Disparities in Diagnosis and Access to Health Services for Children with Autism: Data from the National Survey of Children's Health

Abstract

Disparities in the prevalence and parent-reported severity of autism and in access to health care were found for children with autism. Programs for children in general (e.g., universal screening for autism) and programs that target traditionally underserved groups of children, their families, and their health care providers should be tested and implemented to optimize case finding of children with autism and to eliminate disparities in access to care and to early intervention.

Brief Report: Prevalence of Co-occurring Epilepsy and Autism Spectrum Disorder: The U.S. National Survey of Children’s Health 2011–2012

“…There may be subjectivity in the way caregivers report the presence and severity of autism based on race, ethnicity, socioeconomic status and access to services (Liptak et al 2008). However, NSCH estimates of ASD prevalence have been similar in magnitude to estimates obtained from the Autism and Developmental Disabilities Monitoring Network (ADDM).…”

Observed and Parent-Report Measures of Social Communication in Toddlers With and Without Autism Spectrum Disorder Across Race/Ethnicity

“…Data from the National Survey of Children's Health revealed that most of the research emerging on social communication in toddlers has used relatively homogenous samples of primarily non-Hispanic White children (Liptak et al, 2008). Harris, Barton, and Albert (2014) reviewed research on currently used diagnostic measures to see if the researchers included diverse samples and considered cultural differences.…”

Caregiver-Mediated Intervention for Low-Resourced Preschoolers With Autism: An RCT

“…6,7 Of concern is that once identified, these families often report more severe ASD symptoms in their children. 8,9 Lower-resourced families also experience otherbarrierstoparticipationinresearch. Most studies occur near large autism centers, often in clinical settings.…”