Abstract:AimAdvances in technology generate new opportunities to develop e‐health tools to help individuals in self‐management by assessing symptoms of illness and its relation to treatments. Self‐management is central when living with primary immunodeficiency diseases. The aim was to explore the experiences of people living with primary immunodeficiency, who used a pilot version of the web‐based health diary.DesignExplorative design.MethodsIn total, 16 participants (median age 59) attended one of three focus groups. I… Show more
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