Discovering untapped relationship potential with patients in telehealth: a qualitative interview study

Heckemann, Birgit; Wolf, Axel; Ali, Lilas; Sonntag, Steffen Mark; Ekman, Inger

doi:10.1136/bmjopen-2015-009750

Cited by 39 publications

(41 citation statements)

References 28 publications

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“…Nonetheless, some studies reviewed demonstrated that survivors were able to develop trusting relationships with HCPs via the telehealth medium [30,31,40,49], and other studies of telehealth interventions have demonstrated the capacity for such relationships to develop [69-71]. In addition, cancer survivors found they could more easily raise concerns with their HCP remotely, concerns that they would otherwise feel uncomfortable to discuss in person [40,47].…”

Section: Discussionmentioning

confidence: 99%

Cancer Survivors’ Experience With Telehealth: A Systematic Review and Thematic Synthesis

Cox¹,

Lucas²,

Marcu³

et al. 2017

J Med Internet Res

274

261

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BackgroundNet survival rates of cancer are increasing worldwide, placing a strain on health service provision. There is a drive to transfer the care of cancer survivors—individuals living with and beyond cancer—to the community and encourage them to play an active role in their own care. Telehealth, the use of technology in remote exchange of data and communication between patients and health care professionals (HCPs), is an important contributor to this evolving model of care. Telehealth interventions are “complex,” and understanding patient experiences of them is important in evaluating their impact. However, a wider view of patient experience is lacking as qualitative studies detailing cancer survivor engagement with telehealth are yet to be synthesized.ObjectiveTo systematically identify, appraise, and synthesize qualitative research evidence on the experiences of adult cancer survivors participating in telehealth interventions, to characterize the patient experience of telehealth interventions for this group.MethodsMedline (PubMed), PsychINFO, Cumulative Index for Nursing and Allied Health Professionals (CINAHL), Embase, and Cochrane Central Register of Controlled Trials were searched on August 14, 2015, and March 8, 2016, for English-language papers published between 2006 and 2016. Inclusion criteria were as follows: adult cancer survivors aged 18 years and over, cancer diagnosis, experience of participating in a telehealth intervention (defined as remote communication or remote monitoring with an HCP delivered by telephone, Internet, or hand-held or mobile technology), and reporting qualitative data including verbatim quotes. An adapted Critical Appraisal Skill Programme (CASP) checklist for qualitative research was used to assess paper quality. The results section of each included article was coded line by line, and all papers underwent inductive analysis, involving comparison, reexamination, and grouping of codes to develop descriptive themes. Analytical themes were developed through an iterative process of reflection on, and interpretation of, the descriptive themes within and across studies.ResultsAcross the 22 included papers, 3 analytical themes emerged, each with 3 descriptive subthemes: (1) influence of telehealth on the disrupted lives of cancer survivors (convenience, independence, and burden); (2) personalized care across physical distance (time, space, and the human factor); and (3) remote reassurance—a safety net of health care professional connection (active connection, passive connection, and slipping through the net). Telehealth interventions represent a convenient approach, which can potentially minimize treatment burden and disruption to cancer survivors’ lives. Telehealth interventions can facilitate an experience of personalized care and reassurance for those living with and beyond cancer; however, it is important to consider individual factors when tailoring interventions to ensure engagement promotes benefit rather than burden.ConclusionsTelehealth interventions can provide cancer sur...

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Section: Discussionmentioning

confidence: 99%

Cancer Survivors’ Experience With Telehealth: A Systematic Review and Thematic Synthesis

Cox¹,

Lucas²,

Marcu³

et al. 2017

J Med Internet Res

274

261

View full text Add to dashboard Cite

show abstract

“…For example, in a qualitative study led with interviews, it was observed that non-video telehealth technologies fostered the sharing of personal information and a non-judgemental attitude in patients, but each contact between a telehealth professional and a patient required a skilful negotiation of the relationship to engage the patient as an "expert of their own illness". 51 In addition, it has been pointed out recently that HF selfmanagement may be associated with reduced hospital admissions only in a subgroup of patients with HF (i.e. patients under 65 years of age), whereas in other subgroups (patients with moderate or severe depression), involvement in self-management may be even associated with a reduced survival rate.…”

