Difficulties Experienced by Mothers of Children with Pervasive Developmental Disorders and Their Psychological Support

Matsuoka, Sumiko; Atsuko, Tamaki; Hatsuda, Masato; Nishiike, Eiko

doi:10.5630/jans.33.2_12

Cited by 3 publications

(3 citation statements)

References 10 publications

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“…Therefore, they begin to <worry about entering school>, the issues regarding school attendance that they will face, such as "whether to put them in a special needs class or a regular class", the extent of support they can receive, and whether their children will receive Open Journal of Nursing such support. Anxiety surrounding not knowing how children are doing, given their speech delay and poor expressiveness (d), leads to worry and stress regarding school life in mothers of children with pervasive developmental disorders [25].…”

Section: Preoccupation With Parenting Children With Asd and Their Sib...mentioning

confidence: 99%

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Exploring the Lives of Mothers Raising Children with Autism Spectrum Disorder in Japan

Kawakami¹,

Mano²,

Shibuya³

2023

OJN

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Background: Examining the lives that mothers experience and build will allow us to deepen our understanding of children with ASD and their mothers and facilitate developing support methods. The study aimed to examine the lives of mothers raising children with autism spectrum disorder (ASD) and investigate their sources of support. Method: We conducted a qualitative inductive study using semi-structured interviews to identify characteristics of the lives that mothers have created. Results: Semi-structured interviews were conducted with 11 mothers having children with ASD. The analysis comprised three stages of coding and yielded eight categories. The lives of these mothers contained three themes: preoccupation with parenting children with ASD and their siblings; evolving mother; and using social resources. Mothers engaged in "assessing the characteristics, growth, and changes in the child with ASD", had a "preoccupation with parenting children with ASD", and were "thinking about the future of the child with ASD", and "having goals and plans for parenting" while having "consideration toward the child's siblings". During this process, mothers experienced "changes in perspective or approach" and created lifestyles while "receiving help from people around them" and engaged in the "use of social resources". Conclusions: To avoid becoming preoccupied with parenting and being burdened by their lifestyle, mothers require social support to monitor their perceptions. Furthermore, the utilization of social resources requires the supporting individuals to understand the characteristics of children with ASD, provide appropriate information, and assist in decision-making.

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Section: Preoccupation With Parenting Children With Asd and Their Sib...mentioning

confidence: 99%

“…disorders desired support that focused on children's strengths and growth. Attending support facilities supports children's growth and facilitates the mothers' psychological stability by providing venues for consultation [25]. The Act on Support for Persons with Developmental Disabilities came into effect 17 years ago.…”

Section: Using Social Resourcesmentioning

confidence: 99%

Exploring the Lives of Mothers Raising Children with Autism Spectrum Disorder in Japan

Kawakami¹,

Mano²,

Shibuya³

2023

OJN

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“…Moreover, these mothers are unaware of effective approaches to help their children. 14 The difficulties children face during early childhood may differ from those encountered when they reach school age or adolescence; therefore, it is important to provide support to parents according to the age of their children. As mentioned above, previous studies have reported the importance of support to reduce parents' stress and anxiety and the need for parental support for their children's problems depending on the duration before achieving a confirmed diagnosis.…”

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confidence: 99%

Problem Behaviors as Perceived by Parents Before Their First Consultation at A Developmental Outpatient Clinic: A Questionnaire Research Study

Kuranami,

Saito,

Gemba

et al. 2023

Int J Life Sci Pharm Res

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Previous studies have suggested the importance of early detection of child developmental disorders and support forchildren and their parents. Child developmental and parental support are provided at both public and private facilities. Still,obtaining a physician's diagnosis at a medical institution is essential to determine whether a person has a developmental disorder.However, diagnosing a developmental disorder at the first visit to a medical institution with a child development outpatient clinicis time-consuming. Furthermore, developmental disorders are often associated with multiple comorbidities. Parents must identifychildren's problem behaviors before taking them to an outpatient clinic and understand how they consider such behaviors forappropriate diagnosis. Therefore, in this study, a private developmental support service company surveyed parents who had visiteda child development outpatient clinic at a medical institution. Chi-square test analysis revealed that the number of parents of boyshaving ≥2 problem behaviors was significantly higher than that of parents of girls (P< 0.01). In addition, parents who waited fortheir first medical visit for >0.5 years used multiple resources rather than a single resource to gain knowledge on their child'sproblem behaviors (P< 0.01). Therefore, parents of boys who visited the developmental outpatient clinic for the first time werealready aware of their children’s multiple problem behaviors before the examination; when the waiting period was prolonged, theparents used multiple resources to collect information before visiting a medical institution.

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An Integrative Review of Parenting Stress in Mothers of Children with Autism in Japan

Porter

Loveland

2018

International Journal of Disability, Development and Education

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Difficulties Experienced by Mothers of Children with Pervasive Developmental Disorders and Their Psychological Support

Cited by 3 publications

References 10 publications

Exploring the Lives of Mothers Raising Children with Autism Spectrum Disorder in Japan

Exploring the Lives of Mothers Raising Children with Autism Spectrum Disorder in Japan

Problem Behaviors as Perceived by Parents Before Their First Consultation at A Developmental Outpatient Clinic: A Questionnaire Research Study

An Integrative Review of Parenting Stress in Mothers of Children with Autism in Japan

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