Discussion on Privacy Issues and Information Security in the Internet of Things

A Systematic Literature Review of Ethical Challenges Related to Medical and Public Health Data Sharing in China

“…Of the 61 articles, 10 document analysis articles had focused on the construction of unique data sharing platforms (Chen et al, 2017; Guo & Du, 2018; He, 2010; Hu et al, 2016; Li et al, 2017; Li et al, 2019; Wang, 2017; Wang et al, 2017; Xu & Cui, 2017; Xu & Huang, 2017). Ethical issues concerning medical and public data sharing were strongly embedded in the data sharing platforms.…”

“…This causes a lack of corresponding operational and incentive mechanisms to integrate data from different platforms. These articles demonstrated the development of regulations to facilitate the harmonization of these platforms and the creation of practical solutions to be used willingly by stakeholders (Chen et al, 2017; Li et al, 2017; Xu & Cui, 2017; Xu & Huang, 2017). According to a study, the administering agency should develop and endorse solid sharing plans and train medical informatics talents (Xu & Cui, 2017).…”

“…Another vital concern is privacy protection. Currently, the technologies and models to facilitate the dissemination of data without compromising privacy are available in China (Chen et al, 2017; He, 2010; Li et al, 2017). A trade-off may be required between data accessibility and user protection that relies on stakeholder-informed principles and policies, which could ensure that the requirements and concerns of the data subjects are addressed (Guo & Du, 2018).…”

“…To protect patients’ privacy, the data system operates in a closed network environment and lacks an interface for data exchange with other hospitals (Li et al, 2017; Li et al, 2020; Liu et al, 2013; Xu, 2020; Zhou et al, 2011). Several studies have reported that the management center could not fulfil its function without a practical and applicable data sharing platform (Cao, 2017; Lin, 2017; Liu, 2017; Qi, 2017; Wang et al, 2017).…”

“…Maximizing public health benefits and social value is the fundamental justification for data sharing. However, numerous studies have reported that various challenges are involved in complete mining and analysis of data sets, combination of data sets from multiple sites, and development of new research collaborations based on data sharing (Hu et al, 2016; Li et al, 2017; Liang, 2018; Lin, 2017; Na, 2016). The evolving landscape of medical and public health data also challenges the current governance frameworks for privacy protection because of a lack of specific law or guidance on using and sharing biomedical data in China (Ning & Ru-Wei, 2019; Zhang et al, 2018).…”