Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: A systematic review

Pringle, Jan; Johnston, Bridget; Buchanan, Deans

doi:10.1177/0269216315575681

Cited by 74 publications

(70 citation statements)

References 77 publications

(191 reference statements)

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“…A recent meta-synthesis of the palliative care experience in hospital, based on patient and caregiver narratives from 16 studies, identified 6 essential themes, seemingly applicable to all care settings: expert care, effective communication and shared decision making, respectful and compassionate care, adequate environment for care, family involvement, and financial affairs (Virdun et al, 2016). These authors report that these specified priories have remained consistent over time-also reflecting continuing gaps in this care (Cardona-Morrell et al, 2016;McCourt et al, 2013;Pringle et al, 2015;Robinson et al, 2014). The findings of these studies and ours characterize the optimal type of care that needs to be available to dying patients, regardless of setting, and sets a standard for system development.…”

Section: Discussionmentioning

confidence: 99%

The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers

et al. 2017

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Objective: Despite the increasing prominence of residential hospices as a place of death and that, in many regards, this specialized care represents a gold standard, little is known about the care experience in this setting. Using qualitative survey data, we examined the positive and negative perceptions of care in hospices and in other prior settings.Method: Qualitative comments were extracted from the CaregiverVoice survey completed by bereaved caregivers of decedents who had died in 16 residential hospices in Ontario, Canada. On this survey, caregivers reported what was good and bad about the services provided during the last three months of life as separate open-text questions. A constant-comparison method was employed to derive themes from the responses.Results: A total of 550 caregivers completed the survey, 94% (517) of whom commented on either something good (84%) and/or bad (49%) about the care experience. In addition to residential hospice, the majority of patients represented also received palliative care in the home (69%) or hospital (59%). Overall, most positive statements were about care in hospice (71%), whereas the negative statements tended to refer to other settings (81%). The hospice experience was found to exemplify care that was compassionate and holistic, in a comforting environment, offered by providers who were personable, dedicated, and informative. These humanistic qualities of care and the extent of support were generally seen to be lacking from the other settings.Significance of results: Our examination of the good and bad aspects of palliative care received is unique in qualitatively exploring palliative care experiences across multiple settings, and specifically that in hospices. Investigation of these perspectives affirmed the elements of care that dying patients and their family caregivers most value and that the hospices were largely effective at addressing. These findings highlight the need for reinforcing these qualities in other end-of-life settings to create comforting and supportive environments.

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Section: Discussionmentioning

confidence: 99%

The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers

et al. 2017

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“…Palliative care is progressively documented as an important community service for end‐of‐life patients (Guo & Jacelon, ; Pringle, Johnston, & Buchanan, ), and palliative care nurses play a primary role in assisting care recipients (Johnston et al, ; McIlfatrick et al, ). Hence, nurses’ engagement and organisational commitment are pivotal to attentive caring for end‐of‐life patients (Freeney & Tiernan, ).…”

Section: Relevance To Clinical Practice: Nurses’ Work Engagement To Hmentioning

confidence: 99%

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Stıevano¹,

Sabatino²,

Affonso³

et al. 2019

Journal of Clinical Nursing

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Aims and objectives To determine the relevance of nursing's professional dignity in palliative care. Background Dignity is a valued concept in the ethical discourse of health disciplines. Nursing's professional dignity, a concept related to professional identity, is not clearly defined nor have its characteristics been delineated for its clinical relevance in palliative care. Design A qualitative methodological approach. Methods Focus groups elicited dialogues of nursing's professional dignity among 69 nurses working in hospices and home‐care in Italy. Data were content‐analysed via an inductive process. The COREQ checklist for qualitative studies was used for reporting this research. Results A central theme related to (a) “Intrinsic dignity of persons” was embedded in the essence of palliative care. Several corollary themes underscored this central theme: (b) Professional (intra‐ and inter) relationships and teamwork; (c) Nursing professionalism; (d) Ethical dilemmas; and (e) Relationships with patients and their significant persons. Conclusions Nurses valued the essence of respect as persons and the essence of respect for their work as coherent with intrinsic dignity and work dignity in palliative care. Nurses perceived their psycho‐social relationships with patients and their families as rewarding incentives amidst disputatious interactions with peers and/or other healthcare professionals. They experienced ethical dilemmas, which they perceived as inherent in palliative care. Relevance to clinical practice Study findings corroborate the literature regarding the concept of nursing's professional dignity which is intrinsic in respect of the human person. The intrinsic dignity in palliative care manifests as nurses are working in juxtaposition of a demanding yet rewarding care ambience.

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“…, Guo & Jacelon , Pringle et al . ). The need to provide care which is both responsive and supportive to individualised need is evidenced within the wide body of literature which associates the concept of a good death as one with dignity (Allmark , Yalden & McCormack , Guo & Jacelon ).…”

Section: Introductionmentioning

confidence: 97%

“…Dignity is a concept that pervades health policy, practice and biographical accounts of dying (Anderberg et al 2007). It is multifaceted and complex with various definitions in the literature, potentially contributing to a sense of confusion when applying and implementing dignity interventions in practice (Jacelon et al 2004, Guo & Jacelon 2014, Pringle et al 2015. The need to provide care which is both responsive and supportive to individualised need is evidenced within the wide body of literature which associates the concept of a good death as one with dignity (Allmark 2002, Yalden & McCormack 2010, Guo & Jacelon 2014).…”

Section: Introductionmentioning

confidence: 99%

Evaluating a dignity care intervention for palliative care in the community setting: community nurses’ perspectives

McIlfatrick

Connolly

Collins

et al. 2017

Journal of Clinical Nursing

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Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: A systematic review

Cited by 74 publications

References 77 publications

The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers

The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers

Nursing’s professional dignity in palliative care: Exploration of an Italian context

Evaluating a dignity care intervention for palliative care in the community setting: community nurses’ perspectives

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