Disability in the Family: A Life Span Perspective.

Banks, Martha E.

doi:10.1037/1099-9809.9.4.367

Cited by 42 publications

(26 citation statements)

References 64 publications

(103 reference statements)

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“…More research on families from diverse backgrounds is needed in order to develop culturally relevant and appropriate support services (Banks, 2003). There is a call for increasing ethnic minority groups’ access to health information and services (Holliday, Dawes, Al-Mohamed, & Figueroa-Garcia, 2009).…”

Section: Discussionmentioning

confidence: 99%

The experiences of Latino siblings of children with developmental disabilities

Kao¹,

Romero-Bosch²,

Plante³

et al. 2011

Child

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Objective This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. Methods Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. Results Using Consensual Qualitative Research methodology (Hill, Thompson, & Williams, 1997), domains reflecting siblings’ relationships, emotional experiences, and communication about the disability were identified. The child’s need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings’ experience of differential treatment whereas siblings reported concerns about restricted social activities because of their brother/sister. Conclusions Including multiple informants revealed commonalities and differences in parents’ and siblings’ perspectives on the impact of a child’s disability. The importance of considering sibling adaptation in sociocultural context is discussed.

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Section: Discussionmentioning

confidence: 99%

The experiences of Latino siblings of children with developmental disabilities

Kao¹,

Romero-Bosch²,

Plante³

et al. 2011

Child

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“…They were in an ethically difficult situation (Banks, 2003), the dilemma between rationally doing the right thing when they decided to accept a place for their child in the group home, and emotionally doing the wrong thing, in handing over the care of their young child to others. Most of the parents were satisfied with the group home and thought that their child had improved.…”

Section: Discussionmentioning

confidence: 99%

“…These parents wanted to determine whether there was something wrong with the group home. Was the ethical dilemma increased (Banks, 2003) by their worrying and by their disturbing experiences of this sort?…”

Section: Discussionmentioning

confidence: 99%

Parents’ experience of having a child with autism and learning disabilities living in a group home

Benderix

Nordström

Sivberg

2006

Autism

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Some children with autism and learning disabilities also have aberrant behaviours difficult to regulate, stressful both for the child and for family members. The present case study concerns experiences of 10 parents from five families before and two years after entrusting their 10-11 year old child with autism to a group home. Hermeneutic phenomenological analysis of narrative interviews with the parents before the child's moving showed them experiencing grief and sorrow, total exhaustion because of inability to regulate their child's behaviours, social isolation, and negative effects on the child's siblings, but experiencing themselves as more sympathetic than earlier towards other people with problems. Two years later they experienced relief for the family due to the group home arrangement and the child's improvement, but with an ethical dilemma, which made them feel guilty, despite increased hope for the future. Some also felt unhappy with the staff situation at the group home.

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“…The support and aid so urgently needed by mothers of children with developmental disorders in Bedouin society should be directed at finding tools that will help mothers to focus on truly providing for the children's needs. As Banks (2003) emphasizes, successful and effective coping with the difficulties faced by parents of children with developmental disorders depends on the range of strategies and tools available for dealing with their situation. Helping Bedouin mothers to find more effective ways of dealing with their situation is a strategy that is likely to relieve their burden and reinforce their sense of coherence, as well as enable them to cope more successfully with their routine hardships.…”

Section: Discussionmentioning

confidence: 99%

Mothers of Children with Developmental Disorders in the Bedouin Community in Israel: Family Functioning, Caregiver Burden, and Coping Abilities

Manor-Binyamini

2010

J Autism Dev Disord

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This preliminary study compares the family functioning, caregiver burden, and coping abilities between mothers of 300 children with developmental disorders and mothers of 100 children with no such disorders in the Bedouin community in Israel. The mothers completed the McMaster Family Assessment Device Scale, the Caregiver Burden Index, and the Sense of Coherence Scale. Mothers of children with developmental disorders reported lower family functioning, a higher caregiver burden, and a lower sense of coherence and thus lower coping abilities than mothers of children with no disorders. The study highlights the need to provide professional support for mothers of children with developmental disorders and to develop awareness and culturally appropriate intervention programs to enhance these mothers' coping abilities.

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Disability in the Family: A Life Span Perspective.

Cited by 42 publications

References 64 publications

The experiences of Latino siblings of children with developmental disabilities

The experiences of Latino siblings of children with developmental disabilities

Parents’ experience of having a child with autism and learning disabilities living in a group home

Mothers of Children with Developmental Disorders in the Bedouin Community in Israel: Family Functioning, Caregiver Burden, and Coping Abilities

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