Digital storytelling to facilitate consumer engagement in healthcare research

Abstract

Consumer engagement in the development and production of research is widely argued as being important for generating meaningful findings that are more likely to translate successfully into practice. 1,2 This engagement may focus on the design of specific research projects and use of the evidence stemming from it in health service planning, policy development, setting priorities, and quality assurance in the delivery of health services. 3 In order for consumers to engage meaningfully in these processes, they must first be provided with and understand the context and background information for the issues under consideration. In research, the same information needs to be provided to allow participants who are consumer representatives to understand the research questions being asked. 4 This is particularly important when working with populations that may have limitations in their capacity to understand the complex information

Engaging the consumer in disinvestment in public healthcare: Concerns, perspectives and attitudes of older adults

“…Ultimately, the use of mobilization alarms as a concrete example was the most useful strategy to help consumers understand disinvestment and its justifications. This finding is discussed in another study of the same data set 20 …”

“…The use of video as a research method was used alongside interviews to arouse discussion and reflection 18 . Video can be used in research to elicit reaction, opinion or discussion, to assist in the exploration of complex health phenomena, 19 and can facilitate comprehension of complex health information 20 …”

“…18 Video can be used in research to elicit reaction, opinion or discussion, to assist in the exploration of complex health phenomena, 19 and can facilitate comprehension of complex health information. 20 The same four questions were asked after each scenario:…”

“…This finding is discussed in another study of the same data set. 20 This is the first study directly investigating older, nonpartisan (lay) citizens' concerns, attitudes, and perceptions on disinvestment, as well as examining their preferred methods for communicating disinvestment processes to patients and families. Previous work has been conducted with younger adult populations examining their responses to disinvestment from assisted reproductive technology funding.…”

Care biography: A concept analysis

“…These ideas converge on the notion of ‘digital story telling', which describes a knowledge translation (KT) method to promote a more comprehensive understanding of patient perspectives, lived experience, and holistic care needs through the creation of muti‐media presentations (e.g., video clips). The process enables greater consumer engagement and shared decision making (Park et al, 2021; Pu et al, 2022). A key point on which these examples converge with Care Biography is the need to shift away from a unidirectional approach in how care‐related information is applied in care practice, to a bidirectional approach in which care‐related information from both care providers and patients is applied in care practice as part of a collaborative effort.…”