2023
DOI: 10.1177/10497323231204562
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Dignity and the Importance of Acknowledgement of Personhood for People With Disability

Kelsey Chapman,
Angel Dixon,
Carolyn Ehrlich
et al.

Abstract: Exploring the intricate relationship between individual and collective experiences, this study explores dignity from the perspectives of people with disability. Using an extreme citizen science approach, we engaged people with disability as active partners in gathering data through qualitative surveys and focus groups. Framework Analysis was employed to ensure the validity of findings while privileging the voices of people with lived experience of disability. Dignity was contingent on the acknowledgement of pe… Show more

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Cited by 2 publications
(2 citation statements)
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“…While co-design and other co-production processes are resource and time-intensive, the investment is essential to prioritise the health and other needs of potentially vulnerable population groups in the context of an imbalance of power [42]. In exploring the concept of dignity for people with disability, Chapman et al [34] indicated that recognising the right to make decisions and proactively eliminating or minimising barriers to inclusion are key to protecting dignity. Community participation in decisionmaking processes such as this study can result in messy and unpredictable outcomes.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…While co-design and other co-production processes are resource and time-intensive, the investment is essential to prioritise the health and other needs of potentially vulnerable population groups in the context of an imbalance of power [42]. In exploring the concept of dignity for people with disability, Chapman et al [34] indicated that recognising the right to make decisions and proactively eliminating or minimising barriers to inclusion are key to protecting dignity. Community participation in decisionmaking processes such as this study can result in messy and unpredictable outcomes.…”
Section: Discussionmentioning
confidence: 99%
“…As the first workshop was in-person, specific process choices were made to ensure co-designers felt welcome and to uphold the dignity of co-designers with lived experience [34]. Examples of process design choices include facilitating transport and parking requests, providing easy access to the building and room, making a sensory breakout room available and having the peer researcher waiting at the entrance to welcome and guide people to the workshop room.…”
Section: Workhop Resources and Supportsmentioning
confidence: 99%