Initially presented as an abstract to the 4 th International Interdisciplinary Conference on Posture and Mobility, June 7-9 2010, Glasgow, UK.We did not receive any funding for this study Acknowledgements: Mike Pugh for technical assistance with identifying those with tilt-inspace wheelchairs and commenting on engineering aspects of this paper.We certify that no party having a direct interest in the results of the research supporting this article has or will confer a benefit on us or on any organization with which we are associated and we certify that all financial and material support for this research and work are clearly identified in the title page. The benefits of powered mobility (PM) for people with severe disabilities are now better understood. By using powered wheelchairs, individuals can experience greater participation in activities such as education 1-4 or work [1][2][3]5 , and a range of social activities such as shopping 1-3;6;7;7;8 , church going 1;2;6;9 , socialising with family and friends 1;2;6;9;10 and accessing healthcare facilities 2;6;9;11. In addition, the increased mobility provided by PM enhances quality of life and wellbeing 5;10;12 . Benefits to carers have also been reported 2;5;9;11 . However, it has been noted that there are problems associated with powered mobility (PM There is a need to capture data from greater numbers representative of the population of wheelchair users 17 . Whilst such populations have been described 18 , the diagnoses, age and gender of a large and specific population of powered wheelchair users is lacking. Objectively verified data are needed for these factors as declarative data gathered through self-report Potential users were referred from locally based NHS wheelchair services. Clinic records including assessment and wheelchair equipment of those provided with an EPIOC, and still using it, were reviewed in June 2007 and data were extracted. Average time from the initial assessment in clinic to the case note review was 72.4 (range 0-1166, sd 73.2) months.The data relevant to this study had been recorded by health professionals following a physical examination and assessment and consisted of:-
Demographic data• age at initial assessment• gender
Medical factors• Major diagnosis contributing to the need for a wheelchair as described previously 2 but with the addition of a category for inherited metabolic conditions.• Ventilator issues• Problematic pain -that needed intervention(s).• (Kypho)scoliosis Users with multiple sclerosis (MS), cerebral palsy (CP), muscular dystrophy (MD), cerebrovascular disease (CVD), other neurological conditions, spina bifida (SB), spinal cord injury (SCI) and polio were grouped together as having neurological or neuromuscular conditions (NNCs).
Wheelchair factorsPowered wheelchair provision in the UK 8• Specialised seating (SS) -that which is needed by people who require a wheelchair but due to instability or deformity need additional support in order to function 21 , (similar to that of adaptive seating 22 )• Tilt-in-space (TIS)• ...