Directly engaging with People with lived experiences of mental illness from the communities in India

Kaur, Amanpreet; Kallakuri, Sudha; Daniel, Mercian; Yatirajula, Sandhya Kanaka; Devarapalli, Siddhardha; Maulik, Pallab K.

doi:10.1016/j.ssmmh.2021.100024

Cited by 7 publications

(5 citation statements)

References 22 publications

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“…The project team had experience working with ASHAs for a considerable period in mental health projects that also utilized an anti-stigma campaign ( 16 , 40 ). The research team had experience working with MHSUs ( 40 , 43 ). MHSUs with depression, anxiety, and suicide risk who were receiving treatment from either a public or private facility and those from an ongoing project were included in the interventions.…”

Section: Resultsmentioning

confidence: 99%

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Cultural adaptation of INDIGO mental health stigma reduction interventions using an ecological validity model in north India

Daniel,

Kallakuri,

Gronholm

et al. 2024

Front. Psychiatry

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BackgroundThe International Study of Discrimination and Stigma Outcomes (INDIGO) Partnership is a multi-country international research program in seven sites across five low- and middle-income countries (LMICs) in Africa and Asia to develop, contextually adapt mental health stigma reduction interventions and pilot these among a variety of target populations. The aim of this paper is to report on the process of culturally adapting these interventions in India using an established framework.MethodsAs part of this larger program, we have contextualized and implemented these interventions from March 2022 to August 2023 in a site in north India. The Ecological Validity Model (EVM) was used to guide the adaptation and contextualization process comprising eight dimensions.FindingsSix dimensions of the Ecological Validity Model were adapted, namely language, persons, metaphors, content, methods, and context; and two dimensions, namely concepts and goals, were retained.ConclusionStigma reduction strategies with varied target groups, based on culturally appropriate adaptations, are more likely to be acceptable to the stakeholders involved in the intervention, and to be effective in terms of the program impact.

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Section: Resultsmentioning

confidence: 99%

“…One team member (MD) who could speak the local language was involved in conducting the training sessions. 1 All team members had the experience of directly engaging with MHSUs from an ongoing project (40,43).…”

Section: Characteristics Of Team Conducting Cultural Adaptation and C...mentioning

confidence: 99%

Cultural adaptation of INDIGO mental health stigma reduction interventions using an ecological validity model in north India

Daniel,

Kallakuri,

Gronholm

et al. 2024

Front. Psychiatry

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“…Discrimination and stigmatizing behaviours against PWMI further impact the use of health care system by PWMI. Thus, understanding local perspectives (cultural practices, beliefs and behaviours) is important for a culturally sensitive healthcare system for the community [ 38 , 39 ]. Delayed health-seeking behaviour, illiteracy, cultural and geographic distribution of people are causes for psychiatric morbidity [ 40 , 41 ].…”

Section: Discussionmentioning

confidence: 99%

Mental health related stigma, service provision and utilization in Northern India: situational analysis

Kaur¹,

Kallakuri²,

Mukherjee³

et al. 2023

Int J Ment Health Syst

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Stigma, discrimination, poor help seeking, dearth of mental health professionals, inadequate services and facilities all adversely impact the mental health treatment gap. Service utilization by the community is influenced by cultural beliefs and literacy levels. We conducted a situational analysis in light of the little information available on mental health related stigma, service provision and utilization in Haryana, a state in Northern India. This involved: (a) qualitative key informant interviews; (b) health facility records review; and (c) policy document review to understand the local context of Faridabad district in Northern India. Ethical approvals for the study were taken before the study commenced. Phone call in-depth interviews were carried out with a purposive sample of 13 participants (Mean = 38.07 years) during the COVID-19 pandemic, which included 4 community health workers, 4 people with mental illness, 5 service providers (primary health care doctors and mental health specialists). Data for health facility review was collected from local primary health and specialist facilities while key policy documents were critically analysed for service provision and stigma alleviation activities. Thematic analysis was used to analyse patterns within the interview data. We found poor awareness and knowledge about mental illnesses, belief in faith and traditional healers, scarcity of resources (medicines, trained professionals and mental health inpatient and outpatient clinics), poor access to appropriate mental health facilities, and high costs for seeking mental health care. There is a critical gap between mental health related provisions in policy documents and its implementation at primary and district level.

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“…This has been demonstrated, for example, through Time to Change Global, where social contact-based stigma reduction principles from England's Time To Change anti-stigma program were successfully delivered in Ghana and Kenya (Potts and Henderson 2021). Also studies like Reducing Stigma among Healthcare Providers (RESHAPE) in Nepal, and the Systematic Medical Appraisal, Referral and Treatment (SMART) Mental Health project in India have shown that stigma reduction through social contact and PWLE involvement was feasible despite some https://doi.org/10.1017/gmh.2024.69 Published online by Cambridge University Press challenges (Gurung et al 2023;Kaiser et al 2022;Kaur et al 2021;Maulik et al 2019;Rai et al 2023). Notably, the SMART Mental Health project reported positive effects of their anti-stigma campaign even at 2-year follow up (Maulik et al 2019).…”

Section: Impact Statementmentioning

confidence: 99%

Establishing partnerships with people with lived experience of mental illness for stigma reduction in low- and middle-income settings

Mendon,

Gurung,

Loganathan

et al. 2024

Camb. prisms Glob. ment. health

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Social contact refers to the facilitation of connection and interactions between people with and without mental health conditions. It can be achieved, for example, through people sharing their lived experience of mental health conditions, which is an effective strategy for stigma reduction.Meaningful involvement of people with lived experience (PWLE) in leading and co-leading antistigma interventions can/may promote autonomy and resilience. Our paper aimed to explore how PWLE have been involved in research and anti-stigma interventions, to improve effective means of involving PWLE in stigma reduction activities in LMICs. A qualitative collective case study design was adopted. Case studies from four LMICs (China, Ethiopia, India and Nepal) are summarized, briefly reflecting on background for the work, alongside anticipated and experienced challenges, strategies to overcome these, and recommendations for future work. We found that the involvement of PWLEs in stigma reduction is commonly a new concept in LMIC. Experienced and anticipated challenges were similar, such as identifying suitable persons to engage in the work

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Directly engaging with People with lived experiences of mental illness from the communities in India

Cited by 7 publications

References 22 publications

Cultural adaptation of INDIGO mental health stigma reduction interventions using an ecological validity model in north India

Cultural adaptation of INDIGO mental health stigma reduction interventions using an ecological validity model in north India

Mental health related stigma, service provision and utilization in Northern India: situational analysis

Establishing partnerships with people with lived experience of mental illness for stigma reduction in low- and middle-income settings

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