Do heart failure patients understand their diagnosis or want to know their prognosis? Heart failure from a patient’s perspective

Banerjee, Prithwish; Gill, Laura Indira; Muir, Victoria Louise; Nadar, Sunil; Raja, Yahyia; Goyal, Deepak; Koganti, Sudheer

doi:10.7861/clinmedicine.10-4-339

Cited by 21 publications

(23 citation statements)

References 9 publications

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“…The need to understand about, and know how to manage their HF, reinforces earlier research in HFrEF patients [18,19] and caregivers [20,21]. Addressing participants' needs for clarity in relation to their diagnosis and the implications of this condition can increase understanding, alleviate patient and caregivers' anxiety and allow them to accept and accommodate HF in their lives.…”

Section: Discussionmentioning

confidence: 75%

Patients with heart failure with preserved ejection fraction and their caregiver’s experiences of home-based rehabilitation (REACH-HFpEF): mixed methods process evaluation of the REACH-HFpEF single centre pilot randomised controlled trial.

Smith¹,

Lang²,

Wingham³

et al. 2020

Preprint

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Background: Whilst heart failure (HF) with preserved ejection fraction (HFpEF) affects almost 50 percent of the HF population, evidence-based treatment options remain limited. However, there is emerging evidence of the potential value of exercise-based cardiac rehabilitation. This study reports the process evaluation conducted as part of the REACH-HFpEF trial. Methods: Mixed methods process evaluation parallel to a single centre (Tayside, Scotland) pilot randomised controlled trial with quantitative assessment of intervention fidelity and a qualitative exploration of HFpEF patients' and caregivers' experiences. The Rehabilitation EnAblement in Chronic Heart Failure (REACH-HF) intervention consisted of self-help manual for patients and caregivers, facilitated over 12 weeks by trained healthcare professionals. Data included audio-recorded intervention sessions; demographic information; intervention fidelity scores; and qualitative interviews conducted following completion of intervention in a purposeful sample of 15 HFpEF patients and 7 caregivers, Results: Intervention fidelity analysis was indicative of the adequate delivery of the majority of the REACH-HF components, with three items relating caregiver involvement (addressing emotional consequences of being a caregiver, caregiver health and well-being, and closure of the session) scoring poorly. Qualitative interviews identified three key themes for patients and caregivers: (1) understanding their condition, (2) emotional consequences of HF, and (3) patients' and caregivers' responses to the REACH-HF intervention were uncovered by qualitative interviews.Conclusions: The REACH-HF home-based facilitated intervention for HFpEF appears feasible and well accepted model for delivery of a CR intervention, with the potential to address key unmet needs of patients and their caregivers who are often excluded from service provision and current CR programmes. Results inform a future full multicentre randomised clinical trial.

show abstract

Section: Discussionmentioning

confidence: 75%

Patients with heart failure with preserved ejection fraction and their caregiver’s experiences of home-based rehabilitation (REACH-HFpEF): mixed methods process evaluation of the REACH-HFpEF single centre pilot randomised controlled trial.

Smith¹,

Lang²,

Wingham³

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…The need to understand and know how to manage their HF, reinforces earlier research in HFrEF patients [18,19] and caregivers [20,21]. Addressing participants' needs for clarity in relation to their diagnosis and the implications of this condition can increase understanding, alleviate patient and caregivers' anxiety,…”

Section: Discussionmentioning

confidence: 77%

Process evaluation of a randomised pilot trial of home-based rehabilitation compared to usual care in patients with heart failure with preserved ejection fraction and their caregiver’s

