2021
DOI: 10.3389/fonc.2021.689927
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Disparity in Access to Oncology Precision Care: A Geospatial Analysis of Driving Distances to Genetic Counselors in the U.S.

Abstract: In the US, the growing demand for precision medicine, particularly in oncology, continues to put pressure on the availability of genetic counselors to meet that demand. This is especially true in certain geographic locations due to the uneven distribution of genetic counselors throughout the US. To assess these disparities, access to genetic counselors of all specialties is explored by geography, cancer type, and social determinants of health. Geospatial technology was used to combine and analyze genetic couns… Show more

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Cited by 21 publications
(23 citation statements)
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“…Though adding genetic counseling to cancer care teams is an effective healthcare delivery model shown to improve patient care [ 12 ], there are hurdles to implementing more use of genetic counselling. Challenges include a lack of genetic counselors with only 1.49 genetic counselors per 100,000 people in the US and disparities to access genetic counselling services by regional location, socioeconomic status, and cancer type [ 13 ]. One way to alleviate these issues is to increase the use of telehealth genetic counseling [ 14 ].…”
Section: Resultsmentioning
confidence: 99%
“…Though adding genetic counseling to cancer care teams is an effective healthcare delivery model shown to improve patient care [ 12 ], there are hurdles to implementing more use of genetic counselling. Challenges include a lack of genetic counselors with only 1.49 genetic counselors per 100,000 people in the US and disparities to access genetic counselling services by regional location, socioeconomic status, and cancer type [ 13 ]. One way to alleviate these issues is to increase the use of telehealth genetic counseling [ 14 ].…”
Section: Resultsmentioning
confidence: 99%
“…If not proactively addressed, these disparities may preclude equitable access to teleneurology services across diverse populations and potentially exacerbate pre-existing health care inequalities, particularly among underserved minority populations, elderly patients, and patients with low health literacy or digital literacy. 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 It is estimated that over one in four Americans lack access to requisite technologies or digital literacy to engage in telemedicine visits, raising concerns that patients who are most vulnerable and in need of enhanced health care access may be the ones who are least likely to benefit from the advent of telemedicine technologies. 90 These issues are further magnified in considering access to teleneurology in less developed countries.…”
Section: Justice and Equity In Teleneurologymentioning
confidence: 99%
“…Barriers to genetic counseling reported from an underdeveloped setting in Europe are mainly related to limited access to healthcare and lack of integrated services. 75 An important reason for patients to forego genetic testing could be the associated costs. A 2021 review by Grant et al described that the proportion of patients who declined BC genetic testing due to cost ranged from 13.6–70.4%.…”
Section: Genetic Riskmentioning
confidence: 99%