Differences between patient expectations and actual strabismus surgery experience in adults

Ryu, Won Yeol; Sohn, Eun Jung; Ahn, Hee Bae

doi:10.1016/j.jcjo.2014.09.009

Cited by 6 publications

(4 citation statements)

References 14 publications

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“…The Disability Questionnaire, the Repertory Grid, the Psychosocial Experience Questionnaire, Psychosocial Effects of Strabismus Questionnaire, the Exotropia Symptom Questionnaire, Satisfaction of Surgical Outcome, the adapted Visual Analog Scale and the modified RAND Health Insurance Questionnaire, were developed to mainly assess the improvement in psychosocial well‐being post‐strabismus surgery. The Expectations of Strabismus Surgery Questionnaire, the Perspectives Questionnaire and the Post‐surgery Symptom Questionnaire measure the patient's expectations about post‐operative symptoms and concerns about treatment outcome. The Effect of Diplopia Questionnaire is the only diplopia‐specific instrument and measures the impact of post‐operative diplopia on daily life.…”

Section: Resultsmentioning

confidence: 99%

Patient‐reported outcome measures in amblyopia and strabismus: a systematic review

Kumaran

Khadka

Baker

et al. 2018

Clinical and Experimental Optometry

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Background: Many patient-reported outcome measures (PROMs) have been developed and/or used to measure the impact of amblyopia and strabismus on quality of life (QoL). Identifying the one with superior quality is important for evaluating the effectiveness of novel therapy for amblyopia and for directing improved clinical decision-making in adults considering strabismic surgery. Therefore, the aim of this review is to identify all PROMs previously developed/used to study the impact of amblyopia and/or strabismus on QoL and to appraise the quality and comprehensiveness of content of the disease-specific instruments. Methods: A systematic search was carried out in the electronic databases of PubMed, Cochrane, Web of Science and PsycINFO. The quality of content and measurement properties of all the disease-specific instruments were assessed using established quality standards. Further, the content of the instruments were examined for comprehensiveness by categorising each item across the eight ophthalmic QoL domains (activity limitation, concerns, emotional well-being, social well-being, economic, convenience, symptoms and mobility). Results: Seventy-one PROMs were identified, out of which 32 were amblyopia-and/or strabismus-specific. Out of all the disease-specific instruments, just four have been subjected to modern psychometric tests and only the adult strabismus questionnaire demonstrated good measurement properties. Most of the amblyopia-specific instruments measured the impact of the treatment of amblyopia on children, while most of the strabismus-specific instruments measured concerns related to appearance and treatment outcome in adults. All instruments have gaps in their content and failed to address QoL comprehensively. Conclusion: All the existing amblyopia-and/or strabismus-specific instruments fall short of desired quality and/or comprehensiveness of content. The review identifies the need for developing an instrument with superior quality and discusses potential directions of future research.Key words: amblyopia, patient reported outcome, quality assessment, quality of life, questionnaire, strabismus Amblyopia and strabismus are common developmental conditions of childhood and are known to cause functional deficits like impaired stereoscopic depth perception and defective sensory, motor, visual cognition and prehension skills.1-3 These functional deficits manifest in the individual as imprecise or inefficient performance of real-life activities like reading, grasping and driving and affect quality of life (QoL). 4,5 Apart from the implications of these functional deficits, socially noticeable strabismus also affects the psychosocial and emotional well-being of individuals. [6][7][8][9][10] Analysis of the cost-effectiveness of screening for amblyopia and its utility are limited by the lack of evidence about the long-term impact, the degree of disability and the impact of amblyopia on QoL. 11-13Incorporating patient-reported outcome measures (PROMs) as one of the treatment outcomes is considered importa...

