Does arthritis influence perceived ability to fulfill a parenting role?

Barlow, Julie H.; Cullen, Lesley; Foster, Nadine E; Harrison, Karen; Wade, Matthew

doi:10.1016/s0738-3991(98)00136-0

Cited by 52 publications

(70 citation statements)

References 15 publications

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“…One was excluded because the focus was doctor-patient communication, rather than the lived experience of RA. 179 Another was excluded because it focused on conditions other than RA, 180 whereas the remaining two 181,182 were marginal in terms of whether or not the research methods employed meant that the study fell within our definition of qualitative research.…”

Section: Number Of Papers Initially Included In Synthesis 38mentioning

confidence: 99%

Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research

Campbell

Pound²,

Morgan³

et al. 2011

Health Technol Assess

498

746

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. Declared competing interests of authors: Nicky Britten and Catherine Pope have both run workshops using some material from this research. Some have charged attendance fees and generated a small surplus which was paid to their universities. They have not received any personal payment for these workshops. Catherine Pope also co-authored a textbook entitled Synthesising qualitative and quantitative health evidence: a guide to methods, which contains material about metaethnography and cites the research on which this report is based. Pandora Pound was training to be an acupuncturist while also conducting this research and currently practises as an acupuncturist. HTA NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in th...

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Section: Number Of Papers Initially Included In Synthesis 38mentioning

confidence: 99%

Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research

Campbell

Pound²,

Morgan³

et al. 2011

Health Technol Assess

498

746

View full text Add to dashboard Cite

show abstract

“…Many healthy mothers (without a diagnosis of RA or any other chronic illness) who have pre-school children fi nd it diffi cult to cope with everyday tasks related to child care (Sepa et al, 2004); this might be more so among women with rheumatic disease due to pain, fatigue and functional disability (Barlow et al, 1993(Barlow et al, , 1999Grant et al, 2004;Katz et al, 2003). Katz et al (2003) surveyed 231 mothers with RA about their problems with parenting, in order to develop a scale to measure the extent to this issue.…”

Section: Introductionmentioning

confidence: 99%

“…However, few of their participants currently had children under fi ve years of age (4%), most responses being based on recall of parenting and only on the pre-defi ned issues. Barlow et al (1999) surveyed 145 parents with ankylosing spondylitis (AS) and found that mothers reported more problems with caring for young babies than did fathers. The most common problems were practical issues caused by pain and stiffness, which caused frustration.…”

Section: Introductionmentioning

confidence: 99%

“…Thorne (1990) also found that mothers with disabilities felt that they did not meet their own expectations as a parent, which led to distress; the constant demands associated with child care added to feelings of inadequacy and thus created tension within the family. In addition, Barlow et al (1999) carried out three focus groups with parents and grandparents with AS and RA; similar issues and fears arose, as did social factors related to parenting, emotional impact and the need to educate children about the effects of RA. The strengths of the study by Barlow et al (1999) were the inclusion of mothers and fathers, and taking a qualitative and quantitative approach, but it was limited by the mixture of conditions and generations, and the group interview approach, which might preclude discussion of very sensitive topics.…”

Section: Introductionmentioning

confidence: 99%

“…In addition, Barlow et al (1999) carried out three focus groups with parents and grandparents with AS and RA; similar issues and fears arose, as did social factors related to parenting, emotional impact and the need to educate children about the effects of RA. The strengths of the study by Barlow et al (1999) were the inclusion of mothers and fathers, and taking a qualitative and quantitative approach, but it was limited by the mixture of conditions and generations, and the group interview approach, which might preclude discussion of very sensitive topics. Grant et al (2004) followed up that study with another survey, of 448 parents with RA, AS and back pain, and found that similar problems were reported, particularly for the parents with RA.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The health and life experiences of mothers with rheumatoid arthritis: A phenomenological study

Mitton

Treharne

Hale

et al. 2007

Musculoskeletal Care

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Fatherhood Experiences of Men With Inflammatory Arthritis: A Preliminary Grounded Theory

Bar

Dao

Vlodarchyk

2021

Arthritis Care & Research

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Objective Minimal prior research has examined the impact of inflammatory arthritis (IA) on men’s perspectives on parenting. We aimed to describe fathering roles and experiences, the effect of IA on parenting activities, and strategies used by fathers with IA to fulfill this role. Methods A grounded theory approach guided data gathering and analysis. Nine men with IA, parenting at least 1 child age <19 years, were recruited through rheumatology practices, therapy clinics, and social media. Each engaged in 1 in‐depth personal interview. Transcripts were analyzed using inductive and iterative steps to identify key themes and a preliminary explanatory framework of fathering experiences of men with IA. Results All men were married, ages 31–62 years, with 1 to 5 children ages 6 months to 28 years. “Being an involved father” describes participants’ perspectives on fulfilling their role as hands‐on parents, role models, and financial providers. “Taking ownership” explains how participants managed daily life, comprising 2 subthemes, “taking care of yourself,” using strategies like exercise and communicating with loved ones, and “redefining yourself,” a process of adapting to reframed identity and lifestyle adjustments. “Accessing support” indicates men who felt well‐supported by social networks (most critically their wives), health care providers, and informational and educational resources. Conclusion This small, grounded theory study offers an enriched understanding of fatherhood experiences of men with IA. When social, practical, and educational supports are in place, these men found parenting joyful and rewarding. Despite task limitations, their perspectives on being involved fathers was unrestricted by arthritis.

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Does arthritis influence perceived ability to fulfill a parenting role?

Cited by 52 publications

References 15 publications

Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research

Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research

The health and life experiences of mothers with rheumatoid arthritis: A phenomenological study

Fatherhood Experiences of Men With Inflammatory Arthritis: A Preliminary Grounded Theory

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