Disease Disclosure Patterns Among Breast Cancer Patients

Henderson, Brent N.; Davison, Kathryn P.; Pennebaker, James W.; Gatchel, Robert J.; Baum, Andrew

doi:10.1080/08870440290001520

Cited by 44 publications

(41 citation statements)

References 33 publications

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“…Previous research on breast cancer survivors has shown that failure to disclose is associated with less social support, more unsupportive interactions, and decreased levels of emotional well-being [28]. In a study of 299 breast cancer patients conducted by Henderson et al [22], 7% reported no disclosure other than to a spouse or doctor, and 20-30% reported not disclosing to specific networks of friends and family members. The investigators found that willingness to disclose appeared to be based on attitudes about disclosure [22].…”

Section: Emotion Work: Breast Cancer Self-disclosure and Supportmentioning

confidence: 99%

“…In a study of 299 breast cancer patients conducted by Henderson et al [22], 7% reported no disclosure other than to a spouse or doctor, and 20-30% reported not disclosing to specific networks of friends and family members. The investigators found that willingness to disclose appeared to be based on attitudes about disclosure [22]. Most participants had no difficulties telling others about their illness.…”

Section: Emotion Work: Breast Cancer Self-disclosure and Supportmentioning

confidence: 99%

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Emotion work: disclosing cancer

Yoo

Aviv

Levine

et al. 2009

Support Care Cancer

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Introduction Breast cancer remains one of the leading causes of morbidity and mortality for all women in the US. Current research has focused on the psychological relationship and not the sociological relationship between emotions and the experience of breast cancer survivors. This paper focuses on the emotion work involved in self-disclosing a breast cancer diagnosis in a racially or ethnically diverse population. Methods The participants (n=176) selected for this study were African American, Asian American, Latina, and Caucasian women who had been diagnosed with stages 0, I, or II breast cancer within the past 4 years. They completed an in-depth qualitative interview on self-disclosure and social support. Findings The results indicate self-disclosing was done at a time when important decisions about treatment needed to be made. Different strategies for disclosure were used, all of which entailed emotion work. Respondents talked about the various elements of emotion work in the disclosure process including: managing others' worry, protecting and soothing others, and educating and instructing others.. For many respondents, disclosure without calculating emotional management meant opening up to others which meant support and an increase in emotional resources. Conclusions The findings in this paper have implications for women with breast cancer and demonstrate the need for women to be involved in honest disclosure and less emotional management of others' feelings. There is also a need for education about the nature of the cancer experience among people who are not well educated about the treatment and consequences of cancer. This need may be even stronger among racial and ethnic minorities.

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Section: Emotion Work: Breast Cancer Self-disclosure and Supportmentioning

confidence: 99%

Section: Emotion Work: Breast Cancer Self-disclosure and Supportmentioning

confidence: 99%

Emotion work: disclosing cancer

Yoo

Aviv

Levine

et al. 2009

Support Care Cancer

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show abstract

“…This is the first step in help-seeking. Although most cancer patients in the USA tend to disclose their cancer status and worries to significant others (Henderson, Davison, Pennebaker, Gatchel, & Baum, 2002), Asians tend not to talk about their illness status if they take into account others' views. For example, Chinese in Australia tend not to report their cancer status and concerns to their parents if the patients do not want them to be worried or anxious (Yoo, Aviv, Levine, Ewing, & Au, 2010).…”

Section: Introductionmentioning

confidence: 99%

Social disclosure about lymphoedema symptoms: A qualitative study among Japanese breast cancer survivors

Tsuchiya

Horn

Ingham

2014

Psychology, Health & Medicine

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Disclosing illness-related problems is the first step in help-seeking. The aim of this qualitative study was to explore Japanese breast cancer (BC) survivors' decision-making about disclosure of lymphoedema symptoms to people in their social networks. A total of ten women participated in group discussions in Japan. A dual analytic approach, thematic analysis and conceptual analysis, was applied to the transcripts. Two themes (perceived responsibility of social roles within the family and unsupportive reactions to BC from others) affected participants' decision-making. Support programs for Japanese BC survivors who feel unable to disclose lymphoedema symptoms to family members are suggested.

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“…This growth can also occur in a variety of psychological areas such as an enhanced knowledge base, increased acquisition of coping skills, and a more positive self-concept (Carver & Scheier, 1998) and has become a vital component in many theories of the stress and coping process (see e.g., Antonovsky, 1987;Janoff-Bulman, 1992;Taylor, 1983;Tedeschi & Calhoun, 1996). Beyond these theoretical frameworks there is empirical evidence that suggests individuals are changed in profound ways after they experience stressors (e.g., Folkman, 1997;Folkman & Moskowitz, 2000;Henderson, Davison, Pennebaker, Gatchel, & Baum, 2002;O'Leary, 1998;Siegel & Schrimshaw, 2000). Empirical research has shown that growth and related constructs, such as resilience, serve as protective factors for adolescents experiencing stress (Aldwin & Sutton, 1998;Oltjenbruns, 1991;Salter & Stallard, 2004), and particularly minority adolescents (Garmezy, 1991;Milam et al, 2004;Vaughn & Roesch, 2003).…”

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confidence: 99%

Developing coping typologies of minority adolescents: A latent profile analysis

Aldridge

Roesch

2007

Journal of Adolescence

109

103

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Latent profile analysis (LPA) was used to develop a coping typology of minority adolescents (M = 15.5 yrs). A multiethnic sample (n = 354) was recruited from a program aimed at serving low-income students. LPA revealed three distinct coping profiles. The first comprised adolescents who used a number of specific coping strategies at a low level (Low Generic Copers). The second comprised adolescents who emphasized active/approach strategies (e.g., planning; Active Copers). The third comprised adolescents who emphasized avoidant/passive strategies (e.g., substance abuse; Avoidant Copers). Active Copers experienced significantly less depression and more stress-related growth than Low Generic Copers. Low Generic Copers experienced significantly less depression than Avoidant Copers but also significantly less stress-related growth than Active Copers. Discussion focuses on integrating the current typology with traditional coping taxomonies.

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Disease Disclosure Patterns Among Breast Cancer Patients

Cited by 44 publications

References 33 publications

Emotion work: disclosing cancer

Emotion work: disclosing cancer

Social disclosure about lymphoedema symptoms: A qualitative study among Japanese breast cancer survivors

Developing coping typologies of minority adolescents: A latent profile analysis

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