Digging deep: Using diary techniques to explore the place of health and well-being amongst older people

Milligan, Christine; Bingley, Amanda; Gatrell, Anthony C.

doi:10.1016/j.socscimed.2005.04.002

Cited by 139 publications

(168 citation statements)

References 17 publications

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“…In studying more contemporary events, solicited and unsolicited diaries are used in various fields, such as ethnographic and anthropological research (Burgess, 1984;Hammersley, 2007), and psychology (Breakwell et al, 2006;Mackrill, 2008). There are also numerous examples of diaries used in the healthcare field (Furness and Garrud 2010;Jacelon and Imperio 2005;Milligan et al 2005;Smyth and Smyth 2003). The purposes range from logging events of medical interest to long-term studies of emotional and social consequences of diseases.…”

Section: Diaries In Research and Service Developmentmentioning

confidence: 99%

Patient involvement and service innovation in healthcare

Engström¹

2014

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This thesis adds to a stream of research suggesting that healthcare can be more patient centered and efficient by redefining the role of the patient from a passive receiver to a more active and collaborative participant. This may relate to healthcare provision (Anderson and Funnell, 2005;Berry and Bendapudi, 2007;Bitner and Brown, 2008;McColl-Kennedy et al., 2012;Nordgren, 2008) and innovation (Bate and Robert, 2006;Groene et al., 2009;Longtin et al., 2010). Through research initiative containing four healthcare units and 68 patients, the present thesis combines healthcare research (e.g., Anderson and Funnell, 2005;Nelson et al., 2002) with service research (e.g., Grönroos, 2006; Lusch, 2008, 2004) to explore three aspects of patient involvement and service innovation.Firstly, the concept of patient involvement itself is investigated through an extensive literature review of empirical research on patient involvement. A model describing the antecedents, forms and consequences of patient involvement is proposed. What value is, and how patients can co-create value is discussed from the perspectives of healthcare research and service management thought.Secondly, the thesis proposes a diary-based methodology for involving patients in service innovation. My colleagues and I developed the methodology in collaboration with the participating care providers and applied it in practice. We used the experiences we gained from the project and the contributions from the patients to examine the opportunities for user involvement in service innovation. The participants contributed with ideas and insights stemming from their experiences in their contact with healthcare and other resources. We suggest the following three ways of learning from the collected data: As ideas for improvements; through summary reports to illustrate other quantitative data; and as narratives to promote change. Thirdly, the thesis explores patients' motivations to participate in service innovation, a hitherto unexplored field. Through an analysis of patients' contributions and interviews with participants we found that there are a number of factors that motivate patients to participate and that participation is perceived as a social-and meaning-laden event. Patients derive psychological well-being and support from participation, but disease was sometimes a barrier to participation. This thesis elaborates on how the most motivated users can be involved in service innovation, applying thinking from the lead-user methodology to a healthcare setting.Overall, the thesis explores patient involvement from new perspectives and, by doing so, adds to our collective efforts to improve healthcare. viii Key words: Patient Involvement, participation, co-creation, patient empowerment, user involvement, patient centered care, motivation, user experiences, co-creation, service development, service innovation, service design, health care, lead users, diary, value ix SAMMANFATTNING Denna avhandling syftar till en mer patientcentrerad och effektiv sjukvård. Den bid...

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Section: Diaries In Research and Service Developmentmentioning

confidence: 99%

Patient involvement and service innovation in healthcare

Engström¹

2014

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“…Milligan et al (2005) described the use of diaries as a narrative method that has the advantage of allowing participants' control of the amount they chose to reveal and to identify the areas most important to them. Researchers who have used the diary method argue that its value lies with its contemporaneous nature, allowing participants to record events, feelings and experiences accurately and therefore is not dependent on memory recall.…”

Section: Data Collection Methodsmentioning

confidence: 99%

“…Commonly a log book or journal is used which may incorporate a questionnaire or be supplemented by interviews (Jones, 2000;Keleher et al, 2003) and may be solicited or unsolicited (Milligan et al, 2005). The difference between solicited and unsolicited diaries is that with solicited diaries the participant is fully informed that the contents of the diary will be used in a research study, will be analysed and the findings published.…”

Section: Data Collection Methodsmentioning

confidence: 99%

Women׳s views on partnership working with midwives during pregnancy and childbirth

2016

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“…While some studies have shown much higher diary completion rates of 60-87% (Caffo et al, 2003;Maunsell et al, 2000;Milligan et al, 2005;Parkin et al, 2004) it has to be highlighted that these either involved very short questionnaires (less than 10 items), over short periods of time or participants who were elderly but had no major health problems. It is well recognised that compliance varies according to the health of the patient, with it being most difficult to collect QoL data from patients with a poor status or progressive disease (Fayers, 1995).…”

Section: Completion Of Diarymentioning

confidence: 99%

“…Advantages of the diary format are that participants have reported enjoying the experience of keeping a diary (Milligan et al, 2005), using it as a tool for gaining knowledge about their condition, consolidating memory, monitoring change, selfreflection and as a communication device to facilitate doctor-patient communication (Reid et al, 2003). In addition patients can complete their diary at home, which minimises any possible positive or negative influence from health care professionals (Andersen et al, 2006).…”

Section: Introductionmentioning

confidence: 99%

Feasibility of a standardised quality of life questionnaire in a weekly diary format for inoperable lung cancer patients

Mills¹,

Murray²,

Johnston³

et al. 2008

European Journal of Oncology Nursing

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a b s t r a c tObjective: Previous studies testing quality of life assessment (QoL) in routine oncology clinical practice have been based at single institutions and many have utilised touch-screen computer technology. The objective of this study was to test the feasibility of a low-tech QoL diary that could be held by the patient and shared with professionals across the health care setting. Methods:The EORTC-QLQ-C30 and LC13 were used and adapted into an A5 diary format. Patients were instructed to complete the questions each week at home and to share the information with any health professional involved in their care. Feasibility of the diary format was examined through assessment of compliance, utilisation and satisfaction using a mixed methods approach.Results: Diary completion rates were good; however, utilisation of the diary was poor, with only 23% (13/57) of patients stating explicitly that they had shared the diary with a health professional. Patients were generally satisfied with the diary format; however, qualitative analysis did identify some negative effects of diary completion. Conclusions: A patient-held QoL diary is feasible for a proportion of palliative care patients but the importance of training and support for patients and staff cannot be underestimated when implementing a new tool into clinical practice.

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Digging deep: Using diary techniques to explore the place of health and well-being amongst older people

Cited by 139 publications

References 17 publications

Patient involvement and service innovation in healthcare

Patient involvement and service innovation in healthcare

Women׳s views on partnership working with midwives during pregnancy and childbirth

Feasibility of a standardised quality of life questionnaire in a weekly diary format for inoperable lung cancer patients

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