web site (http://www.som.uq.edu.au/research/qcidd/diabetes/index.shtml) specifically for people with ID and for persons who may support them. The web site, designed using international web site accessibility standards for people with disabilities, used information that was gleaned from consultations with adults with ID, care providers, and professionals.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Self‐Management Abilities of Diabetes in People With an Intellectual Disability Living in New Zealand

Hale

Trip

Whitehead

et al. 2011

Policy Practice Intel Disabi

135

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Self‐management of diabetes is encouraged; however, it is not an easy task and requires a good understanding of the disease. To determine how to improve the self‐management abilities of diabetes in people with an intellectual disability (ID), this study explored the knowledge and understanding of diabetes held by a select group of adults with diabetes. The group was made up of 14 adult New Zealanders (eight males and six females; age range 23–69 years) with type 1 diabetes (n = 6) and type 2 diabetes (n = 8). They and their nominated key informants were interviewed. Blood sugar levels (gained from using hemoglobin A1c (HbA1c) tests) were obtained on all participants. HbA1c levels ranged from 5.4% to 12.3%. The participants fell into three categories of understanding diabetes: (1) those who had a good understanding of the disease; (2) those who had some knowledge but their actual understanding was limited; and (3) those who demonstrated only a very basic knowledge. It was found that all of the adults were actively engaged in the self‐management process, and all appeared to have some understanding of the role of diet, blood sugar levels, and exercise in the management of their disease. Support from others was important in this process, even for those adults who had a good understanding of the disease. Diabetes significantly impacted the adults' lives, and in some cases, prevented them from living independently. When interviewed, the adults suggested strategies to assist with self‐management such as the use of a “buddy” system to encourage exercise. Authors concluded that adults with ID can be engaged in self‐management of their diabetes. However, it is important that they continue to receive education and support throughout their lives and that time be spent with each individual to identify how to provide the best education and support. Peer‐led education and user‐friendly resources are recommended to achieve lifelong education and support.

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Assistive Technology and Supports Provision: A Selective Review of the Literature and Proposed Areas of Application

Bryant

Shih

et al. 2010

Exceptionality

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Diabetes, To the Point: Designing a website about diabetes for adults with intellectual disability and carers

Cited by 7 publications

References 10 publications

The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities

The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities

Self‐Management Abilities of Diabetes in People With an Intellectual Disability Living in New Zealand

Assistive Technology and Supports Provision: A Selective Review of the Literature and Proposed Areas of Application

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