Digital Storytelling with Persons Living with Dementia: Elements of Facilitation, Communication, Building Relationships, and Using Technology

Hollinda, Kara; Daum, Christine; Rincón, Adriana Ríos; Liu, Lili

doi:10.1177/07334648221142015

Cited by 8 publications

(3 citation statements)

References 24 publications

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“…Seventeen papers were excluded for different reasons: Five were excluded because they did not include social interaction, mood and/or quality of life outcomes [ 35 – 39 ]; six were excluded because the psychosocial intervention described did not use generic photos [ 11 , 40 – 43 ]; two were excluded because there was no intervention described [ 28 , 44 ]; three were excluded due to not having a control condition [ 17 , 45 , 46 ]; and one was excluded [ 47 ] because upon full-text screening, it was determined that the paper was not a unique study, rather it was a commentary on another existing study [ 42 ].…”

Section: Resultsmentioning

confidence: 99%

The effects of psychosocial interventions using generic photos on social interaction, mood and quality of life of persons with dementia: a systematic review

Tan,

Boersma,

Ettema

et al. 2023

BMC Geriatr

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Background Although family photos are often used in the psychosocial care for people with dementia, little is known about the use and effectiveness of generic photos. This systematic literature review explored psychosocial interventions using generic photos for people with dementia, and the effects they have on their social interaction and/or mood and/or quality of life. In addition, it was investigated whether these interventions made use of technology in its implementation. Methods A systematic search on the following databases was performed: PubMed, Embase, APA PsychInfo, Cinahl, Web of Science, Scopus and Cochrane Central. Inclusion and exclusion criteria were based on the PICO model (Population, Intervention, Comparison, Outcome), and quality assessment was undertaken using the Weight of Evidence Framework. Narrative synthesis was undertaken to summarize study characteristics- settings and designs, type of psychosocial interventions identified, type of photos and technology used, outcome measures, and results. Results A total of 2,035 results were found, however after title, abstract and full-text screening, a total of 8 studies were included. The most common psychosocial intervention using generic photos was found to be reminiscence therapy, followed by art-viewing activities. In studies that used technology, it was reported that viewing digitalized photos were either similar or better to conventional printed photos. Despite photos being generic, it was found that generic photos could still hold personal significance to the person with dementia. Some positive and significant effects were found for the outcomes social interaction, mood and quality of life, though no study evaluated all three outcomes. Two studies were rated as having high overall quality, 4 were rated as fair, and 2 studies had a low quality assessment rating. Conclusion Studies found using generic photos were limited, showing varying outcomes and methodological quality. Firm conclusions on the effectiveness of interventions using generic photos are not possible. However, the use of generic photos in psychosocial interventions is a promising area for future research. Researchers should consider studies with better methodological quality and larger samples; and qualitative studies where the intention is to get better insight into successful implementation and impact mechanisms of such psychosocial interventions. Trial registration n/a.

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Section: Resultsmentioning

confidence: 99%

The effects of psychosocial interventions using generic photos on social interaction, mood and quality of life of persons with dementia: a systematic review

Tan,

Boersma,

Ettema

et al. 2023

BMC Geriatr

View full text Add to dashboard Cite

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“…그 중, 스토리텔링 (Storytelling) 기반 치료는 치매 환자들의 인지 기능 향상과 감정 조절 능력 강화에 효과적이라는 사실이 입증되며 주목을 받고 있다 [3]. 스토리텔링이란, 치매 환자들이 공동체 활동을 통해 주어진 소재에 대한 중/장기 기억을 환원하여 타인에게 설명하게 하는 비약물적 치료 기법이다 [4]. 이러한 스토리텔링은 사회적 교류가 적은 치매 환자들이 개인의 경험과 감정을 타인과 함께 이야기 나눌 수 있게 함으로써, 치매 환자들의 소통을 도모할 수 있는 강력한 도구로서 인식되고 있다 [5]…”

Section: 서론unclassified

A Storytelling Therapy Technique for Dementia Patients through a Mobile Application: “A Stroll Down Memory Lane”

