Disclosure as a Positive Resource: The Lived Experiences of HIV-Positive Adolescents in Botswana

Midtbø, Vivian; Daniel, Marguerite

doi:10.1007/978-3-319-29936-5_17

Cited by 2 publications

(4 citation statements)

References 35 publications

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“…Knowing self-status helped them to feel more responsible and take care of their and others health too. This finding is similar with studies from Botswana, South Africa, and Puerto Rico where similar population groups have depicted the same self-disclosure timing and benefit from it [ 7 , 22 – 24 ]. When it is said self-disclosure it is important to make it in plan than leaving children to learn about their HIV status incidentally when they visit health care facilities for other medical services or leave them to learn by their own or hearing from somebody else.…”

Section: Discussionsupporting

confidence: 89%

“…Regarding the sources of supports of youth with perinatally acquired HIV; families and care givers take the lion share. Studies from Botswana and South Africa also reported same finding that family care is an important source of support for adolescents with perinatally acquired HIV [ 22 , 28 ]. The health care services and the service providers’ approach were other major sources of supports reported by almost all study participants.…”

Section: Discussionmentioning

confidence: 86%

“…For example, care givers of children with perinatally acquired HIV, from Addis Ababa and Oromia Regional State, have also depicted that their children have liked and benefited from peer supporting group [ 30 ]. Another study from Botswana also revealed similar program in which adolescents with perinatally acquired HIV enjoy and appreciate such programs [ 22 ].…”

Section: Discussionmentioning

confidence: 99%

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“I want to perform and succeed more than those who are HIV-seronegative” Lived experiences of youth who acquired HIV perinetally and attend Zewditu Memorial Hospital ART clinic, Addis Ababa, Ethiopia

2021

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Background In Ethiopian Human Immunodeficiency Virus (HIV) prevention program one of the focusing areas is prevention of mother-to-child transmission and decreasing morbidity and mortality among those who already acquired it. However, the needs and the sexual behavior of children who acquired HIV perinatally was not given due attention. Therefore, we conducted this study with the aim of exploring the lived experiences of youth who acquired HIV perinatally to contribute to HIV prevention and control program. Methods We conducted a qualitative study using a phenomenological approach from March to May 2018 among 16 purposively selected youth who were infected with HIV vertically and receive ART services at Zewditu Memorial Hospital, Addis Ababa, Ethiopia. They were recruited based on their willingness after obtaining written informed consent and assent. Data were audio taped, transcribed verbatim in Amharic and later translated to English, and coded using Open Code version 4.02 software. Findings were summarized under four themes by applying interpretative phenomenological analysis. Findings Seven males and nine females, aged 16 to 22 years have participated in the study. These youth reported as they had support from families and ART clinics, while pill-load, and fear of stigma are some of challenges they have faced, especially majorities don’t want to disclose their status because of fear of stigma and discrimination. Half of them have ever had sexual relations usually with a seronegative partner and most of these had their first sex in their17-18 years of age. Unsafe sex was common among them where four girls reported to have had unprotected sex with their seropositive or seronegative sexual partners. Most wish to have purposeful life and love mate of the same serostatus but also fear they may remain alone. Conclusion Youth who had acquired HIV from parents are challenged due to their serostatus and were not sure what type of life they may have in the future. They were also not comfortable in disclosing their serostatus and also engaged in unsafe sexual relation. This calls for an urgent intervention among HIV infected youth and their families; health care providers, and young people in general to halt HIV transmission. Special attention should be given on sexual behavior of all young people (10–24) and in disclosure of HIV status to children and life skills education to cop-up with stigma and discrimination.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 86%

Section: Discussionmentioning

confidence: 99%

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“I want to perform and succeed more than those who are HIV-seronegative” Lived experiences of youth who acquired HIV perinetally and attend Zewditu Memorial Hospital ART clinic, Addis Ababa, Ethiopia

