Disagreement between parent and adolescent reports of functional impairment

Kramer, Teresa L.; Phillips, Susan D.; Hargis, Michael B.; Miller, Terri L.; Burns, Barbara J.; Robbins, James M.

doi:10.1111/j.1469-7610.2004.00217.x

Cited by 85 publications

(78 citation statements)

References 44 publications

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“…Not only is the perceived value of an intervention or service dependent on who is asked, but some biases in the overall literature imply that certain information about interventions and services is valued more than others. Regarding the former, our satisfaction data, for example, noted that adults (parents and teachers) often rated interventions better than CYP, a finding that has been observed elsewhere, 206 and in both our satisfaction and qualitative data, there was evidence that CYP did not agree among themselves about the value of a particular intervention or which specific components were the most valuable to them.…”

Section: Different Perspectivessupporting

confidence: 76%

Developing a model of mental health self-care support for children and young people through an integrated evaluation of available types of provision involving systematic review, meta-analysis and case study

Pryjmachuk

Elvey

Kirk

et al. 2014

Health Services and Delivery Research

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BackgroundThe mental health of children and young people (CYP) is a major UK public health concern. Recent policy reviews have identified that service provision for CYP with mental health needs is not as effective, responsive, accessible or child-centred as it could be. Following on from a previous National Institute for Health Research (NIHR) study into self-care support for CYP with long-term physical health needs, this study explored self-care support’s potential in CYP’s mental health.ObjectivesTo identify and evaluate the types of mental health self-care support used by, and available to, CYP and their parents, and to establish how such support interfaces with statutory and non-statutory service provision.DesignTwo inter-related systematic literature reviews (an effectiveness review with meta-analysis and a perceptions review), together with a service mapping exercise and case study.SettingGlobal (systematic reviews); England and Wales (mapping exercise and case study).Participants (case study)Fifty-two individuals (17 CYP, 16 family members and 19 staff) were interviewed across six sites.Main outcome measures (meta-analysis)A measure of CYP’s mental health symptomatology.Data sources (literature reviews)MEDLINE, Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycINFO, All Evidence-Based Medicine (EBM) Reviews, Applied Social Sciences Index and Abstracts (ASSIA) and Education Resources Information Center (ERIC).Review methodsTitles and abstracts of papers were screened for relevance then grouped into studies. Two independent reviewers extracted data from studies meeting the inclusion criteria. A descriptive analysis and meta-analysis were conducted for the effectiveness review; descriptive analyses were conducted for the perceptions review. These analyses were integrated to elicit a mixed-methods review.ResultsSixty-five of 71 included studies were meta-analysable. These 65 studies elicited 71 comparisons which, when meta-analysed, suggested that self-care support interventions were effective at 6-month [standardised mean difference (SMD) = −0.20; 95% confidence interval (CI) −0.28 to −0.11] and 12-month (SMD = −0.12; 95% CI −0.17 to −0.06) follow-ups. However, judged against Cochrane criteria, the studies were mostly low quality. Key elements of self-care support identified in the perceptions review were the acquisition of knowledge and skills, peer support and the relationship with the self-care support agent; CYP also had different perceptions from adults about what is important in self-care support. The mapping exercise identified 27 providers of 33 self-care support services. According to the case study data, effective self-care support services are predicated on flexibility; straightforward access; non-judgemental, welcoming organisations and staff; the provision of time and attention; opportunities to learn and practise skills relevant to self-care; and systems of peer support.ConclusionsMental health self-care support interventions for CYP are modestly effective in the short to medium term. Self-care support can be conceptualised as a process which has overlap with ‘recovery’. CYP and their families want choice and flexibility in the provision of such interventions and a continued relationship with services after the nominal therapy period. Those delivering self-care support need to have specific child-centred attributes.Future workFuture work should focus on under-represented conditions (e.g. psychosis, eating disorders, self-harm); the role of technology, leadership and readiness in self-care support; satisfaction in self-care support; the conceptualisation of self-care support in CYP’s mental health; and efficacy and cost-effectiveness.Study registrationPROSPERO number (for the effectiveness review) CRD42012001981.FundingThe NIHR Health Services and Delivery Research programme.

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Section: Different Perspectivessupporting

confidence: 76%

Developing a model of mental health self-care support for children and young people through an integrated evaluation of available types of provision involving systematic review, meta-analysis and case study

Pryjmachuk

Elvey

Kirk

et al. 2014

Health Services and Delivery Research

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“…The ramifications of this study also indicate that the self-reported need and severity level of emotional distress of URM should be taken seriously in the decision-making process for treatment or intervention. Disagreement between informants should not be ignored, but addressed as it can be crucial information to treatment (i.e., maladaptive avoidance behavior; relationship discord) (Kramer et al, 2004;Ferdinand et al, 2004).…”

Section: Methodological Challengesmentioning

confidence: 99%

“…The help-seeking of children and adolescents occurs frequently in the social network in which they live and is usually not initiated by them (Srebink et al, 1996), but by their parents/caretakers. Many studies have found that parents play a crucial role (more important than the adolescent self) in adolescents MHC utilization (e.g., Kramer et al, 2004, Yeh & Weisz, 2001. There is often a discrepancy between the need that adolescents report and the need that parents/ teachers report concerning MHC (Leaf et al, 1996).…”

mentioning

confidence: 99%

Factors Associated with Mental Health Service Need and Utilization among Unaccompanied Refugee Adolescents