Section: Patient Participationmentioning

confidence: 99%

Value of Telemonitoring and Telemedicine in Heart Failure Management

Gensini

Alderighi²,

Rasoini³

et al. 2017

Cardiac Failure Review

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DevicesAccess at: www. CFRjournal.com Telehealth is a multiform term embracing the applications of telematics to medicine, in order to enable diagnosis and/or treatment remotely through a set of communication tools, including phones, smartphones and mobile wireless devices, with or without a video connection.1 Until a few years ago, digital applications in medicine were restricted to the use of data obtained from electronic health records (EHR), but, in more recent times, the technological context has notably expanded: the number of existing internet-connected mobile devices has roughly doubled every five years. This phenomenon will probably lead to the simultaneous operability of around 50 billion devices by 2020. 2 SensorsSensors are tools that are capable of detecting, recording and responding to specific inputs coming from a physical setting (e.g. a patient's vital signs) and are increasingly embedded in smartphones and other mobile devices. Recording and quantifying biological variables by means of sensors is generating large digital datasets that are suitable for transmission in real-time to healthcare and non-healthcare professionals. Computer applications arising from these phenomena are potentially numberless and will probably drive changes in both doctor-patient relationships and healthcare economic scenarios. Several insurance companies have already introduced better money premiums for customers who demonstrate regular use of smartphone applications aimed at illness prevention. 1 Some issues that will need to be addressed in the near future concern patient privacy and data safety. 3 As the practice of selling personal data to third parties for commercial purposes has come to light, increased attention has focused on data security of digital platforms and mobile devices. 4,5 Several reports published recently have revealed a concerning lack of details regarding the way that personal data is managed by telehealth application developers. 5 TheGlobal Privacy Enforcement Network has disclosed that around 60 % of the applications they evaluated exhibited criticisms regarding privacy issues, as they did not properly inform users how their personal data would be used and the number of personal questions asked was considered inappropriate. 6 Heart Failure EpidemiologyHeart failure (HF) is a common clinical syndrome associated with high morbidity and mortality. It is a major public health problem, with a prevalence of over 5.8 million people affected in the US, and over 26 million people worldwide. 7 In the US and in Europe, HF prevalence ranges from 1.1 % to 2.2 % in the general population. Most of the HF burden is situated in people aged over 65 years, who account for more than 80 % of deaths and prevalent cases in the US and in Europe. 8,9The lifetime probability of developing HF is believed to be one in five.Notwithstanding the historical equation that attributes HF genesis to a reduced left ventricular ejection fraction (LVEF), it has been shown that, in real medical practice, HF with preserved LVEF is ...

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“…Telerehabilitation consultations also encourage effective communication between patients and clinicians, providing patients with a sense of personalized, undivided focus, and attention (Hinman et al., ; Lawford et al., 2018a, 2018b) which facilitates delivery of person‐centered care. In addition, the anonymity of telephone consultations has been found to encourage the sharing of personal information and development of a non‐judgmental attitude during consultations (Heckemann, Wolf, Ali, Sonntag, & Ekman, ). This counters common misconceptions that telerehabilitation is an “impersonal” mode of service delivery (Kayyali et al., ) and instead suggests that the conversational nature of consultations can facilitate an increased emphasis on behavior change support and exercise adherence.…”

Section: Technology Provides Opportunities For Remotely‐delivered Sermentioning

confidence: 99%

Harnessing technology to deliver care by physical therapists for people with persistent joint pain: Telephone and video‐conferencing service models

Hinman

Lawford

Bennell

2018

J Appl Biobehavioral Res

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Purpose The burden of musculoskeletal conditions, particularly osteoarthritis (OA), is expected to increase in coming decades as the world's population ages, and obesity rates continue to rise. Self‐management via lifestyle interventions, such as exercise and physical activity, is integral to minimizing pain and maintaining physical function, yet access to qualified health professionals for evidence‐based advice and support is difficult for many people. This article discusses how technology provides new opportunities for delivering physiotherapy services remotely to people with persistent joint pain, through telephone, and internet‐mediated video conferencing. Methods The evidence for effectiveness of such service models is reviewed. Key challenges to implementation are discussed, and future directions for research in the field are highlighted. Results There is emerging evidence that the provision of care via telephone and internet‐mediated video technologies is effective for, and acceptable to, people with OA. Advantages include its convenience and accessibility, as well as the “hands‐off” nature of consultations. Challenges include patient safety and privacy and workforce willingness and capacity to deliver care via non‐traditional methods. Conclusions Using technology to deliver physiotherapy services to people with OA is feasible and acceptable to users; however, further research is required to expand the evidence‐base for remotely‐delivered physiotherapy service models.

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Discovering untapped relationship potential with patients in telehealth: a qualitative interview study

Abstract: Objectives: To explore factors that influence relationship building between telehealth professionals and patients with chronic illness over a distance, from a telehealth professional's perspective.

Cited by 39 publications

References 28 publications

Cancer Survivors’ Experience With Telehealth: A Systematic Review and Thematic Synthesis

Cancer Survivors’ Experience With Telehealth: A Systematic Review and Thematic Synthesis

Value of Telemonitoring and Telemedicine in Heart Failure Management

Harnessing technology to deliver care by physical therapists for people with persistent joint pain: Telephone and video‐conferencing service models

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