Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

Pretorius, Chrisma

doi:10.17159/2224-7912/2016/v56n3a6

Cited by 2 publications

(2 citation statements)

References 22 publications

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“…The use and effectiveness of social media in supporting persons with disease and their caregivers are mentioned relatively frequently in the literature [ 14 , 15 ]. With more common diseases, such as cancer or arthritis, the discussion support groups are used by the persons with disease themselves [ 30 ]. However, with older adults’ diseases, the discussion groups serve rather as a support for the caregivers and family members [ 30 , 31 ].…”

Section: Introductionmentioning

confidence: 99%

“…With more common diseases, such as cancer or arthritis, the discussion support groups are used by the persons with disease themselves [ 30 ]. However, with older adults’ diseases, the discussion groups serve rather as a support for the caregivers and family members [ 30 , 31 ]. While in general, the health content on social media is rather impersonal and related to marketing [ 32 ], the private discussions on Facebook are more suitable for delivering support to the caregivers of PADs [ 24 , 26 ].…”

Section: Introductionmentioning

confidence: 99%

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Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups

Bachmann

Hruška

2022

IJERPH

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Background and study goal: Social media are a societal phenomenon today, including the oldest generation, yet they are seldom used in current health research to identify the needs of persons with Alzheimer’s disease (PADs) and their carers. There is an even bigger research gap in the analysis of caregivers’ communication in online support groups and its classification according to activities of daily living (ADLs). For this, the goal of this study is to identify real-life practices of informal caregivers who care for PADs based on the analysis of their communication in Facebook groups. Methods: A sample of 1603 contributions was obtained from support groups by keyword search, manual coding, and verification; thus, the contributions in the sample are relevant for the individual basic ADLs of PADs. Next, five main conversation topics were identified for each ADL. This was done using the topic extractor based on simple parallel threaded implementation of LDA with a sparse sampling scheme and data structure. Results: The qualitative dimension of research identified discussion topics as well as specific caregiver behavior patterns for each ADL. The quantitative dimension determining the level of engagement of group members in individual ADLs was also measured. The highest engagement was found in activities of feeding and drinking, followed by bathing. In contrast, the activities of dressing, continence, and toileting attract the lowest interest. Moreover, the causal links between the topics discussed within the areas of ADLs were identified. Conclusions: The acquired knowledge can help further research focus on the most problematic areas relevant for people with AD in order to increase their quality of life and at the same time reduce the caregiver burden. The study expands the information of the demands posed by the individual caregiver activities, specifically in the context of activity-based costing or time-based activity costing.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups

Bachmann

Hruška

2022

IJERPH

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Caregivers’ Experience of Caring for a Family Member with Alzheimer’s Disease: A Content Analysis of Longitudinal Social Media Communication

Bachmann

2020

IJERPH

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Background: The population aging together with an increased incidence of Alzheimer’s disease (AD) should also be accompanied by a growing interest in healthcare research. Therefore, this study examines the nature of the caregiver’s work, its mental and physical demands, experience and questions, and the relationship between the person with AD, the caregiver, and family members. Methods: As social media has become the place where people share family situations, a Facebook private discussion group of caregivers was chosen as the analytical data source. The study documented the daily-life situations of one-hundred dyads based on 2110 posts published during a six-month or longer period. A content analysis classified communication into 35 categories of basic, instrumental, and extended activities of daily livings (ADLs) and newly designed caregiver’s daily issues (CDIs). Results: The frequently discussed topics were related to exhaustion and feelings of “giving up” by caregivers and interpersonal communication and help from family members. The highest support was found for the topics of aging and dying and family events. Conclusion: The communications of caregivers were diverse and rather associated with co-occupational ADLs and CDIs than basic or instrumental ADLs. The support of the group was mainly provided in coping with fundamental life changes.

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Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

Cited by 2 publications

References 22 publications

Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups

Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups

Caregivers’ Experience of Caring for a Family Member with Alzheimer’s Disease: A Content Analysis of Longitudinal Social Media Communication

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