Differences in empowerment and quality of life among parents of children with food allergy

Warren, Christopher; Gupta, Ruchi S.; Sohn, Min-Woong; Oh, Elissa; Lal, Namit; Garfield, Craig F.; Caruso, Deanna; Wang, Xiaobin; Pongracic, Jacqueline A.

doi:10.1016/j.anai.2014.10.025

Cited by 81 publications

(77 citation statements)

References 41 publications

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“…The parental burden can be significantly increased due to allergen exposure outside of the home or away from the parents, for example with social activities involving foods, restaurants visits and vacations (Warren et al . ). In line with this, most cases of food‐induced anaphylaxis occur outside the home (Bock et al .…”

Section: Discussionmentioning

confidence: 97%

“…The previous finding that mothers reported greater empowerment but reduced quality of life compared with fathers (Warren et al . ) could be because mothers are typically the primary caretakers in the family (van der Velde et al . , Howe et al .…”

Section: Discussionmentioning

confidence: 99%

“…Interestingly, Warren et al . () found that although both (married) parents reported high levels of empowerment related to their child's food allergy, they also reported reduced quality of life due to food allergy. In another study, mothers reported higher impact on quality of life and more anxiety and stress than fathers did (King et al .…”

Section: Discussionmentioning

confidence: 99%

“…), and another in which mothers reported reduced quality of life but greater empowerment compared to fathers (Warren et al . ).…”

Section: Introductionmentioning

confidence: 97%

See 3 more Smart Citations

Peanut allergy as a family project: social relations and transitions in adolescence

Stensgaard

Bindslev‐Jensen

Nielsen

2017

Journal of Clinical Nursing

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Section: Discussionmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“…), and another in which mothers reported reduced quality of life but greater empowerment compared to fathers (Warren et al . ).…”

Section: Introductionmentioning

confidence: 97%

See 2 more Smart Citations

Peanut allergy as a family project: social relations and transitions in adolescence

Stensgaard

Bindslev‐Jensen

Nielsen

2017

Journal of Clinical Nursing

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show abstract

“…Although it is a different disease, the families of children with food allergies also have to follow the child's diet therapy, for example, eliminating eggs or nuts. It was reported that mothers of children with food allergies have anxiety about eating out, and this anxiety was affected by the diet therapy (Tatematsu and Ichie 2008), and mothers had lower QoL than did fathers (Warren et al 2015). Researchers pointed out that the parental burden borne by mothers affected their parenting behavior (Ogata and Miyashita 2003).…”

Section: Infant Stagementioning

confidence: 99%

Difficulties in Daily Life and Associated Factors, and QoL of Children with Inherited Metabolic Disease and Their Parents in Japan: A Literature Review

2016

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To assess the quality of life (QoL) of children in Japan with inborn errors of metabolism (IEM) as well as of their parents, we reviewed 23 previous studies published in Japanese and 1 published in English, focusing on the difficulties they encounter in daily life, the factors associated with these difficulties, and their QoL. We divided the difficulties and associated factors into three developmental stages. At the infant stage, individuals with IEM tend to be at high risk of hypercatabolism. Their parents suffered anxiety and distress because of the child's diet therapy and regarded the parents' support group as an essential presence, particularly given that IEM is a rare disease. At the school-age stage, as their sphere of social relationships expanded, children with IEM became nervous about being compared with healthy children of their own age because of their diet therapy. At the adolescence-to-adulthood stage, the children suffered medically, economically, and socially. Even in the absence of any IEM symptoms, the children's QoL was affected by the demands associated with the metabolic disorder, such as diet and treatment. The psychological health of their caregivers was also poor. To improve the QoL of children with IEM and of their parents, future comprehensive quantitative and qualitative studies of their QoL and of their subjective support needs are required. Additionally, the specific factors related to the QoL of such individuals need to be explored in large population-based statistical studies.

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Successful introduction of milk after a negative double‐blind placebo‐controlled food challenge test is independent of the total dose and milk product used during the challenge test

Ven

Herpertz

Lente

et al. 2020

Immunity Inflam & Disease

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Background: Failure of milk introduction after a negative food challenge test is reported in a substantial number of patients. For this reason, guidelines recommend that the total dose of milk protein for a food challenge test should be comparable to a normal serving. Objective: Our aim is to compare the success rate of milk introduction after a negative double-blind placebo-controlled challenge test performed with different doses of milk protein and different milk products. Methods: We conducted a retrospective chart review of 485 patients challenged with a low or high dose of milk protein. Pasteurized milk and milk protein powder were used for the low-dose challenge tests, and condensed milk for the high-dose challenge tests. Successful introduction was defined as regular milk consumption, and discontinuation of further introduction due to the reappearance of symptoms as unsuccessful introduction. We also evaluated the association between milk products and successful introduction. Results: The outcome of 288 (59.4%) double-blind placebo-controlled food challenge tests was negative. There were no significant differences between the low and high dose of milk protein in patient characteristics, percentage of patients lost to follow-up (15% vs 20%), in whom introduction had not yet been performed (4% vs 3.1%), reappearance of symptoms (18% vs 17%), and successful introduction (88.0% and 83.4%). Age, gender, specific immunoglobulin E for milk, dose of milk protein, and atopy were not associated with successful introduction. Children who experienced symptoms during the introduction were less likely to consume milk (P < .001). There was a nonsignificant trend toward higher successful introduction rate if pasteurized milk was used as test material compared to milk protein powder, and condensed milk.

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Differences in empowerment and quality of life among parents of children with food allergy

Cited by 81 publications

References 41 publications

Peanut allergy as a family project: social relations and transitions in adolescence

Peanut allergy as a family project: social relations and transitions in adolescence

Difficulties in Daily Life and Associated Factors, and QoL of Children with Inherited Metabolic Disease and Their Parents in Japan: A Literature Review

Successful introduction of milk after a negative double‐blind placebo‐controlled food challenge test is independent of the total dose and milk product used during the challenge test

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