Do Patient Preferences for Health Information Vary by Health Literacy or Numeracy? A Qualitative Assessment

Gaglio, Bridget; Glasgow, Russell E.; Bull, Sheana

doi:10.1080/10810730.2012.712616

Cited by 78 publications

(60 citation statements)

References 16 publications

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“…The majority of patients with bipolar disorder would prefer to learn about their illness through a face-to-face conversation with their physician, as do patients with other mental and physical illness (Hallett et al 2013; Gaglio et al 2012; Hesse et al 2005; Horgan and Sweeney 2010). This is often not feasible due to the large number of questions that will arise over the long term and the limited access to the treating psychiatrist.…”

Section: Introductionmentioning

confidence: 99%

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Conell

Bauer

Glenn³

et al. 2016

Int J Bipolar Disord

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BackgroundInformation seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.MethodsA 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.Results976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.ConclusionOnline information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites.Electronic supplementary materialThe online version of this article (doi:10.1186/s40345-016-0058-0) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Conell

Bauer

Glenn³

et al. 2016

Int J Bipolar Disord

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“…30 Text messages use plain language and short sentences to organize information. 31,32 This preference may also be attributed to reliance on informal sources such as family and friends and the interactive nature of texting. 32 Text messages have been identified and utilized in clinical interventions as both feasible and appropriate for populations with lower health literacy.…”

Section: Table 2 • Experiences With Most Recent Search For Health Infmentioning

confidence: 99%

“…31,32 This preference may also be attributed to reliance on informal sources such as family and friends and the interactive nature of texting. 32 Text messages have been identified and utilized in clinical interventions as both feasible and appropriate for populations with lower health literacy. 33,34 Findings may also indicate a preference for receiving information directly rather than having to search for it.…”

Section: Table 2 • Experiences With Most Recent Search For Health Infmentioning

confidence: 99%

The Relationship of Health Literacy With Use of Digital Technology for Health Information: Implications for Public Health Practice

Manganello

Gerstner

Pergolino

et al. 2017

Journal of Public Health Management and Practice

148

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While self-report health literacy does not appear to influence access to and use of digital technologies, there is a strong association with experiences searching for health information and preferences for health information sources. Public health agencies and organizations should consider the needs and preferences of people with low health literacy when determining channels for health information dissemination. They should also consider implementing interventions to develop health information-seeking skills in populations they serve and prepare information and materials that are easily accessible and understandable.

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“…In order to make a sound health decision, patients need information such as possible health care providers, quality of the providers' services, treatment options, treatment risks and costs (Niehues et al 2012). Even though patients are nowadays better educated and have improved access to various online information than a decade ago, seeking health information is still a complex process (Otani et al 2009;Gaglioa et al 2012). BPatients must know the topic of interest, where to look or ask, how to assess and comprehend, and how to evaluate the credibility and trustworthiness of the sources.^ (Gaglioa et al 2012, p. 109).…”

Section: Relevance Of Wom For Major Stakeholders In the Health Care Smentioning

confidence: 99%

Word-of-mouth in the health care sector: a literature analysis of the current state of research and future perspectives

Martin

2016

Int Rev Public Nonprofit Mark

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Health care is a tremendously expensive service that deeply impacts the daily life of individuals. It has become crucial to understand all the factors that influence the usage of these services. Word-of-mouth (WOM) is such a factor, because it strongly affects the health behavior. A research gap exists when it comes to the analysis of the current state of WOM research in the health care sector. Based on a comprehensive literature review of the leading scientific journals in the health care sector, this paper investigates existing WOM studies. The investigated studies emphasize hospital recommendations as well as the necessary preconditions for WOM. The studies highlight that there are factors which are favorable to WOM and might be influenced by service providers and payers. Fewer studies concerned the spread and impact dimension. In this regard it is somewhat unexpected that three times more studies focus on the preconditions for WOM than the actual impact of WOM. Only a small number of electronic WOM studies could be found. Stakeholder theory suggests emphasizing factors which benefit WOM. As WOM might spread in networks and influence large groups of people, stakeholder theory further proposes considering WOM as a possible way to distribute specific health care recommendations. Even if the studies highlight the importance of WOM, several research gaps still exist. For example, due to the strong focus on hospitals, recent research seems to neglect WOM concerning health care providers such as a general practitioners or nursing homes.

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Do Patient Preferences for Health Information Vary by Health Literacy or Numeracy? A Qualitative Assessment

Cited by 78 publications

References 16 publications

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Online information seeking by patients with bipolar disorder: results from an international multisite survey

The Relationship of Health Literacy With Use of Digital Technology for Health Information: Implications for Public Health Practice

Word-of-mouth in the health care sector: a literature analysis of the current state of research and future perspectives

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