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Section: Resultsmentioning

confidence: 99%

Patient‐reported outcome measures in amblyopia and strabismus: a systematic review

Kumaran

Khadka

Baker

et al. 2018

Clinical and Experimental Optometry

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“…Most of these studies, not in the field of ophthalmology, have focused on patients’ understandings and experiences and how these might influence recruitment, retention and adherence to the investigated intervention [ 31 – 34 ]. Ophthalmology patient satisfaction studies have mainly been in the areas of cataract and refractive surgeries [ 8 – 11 ], as well as in for oculoplastics and glaucoma surgeries [ 12 , 35 ]. Our study provides insight into patient experiences and satisfaction in clinical trials in the context of translational retinal research.…”

Section: Discussionmentioning

confidence: 99%

“…Moreover, an individual’s satisfaction has been found to affect health-related decisions and treatment related behaviors, which in turn affect medical compliance, follow-up, the success of treatment and the appropriate use of service [ 4 – 7 ]. Previous surveys suggest that patients positively view their experience of ophthalmology clinics [ 8 – 12 ]. Patient satisfaction has been linked to participation in decision-making, clinicians’ communicative behavior, treatment outcome and patients’ expectations regarding psychosocial support as well as therapeutic listening [ 13 – 20 ].…”

Section: Introductionmentioning

confidence: 99%

Patient experiences in retinal trials: a cross-sectional study

Fardell

Williams

et al. 2015

BMC Ophthalmol

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BackgroundPatient-centered care recognizes the obligation to understand and meet patient’s expectations. An individual’s satisfaction has been found to affect health-related decisions and treatment-related behaviours, which in turn affect medical compliance, follow-up, the success of treatment and the appropriate use of services. We studied the expectations, experiences and satisfaction of patients who participated in clinical trials for retinal diseases at the Sydney Eye Hospital.MethodsThe study was undertaken at the research clinic of the major public quaternary eye hospital in New South Wales, Australia. A 37-question survey was conducted on patients enrolled in or who had finished a clinical trial for macular disease in the 12 months preceding this study in November 2012. Patient satisfaction was assessed using close-ended, multiple choice questions. First, the decision making process for entering into the clinical trial was evaluated. Then the level of patient understanding and experience during the study was assessed. Finally, there was a series of questions to gauge the participants’ perception of trial outcomes and overall impression gained from the experience.ResultsEighty patients completed the questionnaire. Overall patient satisfaction was high with the majority of patients stating they would recommend participation in a retinal clinical trial (94 %) and participate in a subsequent trial (78 %). Most patients rated themselves as the most important factor in making the decision to join a trial. Patients felt well informed and expectations were generally felt to be met, however 14 % did not believe that they could withdraw from the study voluntarily. The most common reasons for trial participation were to contribute to medical science and to have improved treatment outcomes.ConclusionsWe found that patients generally found participation in retinal clinical trials to be a positive experience. Factors contributing to dissatisfaction mainly related to inconvenience experienced by transportation and waiting times. We also found that patients felt well informed about the study, but some did not have a complete understanding of their rights, which had been communicated to them when they entered the study. There were both altruistic and self-motivated reasons behind patients’ decisions to join a retinal trial.Electronic supplementary materialThe online version of this article (doi:10.1186/s12886-015-0071-6) contains supplementary material, which is available to authorized users.

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“…Although strabismus surgery can be conducted under local anaesthesia combined with sedation,[ 5 ] strabismus surgery is more painful than other types of ophthalmic surgery like cataract surgery and blepharoplasty,[ 6 ] and an inadequate level of sedation may result in increased risk of globe perforation due to involuntary head movement. Instead, the surgery is routinely performed under general anaesthesia at our centre because general anaesthesia can provide adequate analgesia and sedation with the development of short-acting anaesthetics and the use of laryngeal mask airway (LMA) to ensure adequate ventilation.…”

Section: Introductionmentioning

confidence: 99%

Retrospective analysis of risk factors of postoperative nausea and vomiting in patients undergoing ambulatory strabismus surgery via general anaesthesia

Shen

et al. 2020

Indian J Anaesth

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Differences between patient expectations and actual strabismus surgery experience in adults

Cited by 6 publications

References 14 publications

Patient‐reported outcome measures in amblyopia and strabismus: a systematic review

Patient‐reported outcome measures in amblyopia and strabismus: a systematic review

Patient experiences in retinal trials: a cross-sectional study

Retrospective analysis of risk factors of postoperative nausea and vomiting in patients undergoing ambulatory strabismus surgery via general anaesthesia

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