Distress and satisfaction with research participation: Impact on retention in longitudinal disaster research

Gibbs, Lisa; Molyneaux, Robyn; Whiteley, Sonia; Block, Karen; Harms, Louise; Bryant, Richard A.; Forbes, David; Gallagher, H. Colin; MacDougall, Colin; Ireton, Greg

doi:10.1016/j.ijdrr.2017.09.038

Cited by 12 publications

(15 citation statements)

References 20 publications

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“…The full study protocol, including a participatory approach and strategies to ensure post-trauma sensitivity, are described elsewhere. 23,27 Surveys were either self-completed via an online questionnaire or administered via computer-assisted telephone interview (CATI), depending on participant preference. The survey commenced with a range of sociodemographic questions, followed by the PHQ-9, AUDIT-C, PCL and questions about bushfire exposure and subsequent traumatic or stressful life events.…”

Section: Methodsmentioning

confidence: 99%

Interpersonal violence and mental health outcomes following disaster

et al. 2019

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Background Disasters pose a documented risk to mental health, with a range of peri- and post-disaster factors (both pre-existing and disaster-precipitated) linked to adverse outcomes. Among these, increasing empirical attention is being paid to the relation between disasters and violence. Aims This study examined self-reported experiences of assault or violence victimisation among communities affected by high, medium, and low disaster severity following the 2009 bushfires in Victoria, Australia. The association between violence, mental health outcomes and alcohol misuse was also investigated. Method Participants were 1016 adults from high-, medium- and low-affected communities, 3–4 years after an Australian bushfire disaster. Rates of reported violence were compared by areas of bushfire-affectedness. Logistic regression models were applied separately to men and women to assess the experience of violence in predicting general and fire-related post-traumatic stress disorder, depression and alcohol misuse. Results Reports of experiencing violence were significantly higher among high bushfire-affected compared with low bushfire-affected regions. Analyses indicated the significant relationship between disaster-affectedness and violence was observed for women only, with rates of 1.0, 0 and 7.4% in low, medium and high bushfire-affected areas, respectively. Among women living in high bushfire-affected areas, negative change to income was associated with an increased likelihood of experiencing violence (odds ratio, 4.68). For women, post-disaster violence was associated with more severe post-traumatic stress disorder and depression symptoms. Conclusions Women residing within high bushfire-affected communities experienced the highest levels of violence. These post-disaster experiences of violence are associated with post-disaster changes to income and with post-traumatic stress disorder and depression symptoms among women. These findings have critical implications for the assessment of, and interventions for, women experiencing or at risk of violence post-disaster.

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Section: Methodsmentioning

confidence: 99%

Interpersonal violence and mental health outcomes following disaster

et al. 2019

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“…Self-Reported Distress. This item is asked with the question "how distressing did you find this survey?," and measured on a scale from 0 (not at all) to 10 (extremely) developed by Gibbs et al (2018). While initially it was intended for this item to be separated into three categories (as outlined in the preregistration): little distress (0-3), medium distress (4-7), and high distress (8-10), sample sizes did not allow for this level of granularity.…”

Section: Subjective Wellbeing Experimentsmentioning

confidence: 99%

COVID-19 Survey Participation and Wellbeing: A Survey Experiment

Sollis

Biddle

Edwards

et al. 2021

Journal of Empirical Research on Human Research Ethics

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Individuals throughout the world are being recruited into studies to examine the social impacts of coronavirus disease 2019 (COVID-19). While previous literature has illustrated how research participation can impact distress and wellbeing, to the authors’ best knowledge no study has examined this in the COVID-19 context. Using an innovative approach, this study analyses the impacts of participation in a COVID-19 survey in Australia on subjective wellbeing through a survey experiment. At a population level, we find no evidence that participation impacts subjective wellbeing. However, this may not hold for those with mental health concerns and those living in financial insecurity. These findings provide the research community with a deeper understanding of the potential wellbeing impacts from COVID-19-related research participation.

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“…I anticipated the potential impact of interview questions on the participants' experiences on their past histories and stigmatization that would precipitate emotional reaction (Galea et al, 2005) since "do no harm" is the ethical concerns for research (Gibbs et al, 2018). Nonetheless, the participants appreciated the opportunity to share their knowledge on their experiences and stories.…”

Section: Emotional Issuesmentioning

confidence: 99%

Reflexivity: Doing Research with Women in a Mental health Care Facility

Yong

Mas'ud

Ling

2019

ASWJ

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Reflexivity has been recognised as a crucial strategy in the knowledge generating process and applied in qualitative research to legitimate, validate and question research practices and representation, as well as evaluating the quality of qualitative research. Reflexivity in the social work literature have impacted in research and practice. However, the effect of researcher’s perspectives on the data collection and interpretation process by using reflexivity has not been examined in the mental health research in Malaysia. Thus, this paper aims to explore the role of methodological reflexivity in a qualitative research with Chinese women with mental health problems in a residential care setting in Malaysia. The researcher’s and participants’ interaction and experiences, as well as emotional context during interviews that affect the data interpretation and data collection process are discussed. Greater understanding on their experiences in the care centre has been generated by focusing on these women as an “abled-body” rather than people with disabilities. Recognition of the researcher’s feelings and experiences have enriched the research method and analysis, as well as informing the practice for social workers, health practitioners, and students who work with women with mental health problems.

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Distress and satisfaction with research participation: Impact on retention in longitudinal disaster research

Cited by 12 publications

References 20 publications

Interpersonal violence and mental health outcomes following disaster

Interpersonal violence and mental health outcomes following disaster

COVID-19 Survey Participation and Wellbeing: A Survey Experiment

Reflexivity: Doing Research with Women in a Mental health Care Facility

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