Do stress and support matter for caring? The role of perceived stress and social support on expressed emotion of carers of persons with first episode psychosis

Sadath, Anvar; Muralidhar, D.; Varambally, Shivarama; Gangadhar, Bangalore N.; Jose, Justin P.

doi:10.1016/j.ajp.2016.10.023

Cited by 42 publications

(40 citation statements)

References 60 publications

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“…The elevated levels of stress-related conditions in carers of people with psychosis have been widely documented (Gupta et al, 2015;Poon, Harvey, Mackinnon, & Joubert, 2016), including the higher rates recorded in FEP carers (Addington, Coldham, Jones, Ko, & Addington, 2003;Hamaie et al, 2016;Sadath et al, 2017). FEP carers' adjustment to the onset of a psychotic illness will invariably be affected and complicated by experiences of violence and victimization committed by the person they have assumed a caregiving role for.…”

Section: Discussionmentioning

confidence: 99%

“…Carers of people with psychosis experience a significant impact of care (Gupta, Isherwood, Jones, & Van Impe, 2015;Sadath, Muralidhar, Varambally, Gangadhar, & Rose, 2017), which carries considerable implications for their coping efforts, quality of caregiving relationship, and illness outcomes (Kuipers, Onwumere, & Bebbington, 2010). Lifetime rates of patient violence towards caregivers has been estimated in some studies at 50-60% (e.g., Kageyama et al, 2015;Onwumere et al, 2014), and approximately one-third of carers report incidents of violence in the preceding year (Kageyama et al, 2016;Wing-Yum Chan, 2008).…”

Section: Caregiving Relationships and Patient Violencementioning

confidence: 99%

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The last taboo: The experience of violence in first‐episode psychosis caregiving relationships

et al. 2018

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Carers were exposed to a broad range of patient violence, which included being kicked and having weapons used against them. The violence typically occurred within carers' homes, when no other people were around. Patient violence impacted negatively on carer emotional and physical functioning, which included leaving carers living in fear of their own safety and what might become of their relative. The results highlight the importance of routinely asking first-episode carers about their experience of patient violence. The development of interventions (e.g., identification of early triggers, de-escalation) that are able to take account of the ongoing nature and complexity of the caregiving relationship but are purposefully aimed at supporting carers to remain safe in their relationship should be explored for their impact.

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Section: Discussionmentioning

confidence: 99%

Section: Caregiving Relationships and Patient Violencementioning

confidence: 99%

The last taboo: The experience of violence in first‐episode psychosis caregiving relationships

et al. 2018

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“…Stress responses in caregivers of people in the early stages of psychotic illness can include symptoms of anxiety, depression and trauma (Barton & Jackson, 2008;Jansen, Gleeson, & Cotton, 2015;Kingston, Onwumere, Keen, Ruffell, & Kuipers, 2016). Caregiver distress has additionally been associated with high expressed emotion in early caregiving relationships or with critical or overinvolved interactions with patients (Sadath, Muralidhar, Varambally, Gangadhar, & Jose, 2017;Tomlinson, Onwumere, & Kuipers, 2014). These potential health impacts of caregiving have led to the development of a range of interventions that aim to improve outcomes for caregivers of people with psychosis and, in turn, for those to whom they provide care (Yesufu-Udechuku et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

Role of poor sleep in determining distress in caregivers of individuals with early psychosis

Smith

Onwumere

Craig

et al. 2018

Early Intervention Psych

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“…High expressed emotion perception can lead to constant stress in the patient (Erol and Yazlcl 2000). High expressed emotion includes high severity criticism against the patient, hostility, avoidance, or excessive emotional care (Sadath et al 2017). It has been shown in the studies that expressed emotion may influence the disease in various patient groups or the current disease may affect the expressed emotion (Gartland and Day 1999; Kyriacou et al 2008;Sadath et al 2017).…”

Section: Discussionmentioning

confidence: 99%

Increased expressed emotion in patients with psoriasis

Hayta¹,

Güner²,

Akyol³

et al. 2018

nin

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A b s t r a c tAim of the study: The aim of this study was to determine whether patients with psoriasis are affected by expressed emotion in their family environment. Material and methods: Participants included 62 patients with psoriasis and 83 healthy controls and their biological parent, wife or husband, or adult child as a key relative. Sociodemographic data were recorded. Psoriasis area severity index was used to evaluate psoriasis severity. Hamilton depression and anxiety scales and the Expressed Emotion Questionnaire form were used to evaluate depression, anxiety, and expressed emotion. Results: The levels of expressed emotion and its subgroups in the patient group were higher than in the group of healthy controls (p < 0.05). Gender, disease duration, disease severity, and key relatives did not affect the levels of expressed emotion (LEEtotal) in the patients with psoriasis (p > 0.05). The LEEtotal of those with low educational level in the patient group was statistically significantly higher than those with higher educational level (p < 0.05). There was no correlation between the presence depression or anxiety and expressed emotion (p > 0.05). There was a negative correlation between age and the levels of expressed emotion in the patient group (p < 0.05). There was a negative correlation between age and intrusiveness in healthy controls (p < 0.05). Conclusions: Although decreasing with age, expression of emotion in patients with psoriasis is high, and psychosocial support should be provided to these patients.

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Do stress and support matter for caring? The role of perceived stress and social support on expressed emotion of carers of persons with first episode psychosis

Cited by 42 publications

References 60 publications

The last taboo: The experience of violence in first‐episode psychosis caregiving relationships

The last taboo: The experience of violence in first‐episode psychosis caregiving relationships

Role of poor sleep in determining distress in caregivers of individuals with early psychosis

Increased expressed emotion in patients with psoriasis

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