Differences in impact of long term caregiving for mentally ill older adults on the daily life of informal caregivers: a qualitative study

Zegwaard, Marian I; Aartsen, Marja; Grypdonck, Mieke; Cuijpers, Pim

doi:10.1186/1471-244x-13-103

Cited by 29 publications

(34 citation statements)

References 31 publications

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“…However, the reader should note that the same methodological pattern, of having a wide or narrow inclusion of caregivers, appears. But unlike the other studies under this key idea, Zegwaard et al (2013) has a wider definition of caregiver, including not just those giving care to partners, parents, and in-laws but also those caring for other relatives and friends. Unfortunately, there is no analysis made of what type of relationship occurs among the two types of caregivers that they discuss.…”

Section: The Key Idea Of Cognitive Impairmentmentioning

confidence: 99%

“…Therefore, it might be that those who perceived caregiving as a voluntary act were caregivers to other relatives and friends while those who perceived caregiving as an unavoidable obligation were caregivers to partners and parents. Yet, because Zegwaard et al (2013) do not specify the caregiving relationship, we cannot be sure. Betts Adams (2006) 66 has also conducted a qualitative study carried out in America, with a narrow inclusion of caregivers, namely spouses and daughters.…”

Section: The Key Idea Of Cognitive Impairmentmentioning

confidence: 99%

“…Mayor et al 2009, Habermann et al 2013 argue that most of the studies focusing on caregiving to elderly people with cognitive impairments do have a negative point of departure, for example, focusing on the experience of burden and stress (e.g. Massimo et al 2013, Zegwaard et al 2013. Some studies instead focus on the positive experiences of caring for an elderly person with cognitive impairments.…”

Section: Juxtaposing Findings In Relation To Four Key Ideasmentioning

confidence: 99%

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Men do care! : A gender-aware and masculinity-informed contribution to caregiving scholarship

Wallroth

2016

Linköping Studies in Arts and Sciences

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In caregiving literature, it is often the female gender that has been the focus of attention, and in particular women's unpaid labor. Studies also tend to make comparisons between men's and women's caregiving, using men's caregiving experiences to show not only that women face greater burdens, but also that men's needs can be disregarded. This means that while gender analyses are not uncommon in the caregiving literature, gender tends to be equated with womanhood. The research problem that this dissertation addresses is therefore the gender bias that characterizes caregiving scholarship at present and the fact that this bias is impeding us from moving the debates on care and caregiving forward. The aim of the dissertation is twofold. Firstly, it attempts to contribute to the rectification of the gender bias in question by focusing on men's caregiving and answering the following research questions: What motivates men to provide care for their elderly parents? How do adult sons experience caregiving? What do adult sons think that care and caregiving are, i.e. what are their perspectives on care? Secondly, this dissertation also aims to explore whether a gender-aware and masculinity-informed perspective can be used to enhance our understanding of caregiving. Thus, through a phenomenological analysis of interviews with 19 caregiving adult sons and sons-in-law, this dissertation discusses how motives, experiences and perspectives, which have so far been interpreted as unique to women, are also matters that men talk about and consider important in caregiving. The dissertation argues therefore that much could be gained if we were to rectify the gender bias that characterizes the literature on family caregiving and explore caregiving men in the genderaware and masculinity-informed way that is lacking in this literature at present. Inspired by the debate within studies of masculinity, the dissertation argues that within the debate on care there is a hegemony of care which has so far tended to exclude men's perspectives on caregiving because literature on family caregiving has regarded women as the ideal caregivers. This dissertation shows that a gender-aware and masculinity-informed perspective on care can increase our understanding of family caregiving and contribute to the rectification of the gender bias that care research suffers from. Against this backdrop, it is proposed that caregiving men should not solely be regarded as empirically interesting. This is because they are an unexploited and theoretically profuse source of information about caregiving.

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Section: The Key Idea Of Cognitive Impairmentmentioning

confidence: 99%

Section: The Key Idea Of Cognitive Impairmentmentioning

confidence: 99%

Section: Juxtaposing Findings In Relation To Four Key Ideasmentioning

confidence: 99%

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Men do care! : A gender-aware and masculinity-informed contribution to caregiving scholarship

Wallroth

2016

Linköping Studies in Arts and Sciences

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“…It can be difficult to stop caregiving because it is tantamount to abandoning the care receiver. The impact of freedom of choice is visible in the quality of the relationship and the next of kin's psychosocial wellbeing [10].…”

Section: Discussionmentioning

confidence: 99%

“…Whether the next of kin feel they have a choice to be caregivers or not, it is relevant if they perceive a burden in providing care or not [10].…”

Section: Introductionmentioning

confidence: 99%

Being a Next of Kin—Experiences of Burden and Quality of Life

Liedström¹,

Kihlgren²,

Skovdahl³

et al. 2014

OJN

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Aim and Objectives: To increase the understanding of next of kin's life situation in the context of supporting persons who are long term ill, disabled and/or older by describing their experienced burden and quality of life and also the relationship between QoL, burden and socioeconomic variables. Methods: Cross-sectional, descriptive and correlative design. Eighty-four next of kin answered two questionnaires: the Caregiver Burden Scale and the Subjective Quality of Life. Results: Next of kin experienced a high burden in their life situation although they, at the same time, experienced a good quality of life. In the results gender differences were found. Females next of kin to a higher extent were disappointed, more emotionally involved, and they also estimated their economic situation as more unsatisfactory than the males next of kin. Conclusion: Healthcare personnel meet next of kin, persons in need of care, within all healthcare and social care in society. Therefore it is important to have a general knowledge and ability to understand the next of kin's life situation, thus making it possible to focus the nursing interventions on individual support regardless of the care receiver's diagnosis.

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Transition to the family caregiver role in Portugal

Antunes

Marques

2017

Porto Biomedical Journal

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Differences in impact of long term caregiving for mentally ill older adults on the daily life of informal caregivers: a qualitative study

Cited by 29 publications

References 31 publications

Men do care! : A gender-aware and masculinity-informed contribution to caregiving scholarship

Men do care! : A gender-aware and masculinity-informed contribution to caregiving scholarship

Being a Next of Kin—Experiences of Burden and Quality of Life

Transition to the family caregiver role in Portugal

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