Kim,

2024

APJCRI

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The effects of storytelling in enhancing social interaction and long-term memory in dementia patients are increasingly being recognized. The non-pharmaceutical treatment methods are actively being adopted in advanced countries for dementia care and are provided as part of dementia welfare services. However, in South Korea, it is difficult for elderly dementia patients to access specialists or institutions that provide storytelling therapy, hindering the spread of this treatment method. To address this problem, this study introduces an accessible mobile-based tool called "A Stroll Down Memory Lane." Considering eariler studies, six key characteristics were identified for designing a storytelling therapy tool for Korean dementia patients. The study also evaluated major storytelling tools developed in the last decade against these characteristics to analyze their limitations and identify features that the proposed tool could improve upon. As a result, the mobile-based tool " A Stroll Down Memory Lane." was designed and implemented, incorporating all six design considerations. This tool, which applies design considerations not included in existing tools, could be an effective medium to deliver storytelling therapy techniques to dementia patients in South Korea. It is expected that through this tool, patients can more easily receive storytelling therapy, potentially improving the quality of life for elderly dementia patients.

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“…Similar results have been observed in both Western and Asian contexts [ 31 ], indicating the wide potential of this approach. However, one of the difficulties of digital storytelling is that preparation requires digital skills, time, and effort [ 32 ], which presents a significant adoption barrier for many caregivers and families. The need to create personalized content is avoided through a digital iCST application [ 33 ] that uses a pool of precreated generic stimulation activities, including quizzes and games designed to promote engagement, that can be used according to the interests and preferences of the users.…”

Section: Introductionmentioning

confidence: 99%

Enabling Personalization for Digital Cognitive Stimulation to Support Communication With People With Dementia: Pilot Intervention Study as a Prelude to AI Development

Hird,

Osaki,

Ghosh

et al. 2024

JMIR Form Res

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Background Maintaining good communication and engagement between people with dementia and their caregivers is a major challenge in dementia care. Cognitive stimulation is a psychosocial intervention that supports communication and engagement, and several digital applications for cognitive stimulation have been developed. Personalization is an important factor for obtaining sustainable benefits, but the time and effort required to personalize and optimize applications often makes them difficult for routine use by nonspecialist caregivers and families. Although artificial intelligence (AI) has great potential to support automation of the personalization process, its use is largely unexplored because of the lack of suitable data from which to develop and train machine learning models. Objective This pilot study aims to evaluate a digital application called Aikomi in Japanese care homes for its potential to (1) create and deliver personalized cognitive stimulation programs to promote communication and engagement between people with dementia and usual care staff and (2) capture meaningful personalized data suitable for the development of AI systems. Methods A modular technology platform was developed and used to create personalized programs for 15 people with dementia living in 4 residential care facilities in Japan with the cooperation of a family member or care staff. A single intervention with the program was conducted with the person with dementia together with a care staff member, and for some participants, smell stimulation was provided using selected smell sticks in conjunction with the digital program. All sessions were recorded using a video camera, and the combined personalized data obtained by the platform were analyzed. Results Most people with dementia (10/15, 67%) showed high levels of engagement (>40 on Engagement of a Person with Dementia Scale), and there were no incidences of negative reactions toward the programs. Care staff reported that some participants showed extended concentration and spontaneous communication while using Aikomi, which was not their usual behavior. Smell stimulation promoted engagement for some participants even when they were unable to identify the smell. No changes in well-being were observed following the intervention according to the Mental Function Impairment Scale. The level of response to each type of content in the stimulation program varied greatly according to the person with dementia, and personalized data captured by the Aikomi platform enabled understanding of correlations between stimulation content and responses for each participant. Conclusions This study suggests that the Aikomi digital application is acceptable for use by persons with dementia and care staff and may have the potential to promote communication and engagement. The platform captures personalized data, which can provide suitable input for machine learning. Further investigation of Aikomi will be conducted to develop AI systems and create personalized digital cognitive stimulation applications that can be easily used by nonspecialist caregivers.

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Digital Storytelling with Persons Living with Dementia: Elements of Facilitation, Communication, Building Relationships, and Using Technology

Cited by 8 publications

References 24 publications

The effects of psychosocial interventions using generic photos on social interaction, mood and quality of life of persons with dementia: a systematic review

The effects of psychosocial interventions using generic photos on social interaction, mood and quality of life of persons with dementia: a systematic review

A Storytelling Therapy Technique for Dementia Patients through a Mobile Application: “A Stroll Down Memory Lane”

Enabling Personalization for Digital Cognitive Stimulation to Support Communication With People With Dementia: Pilot Intervention Study as a Prelude to AI Development

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