Disparities in subjective well-being, participation, and health after spinal cord injury: A 6-year longitudinal study

Krause, James S.; Saladin, Lisa K.; Adkins, Rodney H.

doi:10.3233/nre-2009-0453

Cited by 47 publications

(26 citation statements)

References 15 publications

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“…First, ethnicity has not been a focus of most studies; however, recent research with adults suggests poorer life satisfaction and well-being in ethnic minority adults following specific traumatic injury (Arango-Lasprilla et al 2009; Krause et al 2009). Further investigation of HRQOL outcomes across racial and ethnic groups seems prudent, particularly when considered in conjunction with other factors such as SES.…”

Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life in Children and Adolescents Following Traumatic Injury: A Review

Martin-Herz

Zatzick

McMahon

2012

Clin Child Fam Psychol Rev

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This paper comprehensively reviews the published literature investigating HRQOL following general traumatic injury in individuals between birth and 18 years. Studies were not considered if they primarily compared medical treatment options, evaluated physical function but not other aspects of HRQOL, or focused on non-traumatic wounds. Specific injury types (e.g., burn injury) were also not included. A total of 16 studies met criteria. Participants were age 1 to 18 years, with 12 studies considering children 5 years of age or older. Males were overrepresented. Injury severity averaged mostly in the moderate range. HRQOL deficits were noted in injured samples in all studies except the two with the longest time to follow-up (6-11 years). Some improvement was seen 6 months to 2 years after injury. Factors associated with HRQOL deficits were investigated, with acute and posttraumatic stress symptoms showing the strongest relationship. Research to date in this area is impressive, particularly the number of studies using prospective longitudinal investigations and validated measures. Challenges remain regarding methodologic differences, assessment of preinjury status, retention of participants and management of missing data. Suggested future directions include extension of follow-up duration, utilization of pediatric self-report when possible, inclusion of younger children, and development of intervention programs.

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Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life in Children and Adolescents Following Traumatic Injury: A Review

Martin-Herz

Zatzick

McMahon

2012

Clin Child Fam Psychol Rev

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“…Finally, across all models, demographic and injury characteristics (i.e., injury level, education, employment and age at injury) remained significant contributors to well being outcomes, indicating that, above and beyond any effects of marital status and marital transitions, these characteristics are important for well being outcomes over time in this population, which has been shown in other work. 30 …”

Section: Discussionmentioning

confidence: 99%

Marital Status, Marital Transitions, Well-Being, and Spinal Cord Injury: An Examination of the Effects of Sex and Time

Kalpakjian

Houlihan

Meade

et al. 2011

Archives of Physical Medicine and Rehabilitation

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Objective To examine the applicability of marital resource (marriage has substantial benefits for well being over not being married) or marital crisis models (marital dissolution leads to poorer well being) to the spinal cord injury (SCI) population by studying the effects of gender, marital status and marital transitions on well-being. Design Prospective cohort from the SCI Model Systems National Database. Setting Community. Participants 4,864 men and 1,277 women who sustained traumatic SCI and completed a minimum of one follow-up interview beginning at one year through 15 years post-injury. Interventions None. Main outcomes measures Life satisfaction, depressive symptomatology, and self-perceived health status using linear mixed models for longitudinal data. Results In general, well being improved over time since injury. Hypothesis testing supported the marital crisis model as marital loss through being or becoming separated or divorced and being or becoming widowed had the most consistent and negative impact across well-being outcomes, while being or becoming married only had an advantage for lower depression symptomatology over time. However, marital dissolution or loss did not have a uniformly adverse impact on well-being outcomes and this effect was often moderated by gender such that widows had higher depressive symptomatology and poorer self-perceived health than widowers, but separated or divorced women had higher life satisfaction and self-perceived health than men. Irrespective of gender, being separated or divorced vs. being single was associated with higher depression over time. Conclusions The results support the marital crisis model and that women and men can experience marital dissolution differently. Nor does all marital loss result in compromised well-being or marriage enhance well-being, highlighting complex dynamics worthy of further investigation in this population.

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“…Racial and ethnic minorities living with an SCI are at increased risk of secondary health complications, 7–9 psychological distress, 10,11 poorer quality of life, 11,12 and having inadequate wheelchair quality. 13,14 For example, non-Hispanic black individuals living with SCI have higher rates of severe pressure ulcers requiring invasive treatment than their Hispanic and non-Hispanic white counterparts.…”

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confidence: 99%

Racial and Ethnic Disparities in Functioning at Discharge and Follow-Up Among Patients With Motor Complete Spinal Cord Injury

Fyffe

Deutsch

Botticello

et al. 2014

Archives of Physical Medicine and Rehabilitation

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Objective To examine racial and ethnic differences in self-care and mobility outcomes for persons with a motor complete, traumatic spinal cord injury (SCI) at discharge and 1-year follow-up. Design Retrospective cohort study. Setting Sixteen rehabilitation centers contributing to the Spinal Cord Injury Model Systems (SCIMS) database. Participants Adults with traumatic, motor complete SCI (N=1766; American Spinal Injury Association Impairment Scale grade A or B) enrolled in the SCIMS between 2000 and 2011. Selected cases had complete self-reported data on race and ethnicity (non-Hispanic white, non-Hispanic black, or Hispanic) and motor FIM scores assessed at inpatient rehabilitation admission, discharge, and 1-year follow-up. Interventions Not applicable. Main Outcome Measures Functional outcomes were measured by FIM self-care and mobility scores on a 1 to 7 FIM scale, at discharge and 1-year follow-up. Results Multiple regression models stratified by neurologic category and adjusted for sociodemographic and injury characteristics assessed racial and ethnic group differences in FIM self-care and mobility change scores at discharge and 1-year follow-up. At discharge, non-Hispanic black participants with tetraplegia and paraplegia had significantly poorer gains in FIM self-care and mobility scores relative to non-Hispanic white and Hispanic participants. At 1-year follow-up, similar FIM self-care and mobility change scores were found across racial and ethnic groups within each neurologic category. Conclusions Non-Hispanic white and Hispanic participants had comparatively more improvement in self-care and mobility during inpatient rehabilitation compared with non-Hispanic black participants. At 1-year follow-up, no differences in self-care and mobility outcomes were observed across racial and ethnic groups. Additional research is needed to identify potential modifiable factors that may contribute to racially and ethnically different patterns of functional outcomes observed during inpatient rehabilitation.

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Disparities in subjective well-being, participation, and health after spinal cord injury: A 6-year longitudinal study

Cited by 47 publications

References 15 publications

Health-Related Quality of Life in Children and Adolescents Following Traumatic Injury: A Review

Health-Related Quality of Life in Children and Adolescents Following Traumatic Injury: A Review

Marital Status, Marital Transitions, Well-Being, and Spinal Cord Injury: An Examination of the Effects of Sex and Time

Racial and Ethnic Disparities in Functioning at Discharge and Follow-Up Among Patients With Motor Complete Spinal Cord Injury

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