Difficulties and facilities of the family to care for children with HIV/Aids

Pacheco, Bruna Peres; Gomes, Giovana Calcagno; Nobre, Camila Magroski Goulart; Aquino, Deise Ribeiro

doi:10.5935/1414-8145.20160052

Cited by 13 publications

(19 citation statements)

References 13 publications

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“…Despite the specialized and necessary care for the treatment, patients may be isolated from their social environment during the period of hospitalization, and thus are at a higher risk of having to disclose their HIV positive diagnosis to health professionals and other patients (17)(18) . A study conducted in southern Brazil with 15 family caregivers of hospitalized children living with HIV identified that in addition to feelings of isolation and abandonment during hospitalization, family members still mentioned the stigma and prejudiced behavior of health professionals, reinforcing the feelings of error and guilt for seropositivity (19) . Thus, during hospitalizations due to HIV complications, in addition to a sense of powerlessness in the face of AIDS, people still face hopelessness and anguish over living with HIV (17) .…”

Section: Discussionmentioning

confidence: 99%

Factors related to the perceived stigmatization of people living with HIV

Caliari¹,

Teles

Reis

et al. 2017

Rev. esc. enferm. USP

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Objective: Analyzing the factors related to perceived stigmatization of people living with HIV. Method: A cross-sectional study conducted from September of 2014 to December 2015 with users from a specialized service in Minas Gerais. Data were collected through individual instrument application, organized in Microsoft Office Excel® 2010 spreadsheets and processed on IBM® SPSS 23.0. Descriptive statistics and multiple linear regression method were used for data analysis, adopting statistical significance set at 5.0% (p≤0.05). The study development met research ethics standards. Results: 258 users participated in the study. Most were males between 40 and 49 years of age, single, with low educational level and income. Being between 40 and 49 years of age and having been hospitalized for complications related to HIV were positively associated predictors to increased stigmatization; while not having comorbidities and not being aware of exposure to HIV were predictors associated to reduced stigmatization. Conclusion: Given these results, we highlight that stigmatization can have an impact on the lives of people living with HIV, strengthening their feelings of guilt and shame, which can lead to depression, social isolation and abandoning treatment and clinical follow-up.

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Section: Discussionmentioning

confidence: 99%

Factors related to the perceived stigmatization of people living with HIV

Caliari¹,

Teles

Reis

et al. 2017

Rev. esc. enferm. USP

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“…Regarding the understanding that the social network approach is associated only with the issues of the child's socioeconomic and environmental context, it is important for nurses to integrate the knowledge of these aspects into their care routine, enabling humanized and individualized care. At the same time, they can provide guidance about available community resources to help the person know how to use them or to acquire them (24)(25) .…”

Section: Discussionmentioning

confidence: 99%

Social network of children with cronic disease: knowledge and practice of nursing

2020

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Objectives:To identify the knowledge and practice of primary care nurses about the social network approach for fa milies of children with chronic diseases. Methods: Qualitative research, conducted by means of interviews with 23 family health nurses, from one municipality in Paraíba and one in Rio de Janeiro, from June to July of 2017. The data were interpreted using thematic analysis. Results: Social network meant institutional support offered by services outside the unit, and socioeconomic problems involved the family context. In practice, nurses find it difficult to provide comprehensive care and establish ties with families. When referring to other professionals, a weakness in the counter-referral to the family health unit is found. Final considerations: Some gaps were found regarding the knowledge and practice of nurses regarding the social network approach, which requires professional training to strengthen social relationships and the necessary support for families of children with chronic diseases.

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“…O fenômeno do adoecimento não é um acontecimento isolado, uma vez que provoca ruptura, tanto da homeostase individual quanto coletiva; acarreta mudanças na dinâmica relacional e exige reorganização emocional frente às vulnerabilidades geradas pela doença. Nesse sentido, e apesar da tendência à cronicidade pelo advento da TARV e da instrumentalização da população por meio da educação em saúde, conviver com o HIV/AIDS ainda desperta, tanto no paciente quanto em sua rede de apoio, representações sociais desarranjadas, tais como doença ruim, perigosa e do "outro"; promiscuidade; condição aparente a terceiros; infidelidade; homossexualidade e uso de álcool e drogas, como também sentimentos negativos: medo da rejeição, da exclusão e da solidão; revolta; desesperança; incertezas; inseguranças; angústia; dor e impotência 2, [13][14]18 ; tais verbalizações coincidem com as que foram expressas nessa pesquisa. O exercício do cuidar pode exigir o rompimento do estilo de vida anteriormente levado e da individualidade, além de gerar preocupações sobre o quadro clínico e prognóstico do paciente e, consequentemente, comprometer física e emocionalmente aqueles que cuidam.…”

Section: Discussionunclassified

Caracterização da rede de apoio psicossocial dos pacientes soropositivos

Lavezzo

Freitas²,

Rodrigues³

et al. 2019

ACS

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Introdução: Os avanços nas políticas de saúde ainda não são suficientes para interromper a disseminação do HIV/AIDS, seus episódios de instabilidade, agudização e desfechos desfavoráveis, tais como hospitalizações e óbitos. Nesse sentido, é essencial garantir, promover e operacionalizar cuidados ampliados em saúde, e integrados entre seus setores e atores, em especial as redes sociais de apoio e suporte. Objetivo: Caracterizar a rede social de apoio de pacientes soropositivos hospitalizados. Métodos: Participaram deste estudo seis acompanhantes pertencentes a rede de apoio do paciente internado na Enfermaria de Infectologia do Hospital de Base de São José do Rio Preto, entre os meses de agosto e dezembro de 2018. Foram utilizados os seguintes instrumentos: Questionário de Anamnese; Clinical Interview Schedule – Revised (CIS-R) e Escala de Sobrecarga do Cuidador de Zarit. Resultados: Acompanhantes do sexo feminino (50%) e masculino (50%), média de idade 46 ± 17,16. A vinculação predominante foi a fraterna (33%). Dos seis participantes, quatro (67%) foram classificados como “casos” (≥11); destes, 50% foram descritos com distúrbio emocional clinicamente significante leve, 25% com distúrbio emocional subclínico leve e 25% com distúrbio psiquiátrico moderado. Ademais, todos (100%) verbalizaram reações negativas diante da descoberta do diagnóstico, bem como não apresentaram percepção de sobrecarga. Conclusão: A rede de apoio aos pacientes soropositivos foi formada por uma proporção similar de homens e mulheres de meia-idade, com escolaridade média e vínculo fraterno. Nesta rede predominou a ausência de acompanhamentos psicológico e psiquiátrico prévios, a verbalização de reações negativas frente a descoberta do diagnóstico, a não percepção de sobrecarga e o relato de repercussões negativas frente ao cuidar. Por tanto, é necessária a implementação de suporte psicológico e psicoeducação para melhorar a qualidade de vida desta população. Palavras-Chave: HIV; Síndrome de Imunodeficiência Adquirida; Hospitalização; Apoio social.

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Difficulties and facilities of the family to care for children with HIV/Aids

Cited by 13 publications

References 13 publications

Factors related to the perceived stigmatization of people living with HIV

Factors related to the perceived stigmatization of people living with HIV

Social network of children with cronic disease: knowledge and practice of nursing

Caracterização da rede de apoio psicossocial dos pacientes soropositivos

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