Die ICF und ihre Relevanz für die Kinder- und Jugendpsychiatrie

Vries

et al. 2018

Autism

Self Cite

115

111

Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (⩾17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings.

Section: Introductionmentioning

confidence: 99%

The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets

Bölte

Vries

et al. 2018

Autism

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115

111

“…The ICF-CY includes all ICF categories, plus additional ones specific to children and youth, making up 1685 categories in total (531 body functions, 329 body structures, 552 activities and participation categories, and 273 environmental factors) (WHO 2007 ). By providing a standard language for describing health and health-related states, the ICF-CY enables users to record useful profiles of individuals’ functioning across the lifespan for various purposes, ranging from diagnostic and treatment purposes (Bölte 2009 ; Escorpizo et al 2013 ) to policy-making and raising public awareness of conditions (WHO 2007 ). However, using all categories from the ICF-CY to describe a specific health condition is unlikely to be meaningful, given that it will be time-consuming and often essentially undoable in clinical practice, as many categories would be irrelevant to specific conditions.…”

Section: Introductionmentioning

confidence: 99%

An International Clinical Study of Ability and Disability in Autism Spectrum Disorder Using the WHO-ICF Framework

Albertowski

Almodayfer³

et al. 2018

J Autism Dev Disord

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This is the fourth international preparatory study designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF-CY) Core Sets for Autism Spectrum Disorder (ASD). Examine functioning of individuals diagnosed with ASD as documented by the ICF-CY in a variety of clinical settings. A cross-sectional study was conducted, involving 11 units from 10 countries. Clinical investigators assessed functioning of 122 individuals with ASD using the ICF-CY checklist. In total, 139 ICF-CY categories were identified: 64 activities and participation, 40 body functions and 35 environmental factors. The study results reinforce the heterogeneity of ASD, as evidenced by the many functional and contextual domains impacting on ASD from a clinical perspective.Electronic supplementary materialThe online version of this article (10.1007/s10803-018-3482-4) contains supplementary material, which is available to authorized users.

“…The ICF(-CY), which includes all ICF categories plus additional ones for youth, consists of 1685 categories (Body functions, k = 531; Body structures, k = 329; Activities and participation, k = 552; and Environmental factors, k = 273). They serve to fine-map functioning and disability in all health conditions in research, clinical and healthcare administration settings for diagnostic, treatment, documentation and reimbursement purposes [ 19 , 20 ]. However, even though the comprehensiveness of the ICF(-CY) is an advantage, to use all its categories to describe a specific health condition is both unnecessary and impractical, as many categories may be irrelevant to specific disorders.…”

Section: Introductionmentioning

confidence: 99%

An international qualitative study of ability and disability in ADHD using the WHO-ICF framework

Eur Child Adolesc Psychiatry

Viljoen

Massuti

et al. 2017

Self Cite

This is the third in a series of four cross-cultural empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF(-CY) Core Sets for Attention-Deficit Hyperactivity Disorder (ADHD). To explore the perspectives of individuals diagnosed with ADHD, self-advocates, immediate family members and professional caregivers on relevant areas of impairment and functional abilities typical for ADHD across the lifespan as operationalized by the ICF(-CY). A qualitative study using focus group discussions or semi-structured interviews of 76 participants, divided into 16 stakeholder groups. Participants from five countries (Brazil, India, Saudi Arabia, South Africa and Sweden) were included. A deductive qualitative content analysis was conducted to extract meaningful functioning and disability concepts from verbatim material. Extracted concepts were then linked to ICF(-CY) categories by independent researchers using a standardized linking procedure. In total, 82 ICF(-CY) categories were identified, of which 32 were related to activities and participation, 25 to environmental factors, 23 to body functions and 2 to body structures. Participants also provided opinions on experienced positive sides to ADHD. A high level of energy and drive, creativity, hyper-focus, agreeableness, empathy, and willingness to assist others were the most consistently reported strengths associated with ADHD. Stakeholder perspectives highlighted the need to appraise ADHD in a broader context, extending beyond diagnostic criteria into many areas of ability and disability as well as environmental facilitators and barriers. This qualitative study, along with three other studies (comprehensive scoping review, expert survey and clinical study), will provide the scientific basis to define ICF(-CY) Core Sets for ADHD, from which assessment tools can be derived for use in clinical and research setting, as well as in health care administration.Electronic supplementary materialThe online version of this article (doi:10.1007/s00787-017-0983-1) contains supplementary material, which is available to authorized users.