Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease?

Elson, Paul

doi:10.1002/gps.1485

Cited by 54 publications

(53 citation statements)

References 18 publications

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“…Given the combination of powerful emotional responses to dementia (Aminzadeh et al, 2007;Connell et al, 2004) and the desire of most people to know about their illness (Ouimet et al, 2004;Elson, 2006;Jha, Tabet and Orrell;2001), it is perhaps unsurprising that psychotherapeutic approaches with people affected by dementia have been consistently reported over the last twenty years. Reports of group therapy interventions, including support groups and a range of psychotherapy interventions are at least as common as descriptions of individual interventions (Cheston, 1998) or couple psychotherapy (Auclair, 2009).…”

Section: Introductionmentioning

confidence: 99%

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

Marshall

Spreadbury

Cheston

et al. 2014

Aging & Mental Health

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(2015) A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a "Living Well with Dementia" group compared to waiting-list control. Aging and Mental Health, 19 (6 Disclaimer UWE has obtained warranties from all depositors as to their title in the material deposited and as to their right to deposit such material. UWE makes no representation or warranties of commercial utility, title, or fitness for a particular purpose or any other warranty, express or implied in respect of any material deposited.UWE makes no representation that the use of the materials will not infringe any patent, copyright, trademark or other property or proprietary rights. UWE accepts no liability for any infringement of intellectual property rights in any material deposited but will remove such material from public view pending investigation in the event of an allegation of any such infringement. PLEASE SCROLL DOWN FOR TEXT.Living well with dementia groups: a pilot RCT Living well with dementia groups: a pilot RCT 3 AbstractObjective. The aim of this paper is to report a pilot study in which participants who had recently received a diagnosis of dementia were randomised to either a 10 week group intervention or to a waiting list control.Method. Memory Clinic staff with limited previous experience of group therapy were trained to lead a ten week group therapy intervention called "Living Well with Dementia". Fifty-eight participants, all of whom had received a diagnosis of Alzheimer's disease, Vascular or Lewy body dementia within the previous 18 months, were randomised to receive either the intervention or treatment as usual (waiting list control). Data collection occurred at baseline, within two weeks of the intervention finishing and at 10 week follow-up.Results. The study met its recruitment targets, with a relatively low attrition rate for the intervention arm. The acceptability of the intervention and research methods were examined qualitatively and are reported on elsewhere. For the primary outcome measure of quality of life (Qol-AD) and secondary outcome, self-esteem there was some evidence of improvement in the intervention group compared to the control group. There was, also, evidence of a reduction in cognitive functioning in the treatment group compared to the control. Such reported differences should be treated with caution because they are obtained from a pilot and not a definitive studyConclusions. This pilot study succeeded in collect data to inform a future definitive cost effectiveness clinical trial of Living Well with Dementia Group Therapy.

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Section: Introductionmentioning

confidence: 99%

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

Marshall

Spreadbury

Cheston

et al. 2014

Aging & Mental Health

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“…Most patients with memory and other cognitive or behavioral problems want a diagnosis to understand why and what will happen [40][41][42][43][44]. Some patients (or families) are reluctant to express such problems because they are afraid of dementia and the dangers they may bring to the person and environment.…”

Section: Cognitive Rehabilitationmentioning

confidence: 99%

Occupational Therapy for Elderly People

Altuntaş¹,

Torpil²,

Uyanık³

2017

Occupational Therapy - Occupation Focused Holistic Practice in Rehabilitation

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The population of the elderly is raising in the improved countries with the death age becoming later in life due to the improvement of contemporary therapy approaches and socio-economic and cultural levels. Most older people with major disability of recent onset have the potential to beneit from geriatric rehabilitation. Rehabilitation for older people should have speciic goals. Rehabilitation of elderly people involves an active process, delivered through a coordinated multidisciplinary team approach, aiming to improve function and enable subjects to live their lives to the whole potential. The major goal of rehabilitation programs for older people is to assist them to manage personal activities of daily living without the assistance of another person. Occupational therapy facilitates optimal occupational performance and community participation across the full spectrum of ability. In this chapter, there is information on the principles of occupational rehabilitation for elderly people and evaluation and diferent therapy approaches in occupational therapy.

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“…Establishing the diagnosis in the early stages of cognitive impairment helps people understand the changes they are experiencing, maximize their quality of life in the years ahead, and maintain their autonomy by participating in care planning and legal and financial planning while they are still able. Studies suggest that most people seeking a cognitive evaluation want to be informed if Alzheimer's is the cause of their symptoms [2].…”

Section: Why An Accurate Diagnosis Is Importantmentioning

confidence: 99%

Alzheimer's Association Update

2015

Alzheimer's & Dementia

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Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease?

Cited by 54 publications

References 18 publications

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

Occupational Therapy for Elderly People

Alzheimer's Association Update

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