Different information needs—The major reasons for calling the helpline when invited to colorectal cancer screening

Abstract

Introduction: This study pertains to the design of a decision aid (DA) to shed light on information and support needs in colorectal cancer screening, with the aim to explore the calling patterns to the Screening of Swedish Colons (SCREESCO) study's helpline.Methods: A cross-sectional study was conducted with data from documented telephone calls to the SCREESCO study, including individuals, 59-60 years, randomized to colonoscopy or high sensitive faecal immunochemical test (FIT).Results: More than 2000 calls (women 58.5%; colonoscopy 59%) were analysed.Calling patterns: unsubscribing from screening, confirmation of participation, logistical concerns about the screening procedure, counselling, and FIT screening difficulties or in need of a new FIT test. Comorbidity was the most frequent reason for unsubscribing and most of the counselling calls included questions about the FIT test or the colonoscopy. Conclusion:Most of the calls to the helpline seemed to be related to individuals' lack of understanding about the organization of the screening programme and the screening procedure. Therefore, we find it important to further stress the tailoring part in our DA developing process, that is, provide limited information initially, with the possibility of access to more, if desired by the individual, still with respect to the individual's needs, health and digital literacy.

Making the BEST decision-the BESTa project development, implementation and evaluation of a digital Decision Aid in Swedish cancer screening programmes- a description of a research project

“…The summative approach aims at identifying and quantifying words or context in the data to explore the usage. We have previously applied a similar approach [ 27 ]. Conventional content analysis is appropriate when the aim is to describe something, here participants views on the iDA in its different stages.…”

“…Unsubscribing or subscribing to screening was the most frequent reason for calling, followed by organisational issues counselling, and faecal test problems. Counselling mainly concerned abnormal faecal test results, including anxiety related to the result, followed by a need to discuss whether or not to participate in the SCREESCO study [ 27 ]. Based on our previous findings and the importance of applying an equity perspective on screening, it is desirable that individuals make an informed decision regarding participation.…”

Challenges and prospects of colorectal cancer screening

“…К причинам низких показателей прохождения программы КРР-скрининга относится низкая осведомленность о скрининге КРР, что показано, например, С. Pelullo et al [31] в исследовании, проведенном в Южной Италии. К. Fritzell et al [32] изучили информацию о необходимости в поддержке для прохождения КРР-скрининга, проанализировав частоту звонков на горячую линию исследования Screening of Swedish Colons (SCREESCO). Большинство звонков на линию помощи было связано с непониманием организации программы и процедуры скрининга [31].…”