Smith

Lang

Wingham

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Whilst almost 50 percent of heart failure (HF) patients have preserved ejection fraction (HFpEF), evidence-based treatment options for this patient group remain limited. However, there is growing evidence of the potential value of exercise-based cardiac rehabilitation. This study reports the process evaluation of the Rehabilitation Enablement in Chronic Heart Failure (REACH-HF) intervention for HFpEF patients and their caregivers conducted as part of the REACH-HFpEF pilot trial. Methods: Process evaluation sub-study parallel to a single centre (Tayside, Scotland) randomised controlled pilot trial with qualitative assessment of both intervention fidelity delivery and HFpEF patients’ and caregivers’ experiences. The REACH-HF intervention consisted of self-help manual for patients and caregivers, facilitated over 12 weeks by trained healthcare professionals. Interviews were conducted following completion of intervention in a purposeful sample of 15 HFpEF patients and seven caregivers.Results: Qualitative information from the facilitator interactions and interviews identified three key themes for patients and caregivers: (1) understanding their condition, (2) emotional consequences of HF, and (3) responses to the REACH-HF intervention. Fidelity analysis found the interventions to be delivered adequately with scope for improvement in caregiver engagement. The differing professional backgrounds of REACH-HF facilitators in this study demonstrate the possibility of delivery of the intervention by healthcare staff with expertise in HF, cardiac rehabilitation or both. .Conclusions: The REACH-HF home-based facilitated intervention for HFpEF appears to be a feasible and a well-accepted model for the delivery of rehabilitation, with the potential to address key unmet needs of patients and their caregivers who are often excluded from HF and current cardiac rehabilitation programmes. Results of this study will inform a recently funded full multicentre randomised clinical trial.Trial registration: ISRCTN78539530 (date registration 7th July 2015) http://www.isrctn.com/ISRCTN78539530

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“…The need to understand and know how to manage their HF reinforces earlier research in HFrEF patients [ 18 , 19 ] and caregivers [ 20 , 21 ]. Addressing participants’ needs for clarity in relation to their diagnosis and the implications of this condition can increase understanding, alleviate patient and caregivers’ anxiety, and allow them to accept and accommodate HF in their lives.…”

Section: Discussionmentioning

confidence: 86%

Process evaluation of a randomised pilot trial of home-based rehabilitation compared to usual care in patients with heart failure with preserved ejection fraction and their caregiver’s

Smith

Lang

Wingham

et al. 2021

Pilot Feasibility Stud

View full text Add to dashboard Cite

Background Whilst almost 50% of heart failure (HF) patients have preserved ejection fraction (HFpEF), evidence-based treatment options for this patient group remain limited. However, there is growing evidence of the potential value of exercise-based cardiac rehabilitation. This study reports the process evaluation of the Rehabilitation Enablement in Chronic Heart Failure (REACH-HF) intervention for HFpEF patients and their caregivers conducted as part of the REACH-HFpEF pilot trial. Methods Process evaluation sub-study parallels to a single-centre (Tayside, Scotland) randomised controlled pilot trial with qualitative assessment of both intervention fidelity delivery and HFpEF patients’ and caregivers’ experiences. The REACH-HF intervention consisted of self-help manual for patients and caregivers, facilitated over 12 weeks by trained healthcare professionals. Interviews were conducted following completion of intervention in a purposeful sample of 15 HFpEF patients and seven caregivers. Results Qualitative information from the facilitator interactions and interviews identified three key themes for patients and caregivers: (1) understanding their condition, (2) emotional consequences of HF, and (3) responses to the REACH-HF intervention. Fidelity analysis found the interventions to be delivered adequately with scope for improvement in caregiver engagement. The differing professional backgrounds of REACH-HF facilitators in this study demonstrate the possibility of delivery of the intervention by healthcare staff with expertise in HF, cardiac rehabilitation, or both. Conclusions The REACH-HF home-based facilitated intervention for HFpEF appears to be a feasible and a well-accepted model for the delivery of rehabilitation, with the potential to address key unmet needs of patients and their caregivers who are often excluded from HF and current cardiac rehabilitation programmes. Results of this study will inform a recently funded full multicentre randomised clinical trial. Trial registration ISRCTN78539530 (date of registration 7 July 2015).

show abstract

Do heart failure patients understand their diagnosis or want to know their prognosis? Heart failure from a patient’s perspective

Cited by 21 publications

References 9 publications

Patients with heart failure with preserved ejection fraction and their caregiver’s experiences of home-based rehabilitation (REACH-HFpEF): mixed methods process evaluation of the REACH-HFpEF single centre pilot randomised controlled trial.

Patients with heart failure with preserved ejection fraction and their caregiver’s experiences of home-based rehabilitation (REACH-HFpEF): mixed methods process evaluation of the REACH-HFpEF single centre pilot randomised controlled trial.

Process evaluation of a randomised pilot trial of home-based rehabilitation compared to usual care in patients with heart failure with preserved ejection fraction and their caregiver’s

Process evaluation of a randomised pilot trial of home-based rehabilitation compared to usual care in patients with heart failure with preserved ejection fraction and their caregiver’s

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