Do adolescent cancer survivors need health care and psychosocial services?: An Indonesian experience

Annisa, Fitri; Allenidekania,; Chodidjah, Siti

doi:10.1016/s1130-8621(18)30034-2

Cited by 5 publications

(1 citation statement)

References 19 publications

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“…Compreender a variabilidade da experiência do sobrevivente de câncer infantil, assim como o potencial de incerteza que afeta o sobrevivente, fornece aos profissionais de enfermagem uma oportunidade de ampliar o apoio e os recursos para aqueles que têm um histórico de câncer (Hebdon, Foli, McCombi, 2015). O câncer torna o paciente particularmente vulnerável ao sofrimento emocional (Zebrack, Landier, 2011;Fisher et al, 2018;Annisa, Allenidekania, Chodidjah, 2018). Cerca de um terço dos sobreviventes, a longo prazo, apresenta elevados níveis de sofrimento emocional (Seitz et al, 2010;Zebrack, Landier, 2011).…”

Section: O Sobrevivente Do Câncer Infantilunclassified

Sendo grato por estar vivo: a experiência de adolescentes que vivenciaram o câncer na infância

Ichikawa¹

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Introduction: Advances in cancer treatment in the last thirty years have contributed to the growing number of survivors. In face of this progress, especially in cases of childhood cancer survivors, from the repercussions of the entire process, since diagnosis to the end of treatment, and the need of follow-up after cure, a better understanding of childhood cancer survivors experience is necessary. Objective: The research objective was to understand the adolescent`s cancer survivor experience. Methods: This was a qualitative approach study which used the Symbolic Interactionism as theoretical framework and the Thematic Analysis as a methodological framework. The data were obtained by field observation, documentary analysis, the genogram and ecomap constructions and the interview using the Original Romance method, which allowed the researcher to understand the individual´s subjective perception about his/her history. Fourteen adolescents cancer survivors attending in an outpatient clinic in São Paulo, SP, Brazil, joined the study. Results: The data comparative analysis allowed to identify four themes: "Growing in the hospital"; "Transiting from disease to cure"; "Living with the cancer legacy" and "Being grateful to be alive". Considerations: The transition from illness to cure proved to be full of insecurity, difficulty, and challenges. The will to live allows the adolescent to seek meaning to his own life, as well as the ability to adapt to complex transformations in lifefollowing the healing from a traumatic disease like cancer. After the illness, survivors acquire new values and life priorities; past experience has brought more value to life, in addition to early maturity and a sense of gratitude to God, to the mother and to others who faced this trajectory during the treatment.

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Section: O Sobrevivente Do Câncer Infantilunclassified

Sendo grato por estar vivo: a experiência de adolescentes que vivenciaram o câncer na infância

Ichikawa¹

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“AeRop exercise” can improve the sleep quality of Indonesian pediatric cancer patients

et al. 2019

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The Relationship between Activity Level and Fatigue in Indonesian Children with Acute Lymphocytic Leukemia in the Home Setting

Fadhilah

Allenidekania

2019

Comprehensive Child and Adolescent Nursing

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Do adolescent cancer survivors need health care and psychosocial services?: An Indonesian experience

Cited by 5 publications

References 19 publications

Sendo grato por estar vivo: a experiência de adolescentes que vivenciaram o câncer na infância

Sendo grato por estar vivo: a experiência de adolescentes que vivenciaram o câncer na infância

“AeRop exercise” can improve the sleep quality of Indonesian pediatric cancer patients

The Relationship between Activity Level and Fatigue in Indonesian Children with Acute Lymphocytic Leukemia in the Home Setting

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