Diagnosis and Treatment for Vulvar Cancer for Indigenous Women From East Arnhem Land, Northern Territory: Bioethical Reflections

McGrath, Pam; Rawson, Nicole; Adidi, Leonora

doi:10.1007/s11673-014-9549-9

Cited by 7 publications

(25 citation statements)

References 29 publications

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“…Recent publications including the National Aboriginal and Torres Strait Islander Cancer Framework [25], The Optimal Care Pathway for Aboriginal and Torres Strait Islander people with cancer [26] and the Australian National Safety and Quality Health Service (NSQHS) Standards User guide for Aboriginal and Torres Strait Islander health [27] emphasise the importance of culturally safe, person-centred care and outline a number of areas to be considered when supporting the delivery of optimal care to Indigenous people. Despite these publications, many cancer providers and support services while committed to providing high quality care, often struggle with providing accessible, culturally safe cancer care to Indigenous Australians [24,28,29]. In the past decade, reports have begun to emerge of cancer services that provide innovative services to engage Indigenous patients and their families [30][31][32][33] although limited formal evaluation of successful cancer service delivery initiatives for Indigenous Australians have been reported to date.…”

Section: Introductionmentioning

confidence: 99%

“The support has been brilliant”: experiences of Aboriginal and Torres Strait Islander patients attending two high performing cancer services

Taylor

Lyford

Holloway

et al. 2021

BMC Health Serv Res

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Background Improving health outcomes for Indigenous people by providing person-centred, culturally safe care is a crucial challenge for the health sector, both in Australia and internationally. Many cancer providers and support services are committed to providing high quality care, yet struggle with providing accessible, culturally safe cancer care to Indigenous Australians. Two Australian cancer services, one urban and one regional, were identified as particularly focused on providing culturally safe cancer care for Indigenous cancer patients and their families. The article explores the experiences of Indigenous cancer patients and their families within the cancer services and ascertains how their experiences of care matches with the cancer services’ strategies to improve care. Methods Services were identified as part of a national study designed to identify and assess innovative services for Indigenous cancer patients and their families. Case studies were conducted with a small number of identified services. In-depth interviews were conducted with Indigenous people affected by cancer and hospital staff. The interviews from two services, which stood out as particularly high performing, were analysed through the lens of the patient experience. Results Eight Indigenous people affected by cancer and 23 hospital staff (Indigenous and non-Indigenous) were interviewed. Three experiences were shared by the majority of Indigenous cancer patients and family members interviewed in this study: a positive experience while receiving treatment at the cancer service; a challenging time between receiving diagnosis and reaching the cancer centre; and the importance of family support, while acknowledging the burden on family and carers. Conclusions This article is significant because it demonstrates that with a culturally appropriate and person-centred approach, involving patients, family members, Indigenous and non-Indigenous staff, it is possible for Indigenous people to have positive experiences of cancer care in mainstream, tertiary health services. If we are to improve health outcomes for Indigenous people it is vital more cancer services and hospitals follow the lead of these two services and make a sustained and ongoing commitment to strengthening the cultural safety of their service.

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Section: Introductionmentioning

confidence: 99%

“The support has been brilliant”: experiences of Aboriginal and Torres Strait Islander patients attending two high performing cancer services

Taylor

Lyford

Holloway

et al. 2021

BMC Health Serv Res

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“…After removing duplicate studies, the titles and abstracts of 543 studies were screened, with 59 studies identified for full-text screening. Twenty-three qualitative studies [ 18 , 19 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 ] were included in the review after excluding quantitative studies ( n = 16), studies using the same dataset with different aims ( n = 3), studies not focused on Indigenous people’s experience with cancer ( n = 7), and studies not focused on Indigenous people with cancer ( n = 10).…”

Section: Resultsmentioning

confidence: 99%

“…At least 145 participants (60%) were from regional/rural or disadvantaged areas. Ten studies had the same participants who shared their experiences in different healthcare service areas living in Northern Territory ( n = 3) [ 24 , 25 , 26 ], New South Wales ( n = 2) [ 29 , 38 ], and Western Australia ( n = 5) [ 33 , 34 , 35 , 36 , 39 ]. Most of the studies ( n = 21) conducted state-wide research; only two were conducted at the national level [ 21 , 41 ].…”

Section: Resultsmentioning

confidence: 99%

Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review

Sanjida

Garvey

Ward

et al. 2022

IJERPH

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To provide the latest evidence for future research and practice, this study critically reviewed Indigenous peoples’ cancer care experiences in the Australian healthcare system from the patient’s point of view. After searching PubMed, CINAHL and Scopus databases, twenty-three qualitative studies were included in this review. The inductive approach was used for analysing qualitative data on cancer care experience in primary, tertiary and transitional care between systems. Three main themes were found in healthcare services from Indigenous cancer care experiences: communication, cultural safety, and access to services. Communication was an important theme for all healthcare systems, including language and literacy, understanding of cancer care pathways and hospital environment, and lack of information. Cultural safety was related to trust in the system, privacy, and racism. Access to health services was the main concern in transitional care between healthcare systems. While some challenges will need long-term and collective efforts, such as institutional racism as a downstream effect of colonisation, cultural training for healthcare providers and increasing the volume of the Indigenous workforce, such as Indigenous Liaison Officers or Indigenous Care Coordinators, could effectively address this inequity issue for Indigenous people with cancer in Australia in a timely manner.

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“…Providing cancer treatment services that meet the needs of Indigenous patients is a critical element in improving outcomes 23,24 . While evidence suggests that many mainstream cancer treatment centres and support services are currently failing to provide accessible, culturally appropriate cancer care to Indigenous Australians, 20,23,25–27 reports are starting to emerge of cancer services that are providing innovative services to engage Indigenous patients and their families 28–30 . However, there has been limited formal evaluation of such initiatives or the extent to which they occur in cancer services around Australia.…”

mentioning

confidence: 99%

Australian cancer services: a survey of providers’ efforts to meet the needs of Indigenous patients

Taylor

Haigh

Shahid

et al. 2018

Australian and New Zealand Journal of Public Health

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Objective: To examine where Indigenous Australians undergo cancer treatment and learn about specific service initiatives that have been implemented to meet their needs. Methods:Public cancer treatment centres across Australia were invited to participate in an online survey about various characteristics of their centre, including the type of service provided, Indigenous patient numbers and policy, and implementation of Indigenous-specific initiatives.Results: Surveys were completed for 58 of 125 public cancer treatment centres. Almost half (47%) of the services saw more than 10 Indigenous patients per year, although Indigenous patients generally represented a small minority of patients. The most commonly reported initiatives were "having links with Indigenous health organisations in the community" (74% of services), "making a dedicated effort to address the needs of Indigenous patients" (69%) and proactively "creating partnerships with Indigenous communities and health organisations" (69%). Conclusions:The majority of respondents indicated that they were working to meet the needs of Indigenous patients and were interested in learning strategies from others to improve their services. More work is needed to describe and evaluate the specific initiatives that have been implemented.Implications for public health: Information from this study can assist cancer service providers to identify gaps in current services, plan new service delivery initiatives and ultimately improve Indigenous cancer outcomes.

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Diagnosis and Treatment for Vulvar Cancer for Indigenous Women From East Arnhem Land, Northern Territory: Bioethical Reflections

Cited by 7 publications

References 29 publications

“The support has been brilliant”: experiences of Aboriginal and Torres Strait Islander patients attending two high performing cancer services

“The support has been brilliant”: experiences of Aboriginal and Torres Strait Islander patients attending two high performing cancer services

Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review

Australian cancer services: a survey of providers’ efforts to meet the needs of Indigenous patients

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