PURPOSE Adults with intellectual disabilities experience poorer physical health and health care quality, but there is limited information on the potential for reducing emergency hospital admissions in this population. We describe overall and preventable emergency admissions for adults with vs without intellectual disabilities in England and assess differences in primary care management before admission for 2 common ambulatory care-sensitive conditions (ACSCs).
METHODSWe used electronic records to study a cohort of 16,666 adults with intellectual disabilities and 113,562 age-, sex-, and practice-matched adults without intellectual disabilities from 343 English family practices. Incident rate ratios (IRRs) from conditional Poisson regression were analyzed for all emergency and preventable emergency admissions. Primary care management of lower respiratory tract infections and urinary tract infections, as exemplar ACSCs, before admission were compared in unmatched analysis between adults with and without intellectual disabilities.
RESULTSThe overall rate for emergency admissions for adults with vs without intellectual disabilities was 182 vs 68 per 1,000 per year (IRR = 2.82; 95% CI, 2.66-2.98). ACSCs accounted for 33.7% of emergency admissions among the former compared with 17.3% among the latter (IRR = 5.62; 95% CI, 5.14-6.13); adjusting for comorbidity, smoking, and deprivation did not fully explain the difference (IRR = 3.60; 95% CI, 3.25-3.99). Although adults with intellectual disability were at nearly 5 times higher risk for admission for lower respiratory tract infections and urinary tract infections, they had similar primary care use, investigation, and management before admission as the general population.CONCLUSIONS Adults with intellectual disabilities are at high risk for preventable emergency admissions. Identifying strategies for better detecting and managing ACSCs, including lower respiratory and urinary tract infections, in primary care could reduce hospitalizations. Ann Fam Med 2017;15:462-470. https://doi.org/10.1370/afm.2104.
INTRODUCTIONA dults with intellectual disabilities experience poorer health outcomes than their peers in the general population and have higher levels of morbidity and mortality.1 They also receive poorer-quality health care for a range of reasons including discrimination, communication difficulties, and barriers to access.2 Despite international recommendations, 2,3 this group remains largely invisible to routine data collection and analysis. 4 Acute hospitalization is highly undesirable for individuals with intellectual disabilities, and reducing preventable admissions is particularly important.Ambulatory care-sensitive conditions (ACSCs) are those for which prevention or effective management in primary care should decrease the risk of acute hospitalization, and they are widely used as an indicator of access to and quality of primary care. [5][6][7] Studies of admissions for ACSCs in people with intellectual disabilities have shown that this population consistently...