2020
DOI: 10.1002/nop2.562
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Diary for self‐observation: A self‐management tool for recipients of lung transplantation—A pilot study

Abstract: The recovery process after lung transplantation is very demanding and challenging in different ways. The patients need to re-learn their new body physically and mentally. Physically the patients must be aware of the signs, reactions and physical capacity of the body. Mentally the patients must face a new mindset. The guidelines for life after lung transplantation are complex and comprehensive; however, assistance in self-monitoring and self-management is useful (DeVito et al., 2016). Particularly, self-managem… Show more

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Cited by 3 publications
(5 citation statements)
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“…Additionally, LTRs displayed optimism and anticipation regarding the steady improvement in lung function (Ågren et al,. 2017; Evald et al, 2020). LTRs felt as though they had been given a second chance at life, which filled them with a profound sense of gratitude and appreciation for their newfound health.…”
Section: Resultsmentioning
confidence: 99%
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“…Additionally, LTRs displayed optimism and anticipation regarding the steady improvement in lung function (Ågren et al,. 2017; Evald et al, 2020). LTRs felt as though they had been given a second chance at life, which filled them with a profound sense of gratitude and appreciation for their newfound health.…”
Section: Resultsmentioning
confidence: 99%
“…Moreover, LTRs reported that they had to adapt their daily lives and occupational routines to their physical restraints (e.g., reducing physical activity, using oxygen, and disrupting social relationships), learn to walk and breathe again, change habits (e.g., shopping when there are fewer people, avoiding crowded places), and comply with training programs, medications, hygiene rules, and dietary restrictions (Lundmark, Erlandsson, et al, 2016). A study utilized diaries as a tool to improve self-monitoring in LTRs, who needed to detect early signs of infection or rejection of the transplanted organ, such as dyspnea, coughing, fever, and fatigue (Evald et al, 2020). In addition, several studies used mobile health technology to improve self-management and compliance with medical regimens for LTRs.…”
Section: Resultsmentioning
confidence: 99%
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“…Diaries offer unique data collection opportunities for self-management both for research and clinical practice. Diaries are great tools for collecting data for research (Evald et al, 2020; Furness & Garrud, 2010; Hertzog et al, 2021), providing narrative everyday life events as a reflection tool or as a primary data collection tool with the purpose of analyzing data into meaningful categories (e.g., information about daily routine). Diaries can be used in clinical decision support (Van Woensel et al, 2015) and can also improve patients’ adherence (Shim & Hwang, 2016) and enhance self-efficacy (van Kruijssen et al, 2015).…”
Section: Introductionmentioning
confidence: 99%
“…The main use of diaries for self-management research is related to using them in self-management intervention. In symptom and behavioral change interventional studies, diaries are widely used as a tool to help participants track their symptoms and self-management (Evald et al, 2020). In cancer research, for example, diaries are often used to track symptoms such as pain (Baggott et al, 2012; Yamanaka & Suzuki, 2020).…”
Section: Introductionmentioning
confidence: 99%