Do needs, symptoms or disability of outpatients with schizophrenia influence family burden?

Ochoa, Susana; Vilaplana, Míriam; Haro, Josep María; Villalta-Gil, Victòria; Martínez, Francisco Antonio Pagán; Negredo, Mari Cruz; Casacuberta, Pilar; Paniego, Elena; Usall, Judith; Dolz, Montserrat; Autonell, J

doi:10.1007/s00127-008-0337-x

Cited by 67 publications

(66 citation statements)

References 33 publications

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“…This probably due to more complex illness and higher needs in those patients as compared to their counterparts not needing an extra care, therefore, explaining the higher burden and lower QOL in their caregivers (36). However, this observation may be due lack of effectiveness of the current day care program.…”

Section: Discussionmentioning

confidence: 50%

“…Course of the illness, lack of social support and recent life events were the main factors found to be associated with a considerable impairment of caregivers' QOL in earlier studies (11,20,35,36). Severe positive symptoms of schizophrenia such as hallucination, delusion, aggressiveness and destructive behavior are known to cause distress to the caregivers and lower their QOL (10,12).…”

Section: Discussionmentioning

confidence: 99%

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Schizophrenia in Malaysian families: A study on factors associated with quality of life of primary family caregivers

ZamZam

Midin

Hooi

et al. 2011

Int J Ment Health Syst

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Background: Schizophrenia is a chronic illness which brings detrimental effects in the caregivers' health. This study was aimed at highlighting the socio-demographic, clinical and psychosocial factors associated with the subjective Quality of Life (QOL) of Malaysian of primary family caregivers of subjects with schizophrenia attending an urban tertiary care outpatient clinic in Malaysia. Methods: A cross-sectional study was performed to study patient, caregiver and illness factors associated with the QOL among 117 individuals involved with caregiving for schizophrenia patients. The study used WHOQOL-BREF to assess caregivers' QOL and Brief Psychiatric Rating Scale (BPRS) to assess the severity of patients' symptoms. Social Readjustment Rating Scale (SRRS) assessed the stress level due to life events. Results: The mean scores of WHOQOL-BREF in physical, psychological, social and environmental domains were 66.62 (14.36), 61.32 (15.52), 62.77 (17.33), 64.02 (14.86) consecutively. From multiple regression analysis, factors found to be significantly associated with higher QOL were higher educational level among caregivers in social and environmental domains; caregivers not having medical problem/s in physical and psychological domains; later onset and longer illness duration of illness in social domains; patients not attending day care program in environmental domain; lower BPRS score in physical and environmental domains. SRRS score of caregivers was also found to have a significant negative correlation with QOL in environmental and psychological domains. Other factors were not significantly associated with QOL. Conclusion: Caregivers with more social advantages such as higher educational level and physically healthier and dealing with less severe illness had significantly higher QOL in various aspects. Supporting the caregivers in some of these modifiable factors in clinical practice is important to achieve their higher level QOL.

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Section: Discussionmentioning

confidence: 50%

Section: Discussionmentioning

confidence: 99%

Schizophrenia in Malaysian families: A study on factors associated with quality of life of primary family caregivers

ZamZam

Midin

Hooi

et al. 2011

Int J Ment Health Syst

View full text Add to dashboard Cite

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“…It is estimated that schizophrenia afects 21 million people in the world [45]. Caregiving of a patient with schizophrenia involves assisting patients in daily tasks, which may disrupt caregiver behavior and their daily routine, among others [46]. Gupta et al [13] conducted a study to examine the health status of caregivers of patients with schizophrenia compared to noncaregivers and caregivers of adults with other conditions.…”

Section: Schizophreniamentioning

confidence: 99%

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

Vázquez¹,

Otero²,

Blanco³

et al. 2018

Caregiving and Home Care

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Currently, more than 1 in 10 adults living in the Organization for Economic Co-operation and Development is involved in nonprofessional care of a dependent family member. The main causes of dependence are dementia, followed by other conditions such as cerebrovascular accidents, limb impairment, depression, and vision impairment. Although care provided by the caregiver is crucial to the well-being of the cared person, it can also have negative consequences on the caregiver's emotional state. This chapter aims to describe the psychopathological symptoms experienced by caregivers based on the condition of the person cared for. A bibliographic search was conducted to examine the efects of care on the emotional state of caregivers, distinguishing patients with dementia from those with other conditions. Depressive and anxiety symptoms were the most frequent psychopathological symptoms, both in caregivers of demented and nondemented patients, experienced by caregivers of patients with dementia, cerebrovascular accidents, traumatic brain injury, schizophrenia, cancer, amyotrophic lateral sclerosis, and autism spectrum disorder. In caregivers of patients with bipolar disorder and vision impairment, depressive symptoms were most prominent, whereas anxiety symptoms were common in caregivers of patients with spinal cord injuries. Sleep disturbances were found among caregivers of dementia and schizophrenia patients. Strategies for preventing psychopathological symptoms were provided and the importance of professional support when they occur was pointed out.

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“…In both groups more than 40% of patients require more than 21 hours of care per week. This generates high levels of family burden as the carer dedicates many hours to the supervision or care of the ill person 9 and, in addition, the family burden levels are higher depending on the presence of symptoms and disability on the part of the patient [31][32][33] . The basic difference between the DiC and DeC groups is shown by the number of hours of health resources.…”

Section: Discussionmentioning

confidence: 99%

“…However, some researchers have demonstrated that high levels of help from the caregivers are associated with a worse social functioning 9 , more symptoms (especially negative) 10,11 and more use of services 12 of the patients that they take care.…”

Section: Introductionmentioning

confidence: 99%

Use of functioning-disability and dependency for case-mix and subtyping of schizophrenia

et al. 2012

Self Cite

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-Background and Objectives:To evaluate the utility of the constructs functioning and disability (F&D) and dependency for case-mix and subtyping of patients with schizophrenia by psychosocial, clinical, use of services and attention received from informal carers.Methods: A randomly selected total of 205 people with schizophrenia, and their careers were evaluated through PANSS, DAS-sv, Objective and Subjective Burden Scale (ECFOS-II) and use of services.Results: Two groups and Four profiles were identified according to levels of Dependency: The non-dependent group was made of two profiles: independent (I), and persons with disability in the community (DiC). The dependent group included persons with dependency in the community (DeC) and persons with dependency in hospital care (DeH). There are clinical and psychosocial differences between these profiles being the dependent the most severe. Regarding use of services, DeC use the most resources, with the exception DeH (more hospitalization resources). The DeC profile generate greater family burden in the following areas; taking medication, being accompanied to appointments, and management than the DiC, despite both groups showing a high need for support.Conclusions: Dependency is a relevant construct for case-mix and subtyping in schizophrenia, and it is related to severity both at the social and clinical level. DeC generate more family burden than the other profiles, followed by DiC (patients with schizophrenia with disability but non-dependent).

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Do needs, symptoms or disability of outpatients with schizophrenia influence family burden?

Abstract: Patients with schizophrenia with more needs cause greater family burden but not more subjective concerns in family members. The presence of patients' needs (daytime activities, alcohol and drug), severity of psychotic symptoms and disability are related to higher levels of family burden.

Cited by 67 publications

References 33 publications

Schizophrenia in Malaysian families: A study on factors associated with quality of life of primary family caregivers

Schizophrenia in Malaysian families: A study on factors associated with quality of life of primary family caregivers

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

Use of functioning-disability and dependency for case-mix and subtyping of schizophrenia

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