Disabled People’s Experiences of the Coronavirus Pandemic: A Call to Action for Social Change

Read, Stuart; Parfitt, Anne; Bush, Tanvir; Simmons, Ben; Levinson, Martin H.

doi:10.17645/si.v11i1.5721

Cited by 3 publications

(2 citation statements)

References 20 publications

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“…This is also a call to action for further research. There has been limited policy consideration or research investigating the impact of COVID-19 on disabled people at all ( Shakespeare et al, 2022 ; Read et al, 2023 ). As a subset of this population, the research including disabled children has been even more limited, and the enduring effects on their mothers (or fathers) even less so.…”

Section: Discussionmentioning

confidence: 99%

Who cares about the carers? A call to action on behalf of mothers of disabled children

Pearson

2024

Front. Sociol.

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This ‘perspective’ article is an urgent call to action on behalf of mothers (and indeed fathers) of disabled children in the wake of the COVID-19 pandemic. In doing so draws attention to the ‘perfect storm’ experienced by United Kingdom-based parents of reduced support and increased stress, coupled with the effects of isolation. It also illuminates some of the impact of actions taken, and not taken, during and after the pandemic and the enduring effects for working parent-carers. In doing so I argue that, despite facing these extreme challenges, these parents have been a neglected group from both a policy and research perspective. The call to action therefore extends to society, employers, and to the research community.

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Section: Discussionmentioning

confidence: 99%

Who cares about the carers? A call to action on behalf of mothers of disabled children

Pearson

2024

Front. Sociol.

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“…Non-disabled allies were mentioned ten times using the terms non-disabled allies [199,[204][205][206], sighted individuals [207], hearing allies [208][209][210][211], and neurotypical allies [212].…”

Section: Years Number Of Abstractsmentioning

confidence: 99%

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Wolbring,

Lillywhite

2023

Societies

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Disabled people face many problems in their lived reality, as evidenced by the content of the UN Convention on the Rights of Persons with Disabilities. Disabled people are constantly engaged in activism to decrease their problems. However, disabled people cannot do all the work by themselves and need allies (who can be so-called non-disabled people or disabled people of a different background to other disabled people) given the many barriers disabled people face in being activists, given the precarious lived reality of many, and given the many problems in need of solving. At the same time, the expectations linked to being an authentic ally of disabled people pose many challenges and stressors and a danger of burnout for the ally. Therefore, the aim of this study was to better understand the academic coverage of allyship and allies in relation to disabled people in general, and specifically the coverage of challenges, stressors, and danger of burnout for allies of disabled people. To fulfill this aim, we performed a scoping review of academic abstracts and full texts employing SCOPUS, the seventy databases of the EBSCO-HOST and the Web of Science. Of the 577 abstracts, covering allies and allyship in relation to disabled people that were downloaded, 306 were false positives. Of the 271 relevant ones, the content of six abstracts suggested a deeper coverage of allyship/allies in the full texts. Within the full texts, two mentioned ally burnout and four mentioned challenges faced by allies. Among the 271 abstracts, 86 abstracts mentioned allies without indicating who the allies were, 111 abstracts mentioned specific allies with technology as an ally being mentioned second highest. Sixty-three abstracts covered specific topics of activism for allies. Furthermore, although searching abstracts for equity, diversity, and inclusion (EDI) related phrases, terms, and policy frameworks generated sixty-three abstracts, only three abstracts mentioned disabled people. Abstracts containing science and technology governance or technology focused ethics fields terms did not generate any hits with the terms ally or allies or allyship. Searching abstracts and full texts, phrases containing ally or allies or allyship and burnout had 0 hits, ally terms with stress* generated four hits and phrases containing anti-ableism, or anti disablism, anti-disableist, anti-disablist, anti-ablist, or anti-ableist with ally terms had 0 hits. Our findings show many gaps in the coverage of allies and allyship in relation to disabled people especially around the barriers, stressors, and burnout that authentic allies of disabled people can face. These gaps should be filled given that disabled people need allies and that there are many challenges for being an authentic disabled or non-disabled ally of disabled people.

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Experiences of autistic people in supported employment in France: a participatory research project

Dachez,

Seksek,

Ete

et al. 2024

AIA

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Purpose The employment rate of autistic people is low, and they are often employed in low-paying jobs or in jobs involving tasks that fall short of their skills and competence. To address this situation, the individual placement and support method (IPS) offers promising perspectives for personalized and long-term support measures. This evidence-based method has produced positive results in several countries. IPS has been used in France only since 2016. This paper aims to examine the experience of autistic people in France who have benefitted from supported employment measures. Design/methodology/approach Nineteen autistic adults in France took part in semistructured interviews. Interview questions focused on work and measures to support employment. The authors analysed the interviews using reflexive thematic analysis, within the paradigm of critical realism. The authors adopted a participatory approach; the project was led by an autistic researcher and autistic individuals were included at all stages. Findings This study identified six primary themes and three subthemes across the data: (1) The uphill battle to obtain adjustments in the workplace; (2) insufficient knowledge of autism; (2.1) explaining again and again: the educative burden; (3) the challenge of making oneself heard; (3.1) when the entourage steps in; (4) support measures as material assistance and reassurance; (4.1) between benevolence and condescension; (5) organizational factors that affect the quality of support; and (6) personal and professional life are closely intertwined. Originality/value This research provides a better understanding of how autistic people experience supported employment in France and highlights ways to improve it. Job coaches play a crucial role in offering practical help and reassurance, and their efforts to nurture an active personal life are perceived positively. However, supported employment also carries the risk of limiting autistic individuals' capacity for action and causing several difficulties if job coaches are not well-informed about autism, do not reflect on their own attitudes, do not assist in obtaining necessary accommodations and if there are organizational problems leading to a lack of resources.

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Disabled People’s Experiences of the Coronavirus Pandemic: A Call to Action for Social Change

Cited by 3 publications

References 20 publications

Who cares about the carers? A call to action on behalf of mothers of disabled children

Who cares about the carers? A call to action on behalf of mothers of disabled children

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Experiences of autistic people in supported employment in France: a participatory research project

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