2021

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“…The majority of studies included in this review were conducted in South Africa ( n = 5) and Uganda ( n = 5). Most of the included studies used qualitative designs ( n = 12) (Petersen et al, 2010 ; Midtbø, 2012 ; Mburu et al, 2014 ; Bernays et al, 2015 ; Shabalala et al, 2016 ; Woollett et al, 2016 ; Zanoni et al, 2019 ; Bakeera-Kitaka et al, 2020 ; Govindasamy et al, 2020 ; Kimera et al, 2020 ; Gitahi et al, 2021 ; Rencken et al, 2021 ); with only three quantitative [cross-sectional (Gitahi et al, 2021 ), longitudinal randomized clinical trial (Nabunya et al, 2020 ), secondary analysis (Nöstlinger et al, 2015 )] and two mixed-methods study (Dow et al, 2018 ; Kaunda-Khangamwa et al, 2020 ). This may be indicative of a lack of mental wellness instruments for ALHIV, or it may reflect the research trends focusing on measuring the prevalence of mental health problems in ALHIV (Kidia et al, 2015 ; Vreeman et al, 2017 ; Laurenzi et al, 2020 ).…”

Section: Resultsmentioning

confidence: 99%

Rethinking mental health wellness among adolescents living with HIV in the African context: An integrative review of mental wellness components

Orth

Wyk

2022

Front. Psychol.

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ObjectiveAdolescents living with HIV (ALHIV) are considered to be at heightened risk for developing mental health problems in comparison to their peers due to the burden of living with a stigmatized condition and managing a chronic condition. Poorer mental health outcomes among ALHIV are associated with lower rates of adherence to anti-retroviral therapy (ART). It is necessary to improve mental wellness among ALHIV as this acts as a buffer against developing mental health problems which, if left untreated can evolve into mental health disorders. Research on mental wellness concepts among ALHIV is underdeveloped which is associated with a lack of appropriate measures of mental wellness. We conducted an integrative review to conceptualize mental wellness and consider the critical components for measuring mental wellness in ALHIV.MethodAn integrative review of published literature focusing on mental wellness of ALHIV in the African context was conducted. The process was guided by the PRISMA operational steps. As part of our problem identification phase, we drew on findings from a previous systematic review of mental wellness instruments and a qualitative photovoice study on exploring the experiences of ALHIV, to develop an initial framework of 13 mental wellness concepts and behaviors which informed the search strategy.ResultsThe review included 17 articles from which we identified six mental wellness concepts: Connectedness, Sense of Coherence (SOC), Self-esteem, Self-acceptance, Hope for the Future and Spirituality as well as six behaviors facilitating mental wellness: Coping, Resilience, Purpose in Life (goals), Self-efficacy, Adherence Self-efficacy, and Leisure Activities. All of these concepts and behaviors have been noted in our previous research (systematic review and qualitative work), with the exception of adherence self-efficacy. Based on the findings from this review and our previous work, we adapted the Salutogenic Model of Health developed by Antonovsky in 1987, to propose a Salutogenic Model of Mental Wellness (SMoMW) for ALHIV in the African context. This SMoMW may be used to develop an age and culturally appropriate measure of mental wellness for ALHIV.ConclusionThe findings from this review used to conceptualize mental wellness among ALHIV which can be used to develop a measurement of mental wellness.

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Disclosure as a Positive Resource: The Lived Experiences of HIV-Positive Adolescents in Botswana

Cited by 2 publications

References 35 publications

“I want to perform and succeed more than those who are HIV-seronegative” Lived experiences of youth who acquired HIV perinetally and attend Zewditu Memorial Hospital ART clinic, Addis Ababa, Ethiopia

“I want to perform and succeed more than those who are HIV-seronegative” Lived experiences of youth who acquired HIV perinetally and attend Zewditu Memorial Hospital ART clinic, Addis Ababa, Ethiopia

Rethinking mental health wellness among adolescents living with HIV in the African context: An integrative review of mental wellness components

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