Bean

Eurelings-Bontekoe

Mooijaart

et al. 2006

Adm Policy Ment Health

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This study is the first to address the need for mental health care (MHC) and the patterns of utilization of MHC services among Unaccompanied Refugee Minors (URM). Information concerning the well being, mental health need, and utilization of services of URM was collected from three informants, the minors themselves (n = 920), their legal guardians (n = 557), and their teachers (n = 496). The well-being, need and utilization of MHC services of URM was compared with those of a representative Dutch adolescent sample (n = 1059). The findings of this study indicated that URM that report a mental health care need (57.8%) also report higher levels of emotional distress than Dutch adolescents who report a similar need for MHC (8.2%). In addition, guardians and teachers detect emotional distress and mental health care needs in only a small percentage (30%) of URM. The referral of URM to mental health care services does not appear to be driven by the reported needs of the URM, but by the need and emotional distress as observed and perceived by guardians. This resulted in the fact that 48.7% of the URM total sample reported that their need for mental health care was unmet.

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“…Two concepts are used regarding the potential consequences or the impact of the child's psychological symptoms: a) functional impairment, which refers to the consequences for the child's performance of everyday life functions (Üstun & Chatterji, 1997); and b) family burden, which refers to the consequences for family members (Angold et al, 1998). These concepts are especially relevant for treatment access and planning and for the monitoring of outcomes (Kramer et al, 2004). Angold, Costello, Farmer, Burns, and Erkanli (1999) and Angold et al (1998) reported, on the one hand, that children with functional impairment associated with psychological symptoms were in need of services and should be considered as suffering from a psychiatric disorder, and on the other, that perceived parental burden is a strong predictor of use of mental health services.…”

Section: Introductionmentioning

confidence: 99%

Deterioro funcional asociado a los síntomas del trastorno negativista desafiante en niños y niñas de 3 a 7 años de la población general

et al. 2014

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Título: Deterioro funcional asociado a los síntomas del trastorno negativista desafiante en niños y niñas de 3 a 7 años de la población general. Resumen: Objetivo: Explorar si los síntomas y el diagnóstico de Trastorno Negativista Desafiante (TND), según los criterios diagnósticos DSM-IV, se asocian al mismo nivel de deterioro funcional en niños y niñas de la población general en los primeros años escolares. Método: Se aplicó un cuestionario de cribado a una muestra de 852 escolares de tres a siete años de edad. Un total de 251 familias fueron evaluadas con entrevista diagnóstica y con las medidas de deterioro funcional. Resultados: Los síntomas de TND y el diagnóstico son igualmente prevalentes en los niños y en las niñas, pero las niñas de entre 3 y 5 años presentaron una mayor prevalencia de diagnós-tico subumbral de TND. No hubo diferencias significativas entre niños y niñas en el uso de servicios de salud, ni en el tratamiento recibido, ni en la carga familiar asociada a los síntomas o al diagnóstico de TND. Aunque el diagnóstico de TND no se asoció a un mayor deterioro funcional por sexo, los síntomas individuales y el diagnóstico subumbral se asociaban con mayor deterioro funcional en los niños que en las niñas. Conclusión: La "oposicionalidad" pueden estar midiendo variables diferentes en niños y en niñas, y esta posibilidad se debe tener en cuenta para identificar correctamente este problema en cada sexo. Palabras clave: Deterioro funcional; niños preescolares y escolares; sexo; trastorno negativista desafiante. Abstract:Objective: To explore whether the symptoms and diagnosis of Oppositional Defiant Disorder (ODD), as defined in the DSM-IV, are equally impairing for girls and boys from the general population in the early school years. Method: A sample of 852 three to seven-year-old schoolchildren were screened out for a double-phase design. A total of 251 families were assessed with a diagnostic interview and with measures of functional impairment. Results: ODD symptoms and diagnosis were equally prevalent in boys and girls, but three-to five-year-old girls had a higher prevalence of subthreshold ODD. There were no significant differences between boys and girls in the impact on use of services, treatment received and family burden associated with ODD symptoms and diagnosis. Although diagnosis of ODD was not associated with higher functional impairment by sex, individual symptoms and subthreshold diagnosis were more impairing for boys than for girls. Conclusion: Oppositionality may be measuring different things for boys and girls, and this possibility must be taken into account with a view to the correct identification of this problem in each sex.

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Disagreement between parent and adolescent reports of functional impairment

Abstract: Implications for diagnosis, treatment planning and outcomes measurement are discussed.

Cited by 85 publications

References 44 publications

Developing a model of mental health self-care support for children and young people through an integrated evaluation of available types of provision involving systematic review, meta-analysis and case study

Developing a model of mental health self-care support for children and young people through an integrated evaluation of available types of provision involving systematic review, meta-analysis and case study

Factors Associated with Mental Health Service Need and Utilization among Unaccompanied Refugee Adolescents

Deterioro funcional asociado a los síntomas del trastorno negativista desafiante en niños y niñas de 3 a 7 años de la población general

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