Disparities in Familiarity With Developmental Disabilities Among Low-Income Parents

Zuckerman, Katharine E.; Chavez, Alison E.; Murillo, Carolina Regalado; Lindly, Olivia J.; Reeder, Julie A.

doi:10.1016/j.acap.2018.06.011

Cited by 23 publications

(18 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…He said, ''A-u-t-i-s-m.'' In addition to explaining global differences in recognition of autism symptoms, culture and context may also contribute to within-country differences in autism awareness. A recent study in a low-income sample of families in the USA suggested that compared to white parents racial/ethnic minority parents and especially Latino parents had less familiarity or personal experience with people with developmental disabilities, and were less aware of early signs of developmental disabilities (Zuckerman, Chavez, Murillo, Lindly, & Reeder, 2018). Limited awareness about autism and low mental health literacy may be directly related to the availability, accessibility and acceptability of healthcare professionals, a topic discussed in more detail under level 4 of this framework.…”

Section: Literacy In Mental Health and The Typical Child Developmentamentioning

confidence: 99%

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

2020

View full text Add to dashboard Cite

Autism research is heavily skewed towards western high-income countries. Culturally appropriate screening and diagnostic instruments for autism are lacking in most low-and middle-income settings where the majority of the global autism population lives. To date, a clear overview of the possible cultural and contextual factors that may affect the process of identifying and diagnosing individuals with ASD is missing. This study aims to outline these factors by proposing a conceptual framework. A multidisciplinary review approach was applied to inform the development of the conceptual framework, combining a systematic review of the relevant autism research literature with a wider literature search spanning key texts in global mental health, cultural psychiatry, cross-cultural psychology and intellectual disability research. The resulting conceptual framework considers the identification, helpseeking and diagnostic process at four interrelated levels: i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms, and describes the cultural and contextual factors associated with each of these levels, including cultural norms of typical and atypical behaviour, culture-specific approaches to parenting, mental health literacy, cultural beliefs, attitudes and stigma, as well as the affordability, availability, accessibility and acceptability of services. This framework, mapping out the cultural and contextual factors that can affect the identification, help-seeking and diagnosis of ASD, may function as a springboard for the development of culturally appropriate autism screening and diagnostic instruments, and inform future cross-cultural autism research directions. The framework also has relevance for clinicians and policy makers aiming to improve support for underserved autism populations worldwide. Lay summaryThe vast majority of autism research is conducted in western high-income settings. We therefore know relatively little of how culture and context can affect the identification, helpseeking and diagnosis of autism across the globe. This paper synthesises what is known from the autism research literature and a broader literature and maps out how culture and context may affect i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms.

show abstract

Section: Literacy In Mental Health and The Typical Child Developmentamentioning

confidence: 99%

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

2020

View full text Add to dashboard Cite

show abstract

“…The importance of understanding provider perceptions of the benefits and barriers to ASD tele-assessment extends beyond the immediate and relatively short-term impacts of COVID-19. Delays in accessing ASD-specific diagnostic and intervention services, specifically for underserved and under-resourced populations, were present long before the pandemic (Constantino et al, 2020a, b;Durkin et al, 2017;Wallis et al, 2020;Zuckerman et al, 2017Zuckerman et al, , 2018 and will undoubtedly continue after its cessation without significant, systemic intervention. Telemedicine has the potential for increasing access to care for those families who might otherwise face delays.…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

Transitioning to Telemedicine During COVID-19: Impact on Perceptions and Use of Telemedicine Procedures for the Diagnosis of Autism in Toddlers

Wagner

Weitlauf

Hine

et al. 2021

J Autism Dev Disord

View full text Add to dashboard Cite

The COVID-19 pandemic has increased the use of telemedicine as an avenue to address the need for diagnostic clarification in young children at risk for autism spectrum disorder (ASD). Although preliminary research has supported the use of telemedicine for identifying ASD in toddlers, little is known about the experiences of practitioners attempting direct-tohome tele-assessment. We surveyed diagnostic providers regarding changes in practice behavior in the initial months of the COVID-19 pandemic and their perceptions of ASD tele-assessment. We also examined the use of the TELE-ASD-PEDS, a novel tool for ASD tele-assessment, in response to COVID-19 at seven sites across the country. Results support the clinical acceptability and diagnostic utility of ASD tele-assessment while also highlighting critical avenues of future investigation.

show abstract

“…In addition to explaining global differences in recognition of autism symptoms, culture and context may also contribute to within-country differences in autism awareness. A recent study in a low-income sample of families in the USA suggested that compared to white parents racial/ethnic minority parents and especially Latino parents had less familiarity or personal experience with people with developmental disabilities, and were less aware of early signs of developmental disabilities (Zuckerman, Chavez, Murillo, Lindly, & Reeder, 2018). Limited awareness about autism and low mental health literacy may be directly related to the availability, accessibility and acceptability of healthcare professionals, a topic discussed in more detail under level 4 of this framework.…”

Section: Literacy In Mental Health and The Typical Child Developmentamentioning

confidence: 99%

A conceptual framework for understanding the cultural and contextual factors on autism across the globe

Leeuw¹,

Happé²,

Hoekstra³

2019

Preprint

View full text Add to dashboard Cite

Autism research is heavily skewed towards western high-income countries. Culturally appropriate screening and diagnostic instruments for autism are lacking in most low- and middle-income settings where the majority of the global autism population lives. To date, a clear overview of the possible cultural and contextual factors that may affect the process of identifying and diagnosing individuals with ASD is missing. This study aims to outline these factors by proposing a conceptual framework. A multidisciplinary review approach was applied to inform the development of the conceptual framework, combining a systematic review of the relevant autism research literature with a wider literature search spanning key texts in global mental health, cultural psychiatry, cross-cultural psychology and intellectual disability research. The resulting conceptual framework considers the identification, help-seeking and diagnostic process at four interrelated levels: i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms, and describes the cultural and contextual factors associated with each of these levels, including cultural norms of typical and atypical behaviour, culture-specific approaches to parenting, mental health literacy, cultural beliefs, attitudes and stigma, as well as the affordability, availability, accessibility and acceptability of services. This framework, mapping out the cultural and contextual factors that can affect the identification, help-seeking and diagnosis of ASD, may function as a springboard for the development of culturally appropriate autism screening and diagnostic instruments, and inform future cross-cultural autism research directions. The framework also has relevance for clinicians and policy makers aiming to improve support for underserved autism populations worldwide.

show abstract

Disparities in Familiarity With Developmental Disabilities Among Low-Income Parents

Cited by 23 publications

References 31 publications

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

Transitioning to Telemedicine During COVID-19: Impact on Perceptions and Use of Telemedicine Procedures for the Diagnosis of Autism in Toddlers

A conceptual framework for understanding the cultural and contextual factors on autism across the globe

Contact Info

Product

Resources

About