Diagnosis in developmental disability: a perennial challenge, and a proposed middle ground

Rosenbaum, Peter

doi:10.1111/dmcn.14216

Cited by 7 publications

(4 citation statements)

References 2 publications

(3 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…We expended considerable effort on diagnostic assessments, believing that "treatment" in early-onset developmental impairments such as cerebral palsy (CP), autism spectrum disorder (ASD), intellectual disabilities (ID), etc. needed to be diagnosis-specific (when in reality that is rarely true) [3]. The corollary of the hunt for a specific diagnosis was that interventions needed to be-and were-directed at improving the impairments in "body structure and function" (the biomedical problems underlying "disability"), with the assumption that children's capacities would improve as treatments "worked".…”

Section: Introductionmentioning

confidence: 99%

Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability

Rosenbaum

Silva

Camden

2020

Disability and Rehabilitation

Self Cite

View full text Add to dashboard Cite

Section: Introductionmentioning

confidence: 99%

Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability

Rosenbaum

Silva

Camden

2020

Disability and Rehabilitation

Self Cite

View full text Add to dashboard Cite

“…An underlying assumption was that the reallife experiences these children would otherwise have in their families lacked the quality or quantity needed to support their development. The way we view childhood disability has changed dramatically in the last two decades [3][4][5][6]. Depending on local political and societal efforts to discontinue the institutionalization of children with disabilities, many developed countries have now fully or almost fully transitioned to family-based alternatives, with children with impairments living with their nuclear or extended family [2,7].…”

Section: Childhood Developmental Disability: Then and Nowmentioning

confidence: 99%

Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities

Novak-Pavlic,

Rosenbaum,

Di Rezze

2023

IJERPH

Self Cite

View full text Add to dashboard Cite

Family-centred service (FCS) acknowledges the importance of family engagement in therapeutic processes and focuses on the needs of all family members. This way of thinking and practicing is becoming increasingly recognized as an optimal care delivery model for families of children with developmental disabilities (DDs). However, in most places, disability services are oftentimes ‘child-centric’, wherein family members are seen only as partners in therapy or care delivery, while their own needs are not addressed. This arises from the lack of awareness of complex and highly individual family needs by professionals with whom they interact, but also from a significant lack of service infrastructure oriented towards parent-specific needs in existing service delivery models. This concept paper highlights the known challenges associated with parenting a child with a DD and discusses the intersectionality of factors impacting parental health and well-being, with a goal of promoting more equitable, holistic, and inclusive healthcare for all family members of children with DDs.

show abstract

“…balance difficulties riding a bicycle). 16,17 A focus on functional outcomes is supported by findings that a child's functional characteristics, such as their ability to perform motor skills, better explain a child's support needs than diagnosis. 18,19 There is therefore a compelling argument for considering interventions from the perspective of the desired outcome, to improve motor function, rather than the diagnosis of the child.…”

mentioning

confidence: 99%

“…DCD) but rather on the functional disability, or the interaction between the health condition and the context (e.g. balance difficulties riding a bicycle) . A focus on functional outcomes is supported by findings that a child’s functional characteristics, such as their ability to perform motor skills, better explain a child’s support needs than diagnosis .…”

mentioning

confidence: 99%

Movement‐based interventions for preschool‐age children with, or at risk of, motor impairment: a systematic review

Cameron

Albesher

McGinley

et al. 2019

Develop Med Child Neuro

View full text Add to dashboard Cite

Aim To explore the efficacy of movement‐based interventions to improve motor skills in preschool‐age children with, or at risk of, motor impairment, including those with a diagnosis of cerebral palsy, autism spectrum disorder, and developmental coordination disorder. Method Relevant electronic databases were searched for randomized or quasi‐randomized controlled trials. Outcomes were classified using domains of the International Classification of Functioning, Disability and Health: Children & Youth version. Quality was assessed using the Physiotherapy Evidence Database scale. Risk of bias was assessed using the Cochrane Risk of Bias tool. Effect sizes were calculated using Cohen’s d. Results Seventeen articles exploring a heterogeneity of intervention types, population groups, and outcome measures met the inclusion criteria. Movement‐based interventions did not significantly improve outcomes in either the body structure and function or activity domains in most studies. No studies used a participation outcome measure. Interpretation There is a paucity of evidence exploring movement‐based interventions in the preschool‐age group. Although movement‐based interventions showed potential for improving body structure and function and activity outcomes for children with motor impairment, results were mostly not significant. Small sample sizes, variable study quality, and risk of bias limit confidence in the results. What this paper adds The evidence is inconclusive to support movement‐based interventions in this group. No studies used outcome measures assessing participation. Variability in intervention type and study quality limit confidence in results.

show abstract

Diagnosis in developmental disability: a perennial challenge, and a proposed middle ground

Cited by 7 publications

References 2 publications

Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability

Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability

Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities

Movement‐based interventions for preschool‐age children with, or at risk of, motor impairment: a systematic review

Contact Info

Product

Resources

About